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Rheumatoid Arthritis
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Posted 9/15/2011 3:18 AM (GMT 0)
I can't believe I barely have a few months of feeling good when I seem to flare again. This time it started in my elbows and I was thinking ok I've probably been over doing it but the silly things just won't settle. Finally got in to see my reumy to have them injected with cortisone last Tuesday, putting out the spot fires she calls it. So struggled on with the cortisone flush and sleepless nights and now day 3 no improvement!!! Plus now all my joints are hurting.

I get so annoyed. Rheumy tells me there may be bone erosion in my right elbow and wants me to have a CT scan. It is so annoying, we take all this toxic junk called meds and still the disease progresses. She was telling me they can now inject a solution of radioactive stuff into the joint to destroy the sinovial fluid. What next I'm thinking!

Has anyone heard of this treatment , had any experiences with it?

Plus she tells me my bone density has come down from a year ago, I am eating so many dairy products, taking my vitamin D, doing my exercise and still I'm going backwards. I keep thinking I'm only 51 what am I going to be like in 10 years time. I already struggle with my feet.

So feeling low.

Think I'm in need of a kick start to get me going again, golitho

Posted 9/15/2011 4:02 AM (GMT 0)
So sorry your having such a terrible time golitho.   I understand the constant pain. it can be so hard to deal with at times.  Ive not heard of the radio active stuff IIIIKKKK Id much rather try the bovine

ligament that i talked about several weeks ago... but who knows what might work at least animal stuff isnt "lab created" I dont mean to dis-credit all that scientists have done for us ,because they have come a long way in many areas.  however i feel like im a hobbling(not walking) experiment that will be responding to a television comercial about a DRUG GONE BAD! I wish there were more relief out there for us.  Isaiah: 33 :24           NOT pushing any religion but this is what helps me .....take care and i hope you find relief soon. gypsy

Posted 9/15/2011 11:59 PM (GMT 0)
Golitho, I am so sorry to hear you are in pain and flaring. It seems we can only go so long and then BAM! A flare! I have been the same way, and my rheumy decided not to fill my pain med script or my MTX script for some strange reason and I don't get in to see him until the end of the month.  It has been a painful couple of weeks, especially at bedtime.

Sorry to hear about your bone density..I have osteoporosis and I also take the Vitamin D, Calcium etc and still have it, I think it is all the MTX etc...as you say toxic meds, ack shakehead

Posted 9/16/2011 1:01 AM (GMT 0)
Thanks Momto and Gyspy for your words of support. I had to go and see my GP today to get more pain killers, I feel like I'm swallowing fist fulls and then I start to feel guilty. She is so reassuring, telling me not to worry and its fine to take so many when the pain is bad etc. Do you guys feel guilty when you start upping the pain meds. I feel like I'm living on pills and hate seeing my kids watch me swallowing meds all day long.

Does anyone else feel guilty about it? Or am I just going crazy?

I have to go back to the doctors in an hour to see a skin doctor. Seemingly the combination of mtx and humira makes you more susceptible for skin cancer.

Sam, it sounds like your Dad needs to see a rheumy to stop the progress of the disease, supplements help but they are a bit like band aids. I notice if I go off them but they don't make a whole lot of difference to me anyway, they help a little, not a lot.

Regards everyone, golitho

 

Posted 9/16/2011 3:13 AM (GMT 0)
Golitho,
hun, your a very strong person, don't feel guilty that you need to take medicines. Life
has handed you enough curve balls, please don't feel guilty, kids are very
smart, just tell them that that your taking medicines and not drugs...I used to
feel like you when my daughter first saw me use my inhaler for asthma. Sure hope
you can get some relief soon. Prayers with you on it not being skin cancer.
Well wishes, prayers and healing hugz and keep us posted on things and may you get
a low pain day soon.
Posted 9/16/2011 10:06 AM (GMT 0)
Go- so sorry to hear of your repetitive flaring. I so wish all my buddies here could enjoy the same mild outcome as I have. I've been where you are and don't know if I could handle it if it continued as it has with many of you. My heart goes out to you. I hope you feel better soon and pray your RA goes to sleep.
Posted 9/17/2011 4:32 AM (GMT 0)
Hi Golitho hay you and i are the same age,i really hope your feeling better i wanted to post something the other day but i was myself in a Huge Downer and thought all id end up doing was whinging and that was the last thing you needed but its been a few days now and the sun has risen and set and i am still here and it seems a bit of the weight has lifted all i kept thinking was that old song what a diffrence a day makes 24 little hours. i hope you can try to think hay tomorrow might be a bit better
Posted 9/17/2011 5:37 AM (GMT 0)
Hey Golitho, I am really sorry to hear your having a rough time of it, and hope it improves soon. I feel your frustrations with all the meds and still have flares , it really sucks. I wish there was some miracle cure somewhere soon for this horrible disease. I also have had the cortisone shots and I find they don't help me anymore either, the first time I had them I felt fantastic and thought wow it was great for a change, but now its a waste of time. I wish there was an easy solution, just know we are all here for you. Take care and rest up as much as you can
Doreen
Posted 9/17/2011 12:38 PM (GMT 0)
Hello, Golitho. Seems like having RA is a full time job, and it keeps us running to doctors, adjusting meds, and fighting our emotions. I hope your RA will settle down for a while and let you get some rest physically, emotionally, and spiritually. I know it can be overwhelming at times. Hope your dermatologist appointment turns out okay. Sending you a (((Hug)))

Blessings,
V
Posted 9/20/2011 12:28 AM (GMT 0)
"The sun will come out tomorrow...." :)
Posted 9/20/2011 12:43 AM (GMT 0)
Hi Golitho,

You know we shouldn't feel guilty! I didn't until I went to fill my very mild pain script  (more tylenold than pain med) 4 days ahead of schedule and my doctor denied it...I called the pharmacy to see if it had been filled and the pharmacist in a very cold voice told me to contact my doctor it had been denied! Translation...pill popper! your pain med was denied because you are trying to fill it too soon! but I only take them at night, and a few nights here and there I took 1 1/2 so I ran out a little sooner. If they worked I wouldn't have to take an extra half.

But no please don't feel guilty, no one deserves to be in pain sweetie.  If you don't have to grin and bare it like I do, don't!

Posted 9/20/2011 3:05 AM (GMT 0)
Hi everyone, because I'm still feeling a bit blue I haven't been logging on and now I feel overwhelmed, so lovely to read so many replies.

My skin is good, my breast scan was good, my bones have lost a bit more density but I'm still ok. Still swallowing pain killers and feeling very flat, so what a lovely surprise to have had so many of you respond.

A big thankyou.

Sorry to hear your tylenold denied Momto, I wonder why? Doctors are so wierd at times, love to be in control. One minute I can only get a script for a box or two of pain meds then last time she gave me 9 boxes!!! I feel like I've won the lottery, its such a hassle having to continually go in for med scripts.

Wish I could send you one!

Thanks Couchtater, the sun is out but fo some reason I just feel tired and lethargic and unable to enjoy it.

Vannie thanks too, I hate having to run around to doctors all the time, so time consuming.

Doreen, the miracle cure would be so good, but I'd be happy with remission too.

Badday you make me laugh your monniker is so how I feel and here you are with words of hope. Thanks, I'm usually an up person, most unlike me to let it all get to me.

Thanks Weary and Char you are always there with kind supportive words, I really do appreciate it.

Thanks again everyone you've made my day!

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