Histoplasmosis

Hi Dancy

 Hope your feeling Bit Brighter, i was confused did you say you had the Histoplasmosis Before the Enbrel or after?

i'm just doing my own little info collection on the Biologic's.

Hope someone how has simular issues contacts you

Thanks

 

I think that's the problem- you can be going along fine on the biologics then all the circumstances become right to bam- hit you with one of the risk factors. I didn't realize once you got it it stays with you. I'm surprised they keep you on Enbrel- although I am no medical expert so I really know nbothing.
I do wish you find relief and wish you all the best.

Thank you both for replying to my post. ;)

Dancy

I live in Central Texas and it is not common in this area. And on top of that I have not traveled away from home. lol I've read it's very prevalent in the Mississippi Delta areas and surrounding States. Some doctors around here never even think of testing RA patients for it. It just so happened I had been seeing an RA commercial on tv that mentioned fungal infections as a side effect of Enbrel etc. So when I was hospitalized because I couldn't breath I told the lung spec. I wanted to be tested for Histo and he said okay we will do that. It's highly possible if I had not mentioned it I would not have been tested for Histo at all.

While in the hospital in 09 I also mentioned to the lung spec. that my Dad and my Grandfather both died of lung disease and I wanted to know if lung disease could run in my family on my Dad's side. So we tested for that too. It's a genetic gene type blood test. It was positive for Alpha-1 Antitripsyn Deficiency. Antitrypsin is a protein secreted by the liver that is necessary to have healthy elasticity of the lungs. So I have had this all my life also and did not know it. This genetic problem is so often missed and not tested for. Many people walking around having been diagnosed with COPD may easily have Antitrypsin deficiency and don't even know it. Basically it's the genetic defect is why I am on oxygen full time but the Histo sure didn't help any.
I'm pretty sure my Dad and Grandfather both may have had Alpha-1 and never knew it. My Dad died in 09 with pneumonia.

My heart goes out to you and your girl.
This is what I would do:
1. look into the possibility of chronic chemical poisoning. The symptoms she is having can be cause by exposure to heavy metals, dioxins or formaldehyde. If formaldehyde, symptoms should recede shortly after exposure stops. Formaldehyde is everywhere, particularly in low-cost furniture, carpeting, and is a metabolite of car fumes, among other things. It's incredibly dangerous.
If there is an ongoing exposure to dioxins, I would do everything in my power to get the kid away from dioxin. The most likely, however, is in her case heavy metal pmoisoning. I've had exactly her symptoms, and then some. It will not get better by itself. I followed the Cutler protocol for heavy metal chelation. I would contact Dr. Andrew Cutler. I would not go to a normal doctor because this is too specific and they can do a lot of damage if you let them. Read the book Amalgam Illness diagnosis and treatment, write the author, you will find his email in the book (Amalgam is not the only source. heavy metals travel from mother to baby and can spread even through air as well as happen during med. procedures).
What I would _not_ do: I would _not_do a CAT scan as it is equal about 256 chest xrays. You can find out about sources of poisoning by testing her hair using Cutler's book on hair. He is the world's foremost expert on chemical poisoning. He could be your answer. Find his website noamalgam and contact him. He saved many lives.
Plus, a CAT scan can't show chemical poisoning, so it would not help if that's the reason. Also, I avoid fluoride, filter water to avoid. God bless you and your baby. I will pray for you.(I'm writing this ona mobile device, please forgive the messy composition)

Post Edited (wishingyouhealth) : 6/24/2012 4:13:28 PM (GMT-6)