Sacroiilitis

Sherry, I've just been diagnosed with Ankylosing Spondilitis with possible Sacroilitis.  I have had so much pain and thought it was all the fibromyalgia but the rheumatologist said I've probably had this for years.  I had controlled it with ibuprofen...even though I have Crohn's disease!  It never bothered my intestines...but my stomach got hit last summer.

 

I was taken off ibuprofen and I went on a search for a product that could help with the intense pain that was coming back.  I found an alternative product called Curamin that works to reduce inflammation.  It has won awards in the alternative medicine field and it has helped me. (Email me if you want to know more about it.  I'll send you some info.)  It was working quite well but then my precious dog died.  I absolutely fell apart and this caused a ton of inflammation to come back so I needed to do more.  I had to go back on ibuprofen.  I use cyctotex with it to protect my stomach and also Pepcid AC to help my stomach, too.  So far so good.  It was either that or not being able to walk without level 10 pain.  I'm hoping, once I get the inflammation back under control, that I can back off the ibuprofen and let the Curamin do it's thing again.

 

Another thing to ask your doctor about is a drug called Azulfadine.  It's a sulfa drug and they are using this with rheumatoid arthritis, too.  I took it for 11 years to help keep the Crohn's under control.  I  never had a single side effect from it either.  I will be talking to my rheumy about this, too, just in case we have to add that to my arsenal.  The Azulfadine, though, does take about three months before you start noticing a difference but this could really help your ulcerative colitis, too!  My Crohn's was centered in my colon so that's why they used this on me.  It's very inexpensive, too, and has been around for years!

 

http://www.rheumatology.org/practice/clinical/patients/medications/sulfasalazine.asp

Hope this helps you.

 

Sherrine

Thanks Sherrine and Ides....

Yes Sherrine, if you could email me some of the info on Curamin that would be great. :) Anything that can help, I'm game! lol I can't take sulfa tho, I'm allergic to it. :( I get anywhere from all over body welts to severe intestinal pain. Every once in a while I will break down and take ibruprophen but I have to be careful as it induces bleeding in me.

Ides, I had two injections. First one did absolutely nothing so they did another and the same results. After that, they decided not to do any more because they told me that if after two if it didn't help than more than likely future injections wouldn't either. I was seeing a pain management doctor at the time. I'm on Remicade (and 6mp) right now to manage my Uc but it's not helping much with any of the joint pain. Perhaps I should ask my Rheumy and GI about another biologic?

I've been tested numerous times for a wide array of AI conditions and other than Uc, nothing ever shows up on testing. I even had them check to see about the HBLA-27 (I think that is the right combination of letters and numbers??? lol). Negative as well. I was seeing a chiropractor and after numerous xrays, he told me that my sacro might be from twisted vertebrae, misaligned hips, a crooked tailbone and scoliosis. I had many adjustments and I did really well. But I had to stop seeing him due to money issues. I want to go see again but I have to wait until my husband goes back to work. He's on disability from his hip replacement.