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Rheumatoid Arthritis
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Posted 10/14/2012 3:05 PM (GMT 0)
Hello Everyone
I`m just a few day new to the web site and find the help/feedback an experiences very helpful.
Thanx to all out there that have given me hope to go forward with more confidence.I`ve had
R/A for a year or so now and had no real friends who understood the mood swings that are`nt
fun to swing on.The pain sometimes is so unspeakable that`s what I do,don`t speak it.I feel.
The people I have in my life still see the old ways of me,the go getter.How do I explain my body
is made some changes they can understand?The wee ones miss all the fun we have that sucks
for me! they want me to play and at times I can`t, but I do anyway.Can some tell me what to
do,or should try if you can thanx. confused
Posted 10/15/2012 5:33 AM (GMT 0)
Hi another Welcolme

it is Like a Death the old you Dies and a new you is born

you might have days where you can play but you must take care Not to Over Do it

or the Next day will be bad

and then the hard thing is people see you and say but yesterday you were fine i saw you play?

i have had RA & Autoimune for possibly 30 years now and for the past 20 years it has been here full no remissions

i tried to fight it and tried to get the "old me" back but i find now if i accept who i am now

and i Do Not mean give up i mean change walk dont run, plan your day or week

if you want to go out tomorrow do Nothing today then nothing the day after

and as for friends and family well they will or will not accept you but at the end of day

it is You that lives with this and those closest to you so try not to worry about pleasing others

Ha says me who has at times cried for the old me on this forum !!

Take Care

Charn

Posted 10/15/2012 4:01 PM (GMT 0)
It sure can be a challenge, and people can come off as mean, but just simply say "I have good days and bad day because of RA"
and most people should understand. It is very difficult raising a child when you have RA, just make sure you don't over do things
on your good days like the others said. Your children probably understand, better than adults, plus children only want love from us,
to me the most important thing you can do is to read to your children....and your children don't have to sit on your lap for you to read to them.
So on good days take your kids to the park, on bad days just sit and read to them or if they are able have them read a book to you.
Many well wishes to you and I hope you get more good days than bad....
Posted 1/18/2013 2:32 PM (GMT 0)
Have you read "the spoon theory"? For your adult friends this theory may help them to understand more. As for your wee ones, I am not sure how to explain it to them, I have two sons 7and 9 and I have just told them that I was terribly sorry but could not do what they wanted that day as today was a bad day.BUT I too have also played with them despite any pain and made good memories (and dealt with a little more aches and pain later that was definitely worth it ). I have even had to ask them for help for stuff telling them I just cant do it today and they are more than eager to help :) then theres good days where I point out to them 'see I got it myself today yay! ' and they know its a good day. My two need to know there are great/good days, (and even if there arent they need to think there are more good than bad, kids worry)There are ways to still be with your wee ones and believe it or not they seem to understand better than the adults. Best of luck hope you get more good days then bad.
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