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Doc asking me to stop mtx so he can see if I "really" have ra. What do u think?

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Rheumatoid Arthritis
Have you gone off mtx to proove u have ra?
Yes - 0.0% - 0 votes
No - 100.0% - 5 votes
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Posted 11/14/2012 7:49 PM (GMT 0)
Hi ra sufferers, my new rheumy is not convinced I have ra and wants me to stop mtx to prove it. I am not sure if he just wants to get rid of me or really cares. I am already in constant pain and feel Ill was actually hoping to try new jak inhibitor. I'm nervous I am already anticipating what it could be like.

Do u think good idea? Has anyone done this? Anyone trying new jak inhibitors?

Thanks
Just want to get better
Kjc
Posted 11/14/2012 8:29 PM (GMT 0)
I don't think you need to stop MTX. He can look at xrays and MRIs to determine if you have RA. Also bloodwork can tell.

Are you sure he's a good doctor?
Posted 11/14/2012 8:57 PM (GMT 0)
I am seroto negative and my X-rays show degenerative disease I am 53
Posted 11/15/2012 12:02 AM (GMT 0)
I've never gone off of MTX per my rheumies advice. However, yes I've stopped taking it once or twice because I myself didn't believe I had it, and was tired of the MTX, plus didn't think it was helping all that much..was I ever wrong. I did confess to my rheumy, who of course concurred it was a bad choice to stop it, asked how I felt, and was not surprised I felt so hideous.

I've never heard of this approach before with someone who is sero-negative. Is your rheumy planning on checking your sed rate etc before and after to get some idea of your inflammation level? Gosh, I'm sorry, I wouldn't like this approach, and would like to say it may be in your best interest to search for a new doctor. One that is willing to treat your symptom based, sero-negative RA.

Posted 11/15/2012 5:16 AM (GMT 0)
I have had to go off mtx twice to fight infections namely pneumonia, both times my inflammation markers went sky high and I really swelled up. I think mtx keeps our swelling under control.
The trouble with enforcing a flare if thats what he is trying to do is then the wait time to get it under control again.
I agree with Momto this sounds like madness!!!
Get a second opinion.
Thats my advice, golitho
Posted 11/15/2012 6:58 PM (GMT 0)
Thanks for the responses, confirmed my gut, a missing piece was that the office is cash only I had paid 500.00 in cash and they filed my insurance "for me" the check cam in md name and when I called to get it they said they wrote checks the end of the month! I fussed until I got it, then next months visit above happens, hate to think related but!
Posted 11/15/2012 11:23 PM (GMT 0)
I'd definately get your GP or local doctor to reccomend a new rheumy and get another opinion, sounds a bit off to me.

You don't want o mess with your health. You don't want permanent damage becaue someone is trying to work out if you have a disease you know you have from a previous diagnoses.

I just wouldn't go there.

Talk to your local doctor about it.

Bets wishes golitho

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