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Orencia(Abatacept) any success stories?

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Rheumatoid Arthritis
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Posted 9/15/2013 11:08 AM (GMT 0)
Hi All, So far I have been unsuccessful with Sulfasalazine, Methotrexate, Enbrel and Ro-Actemra singly and sometimes in combination with each other. I am now 5 weeks into Orencia. Wouldn't mind hearing some success stories with Orencia to perk me up a bit. Thanks Neenaa
Posted 9/15/2013 11:11 PM (GMT 0)
Hi, Nanee,

I inject Orencia once a week and also take Methotrexate. Orencia has worked really well for me. My CRP went from 7 to .9 on Orencia. But............my CRP is a 10 at the moment. Rheumy says flare. I hope Orencia is still working. My orthopedic doc did prescribe Elavil for nerve pain ( I also have Fibro ), and that med is helping me a lot w/nerve pain. I don't have any side effects from Orencia...not even an injection site reaction. Hope this bio works as well for you as it has for me.

Blessings,
Vannie
Posted 9/16/2013 5:25 PM (GMT 0)
Hi there,

I took orencia for five months or so, with great success. Previously I had been on enbrel for many years but it had stopped working for me.

Orencia worked quite well, but I had to stop taking it because it consistently caused UTIs. I hate UTIs. But ra-wise, orencia worked better for me than the TNf inhibitors.

Best wishes,

Elcamino
Posted 9/17/2013 8:19 AM (GMT 0)
I hope your meds work and that you have peace in your heart while you find the right one. It can be really hard finding that right treatment. I was on Enbril for 12 years when it stopped working and I had a really bad flare. Started on prednisone and finally Humira but I am not so sure that the Humira is working as well as the Enbril did. I have been tapering off of the prednisone and keep having flare ups and having to up the dosage again. It has been hard because the prednisone makes me feel great but it has a whole lot of really undesirable side effects that go along with it. Kind of a catch 22 in ways. I know it will work itself out though.

Take care. -Don
Posted 9/17/2013 9:49 AM (GMT 0)
Thank you Vannie, Elcamino and Don.
I have put off posting anything to health forums for a long time, I don’t know why. I certainly had plenty of questions. I’m amazed how much receiving your replies has touched me. Although I have received wonderful support from my family your support is highly valued. Sorry if I seem a bit over the top. I seem to be improving with Orencia combined with Methotrexate and Prednislone. My liver was having a bad time with Ro-Actemra but it has improved greatly with Orencia which is a huge relief. Thanks again Neenaa
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