Has anyone had small fiber neuropathy due to Enbrel?

Hi I am newcomer, and have learned a bit reading your posts, its so nice people take the time to help one another. I have reactive RA and have been pulled off Enbrel recently because of feet, hand and eye neuropathy, Dr thinks the embrel is causing it. I have deep RA backset because of the withdrawal, one of worst besides muscle and joint pain is my chronic canker sores. The Enbrel helped the sores, also colchicine helps, but nothing like enbrel. I have prescription mouthwash, and use coconut oil to brush.

What I am wondering is whether anyone has ever had small fiber neuropathy due to enbrel? Ive got feet, hands and eye involved, of course I due have half blown bechets disease, celiac disease, as well. I am sure I am leaving out some other malady I have. I find I cannot take psychotics very well they react and make me feel crazy so I have to go it rough. Seems always have to return back to prednisone, as soon as I wean off it, have to go back on it for canker sores.

The Enbrel did a very good job of keeping RA to manageable level and C Sores at bay, oh well. Guess I don't want neuropathy.

I have started new whole food regimine, boiling bones for their marrow broth, drinking twice a day, seems to be helping, cutting out all package foods, only cook whole, grass fed, organic. But even with almost a year of that, no RA relief, really.

re toothpaste I used to take rembrandt until they took it off market and started selling it on eBay for $ - $300 tube, I now order Verve off the internet, it helps, also coconut oil helps, its antimicrobial.

when will they figure out all this autoimmune stuff - I am beginning to think the only thing to do is take pain pills and work on the gut... I am better after removing gluten, but there must be more things....

Thanks ya'll for listing to all my probs, if you have anything to add would be so grateful.

Nite

p.s. 25 year insomniac, but the bone marrow broth helps

Hi Nite,

There are other drugs available besides enbrel.  Has your rheumy suggested anything else?  Since enbrel may have been causing your neuropathy, you might want to avoid all of the TNF inhibitors (humira, remicade, and some others I can't think of).  Enbrel stopped working for me after several years, but I now take orencia, and so far it seems to work fairly well--better than enbrel as a matter of fact.

I get tingling in my feet and hands, and occasionally in my arms and legs.  My rheumy has suggested that might be the way my brain perceives inflammation.  It's not too bad, and certainly not constant. 

Elcamino