Posted 1/4/2015 11:19 PM (GMT 0)
Hi Couchtater,
I am new to the site and awaiting my rheumatologist app't at the end of Jan as I had a positive blood result (just the RNP tested positive) and I have a great deal of symptoms. The one that had me the most concerned was the hair loss I was and am having, by the handfuls. I don't have the butterfly rash but possibly the discoid and on my scalp as well. As I have not seen a Rheum I just wash my hair 2 times a week with a Moroccan oil shampoo and conditioner as well as hair oil, they are also gluten free as I have Celiacs disease (dx 7 yrs, had it all my life). Of course I wet my hair in the shower and use the oil daily.
I am really looking forward to my app't as I have been waiting for 3 - 4 mths now, with the colder weather has been more symptoms or flares. I do think it's hitting me quite hard as most everything else does. My Celiacs causes a lot of internal issues that I deal with and now this too. But being a member here will help know that I am not alone in this, there are others with MCTD too. On top of all this I deal with a tachycardia heart that I am getting ablated in hopes of slowing it down for the second time, if this doesn't work then I will probably need a pacemaker. But I question if this is all part of Mixed Connective Tissue Disease?
Anyways, sorry for ranting and going off on a tangent but I suddenly feel understood and not alone anymore. Thank you!