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extreme pain and no answers

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Rheumatoid Arthritis
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Posted 1/31/2015 4:48 AM (GMT 0)
I Am 21 years old and ive been to 4 different doctors in the past two weeks. Once my PCP then another pcp at the same office. I went to urgent care two nights ago and then with another doctor last night for two hours. I have been extremely fatigue for months and months every once in awhile I would get pains in my body...well its gotten worse and worse....my entire body feels like its being squished under something extremely heavy. I have no motivation I'm so so tired. My hands hurt when I write and when I say my entire body hurts I mean my toes my knees my hands my neck my back my head EVERYTHING. Not one doctor has given me a answer as to why or what's happening with me...I'm so.miserable and I am.in so much pain. I lay on the the floor for hours because its the most relief I can get and even that is painful. I've had so many blood tests done and now they want more and to do other testing. They gave me medication to take for muscle inflammation (steroid) but it doesn't seem to be working because yet again I was on the floor. My hands and feet keep swelling up along with the rest of my body and they get numb and tingle at times..

Does anyone have any tips for the pain? The other symptoms ( weight gain, mood swings, depression, hair loss in shower hair brush Don't bother me as much as the pain, swelling and numbness/tingling in my hands and feet. 

I am willing to try anything! I need some relief 😢

Thank you all in advance!
Posted 1/31/2015 8:02 AM (GMT 0)
Hi nhgirl,
Your symptoms don't seem to be typical for RA, but you sure do have something going on! You must be scared as hell. The most frustrating thing for me at the beginning and the scariest was when no one could come up with a dx. The most I can offer for advice is to ask for a sedrate test to confirm amount of inflammation. Have you looked into fibromyalgia? Plumes disease? You sure are young to be dealing with this. You should try to get an appt with a specialist. Do you have insurance? Best wishes and let us know how it goes. Wish I could offer more ideas, but out of my realm.
Beth
Posted 1/31/2015 8:10 AM (GMT 0)
Typo in first post...meant lymes disease. Also thought it sounded like thyroid or maybe diabetes. Big one lately talked about is low vitamin d.
Btw, I take Aleve for inflammation. Maybe give it a try, but get the tests done. It's the only way to get to the bottom of it.
Beth again.
Posted 1/31/2015 3:06 PM (GMT 0)
Beth-
I definitely am scared as hell. It wouldn't be so scary if I had some idea as to what it is. I wake up so stiff and in so much pain. I feel useless lately its so bad. And they have tested my thyroid and it was "barely low. Not something to worry about. Just retest it in a few months". And Lyme disease was a negative as well. I'm so thankful I have insurance! Otherwise I'm not sure what I would do at this point. I've seen so many different doctors because not one of them can understand why I'm like this and what's causing it. I'm hoping that with this testing they can come up with something! I'm trying to be patient but it's hard.... They did test me for my level of inflammation and they said it was High and to continue prednisone. Thanks for the reply
Posted 1/31/2015 7:41 PM (GMT 0)
Do you remember what your sedrate number was? Just based upon that high number, you might be able to get on a pain management contract for narcotics to get some relief and sleep while you pursue a diagnosis. Living in constant pain is draining physically and spiritually, and prednisone has dangerous side effects. Although narcotics has that nasty addictive quality, short-term use FOR pain is a good thing, in my opinion.
When do you see the doc again. Remember that you are paying them and they work for YOU. Advocate for yourself and demand referrals to specialists if your not getting results.
Beth
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