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ILD - Interstitial Lung Disease

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Rheumatoid Arthritis
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Posted 5/21/2015 9:29 PM (GMT 0)
I am new to this forum, not new to chronic illness. I have several diagnosis. I do not have RA but I do have CPP arthritis, another type of inflammatory arthritis which is hereditary.

I was diagnosed with ILD - Interstitial Lung Disease this week. I have a chronic cough and shortness of breath. Does anyone else have a similar diagnosis with RA? I don't know what to do next. My rheumatologist has referred me to a lung specialist.

Thanks for your help.
Posted 5/22/2015 6:29 AM (GMT 0)
My aunt had pulmonary Fibrosis. Not a nice sounding disease.

I hope they have caught you early before too much damage is done.
Posted 5/26/2015 11:10 PM (GMT 0)
get a list of question ready for your lung/pulmonary doctor, first question should be : "Is this RA or RA Medication related?"
Some medication's can cause lung issues and it's best to let your lung/pulmonary doctor decide what the cause could be...
But, don't panic, just wait until your appointment and get a good work up then...I have a good lung/pulmonary doctor and he's very knowledgable...but, I have asthma...
Also, drink plenty of water, water helps break up phlegm...
Posted 5/27/2015 3:06 PM (GMT 0)
I already know its autoimmune related. I have a more rare type of arthritis called CPP that is attacking my soft connective tissue. It started with my joints 10 years ago. I've had 5 spine fusion surgeries, knee replacements, hysterectomy, & more. I seem to have been able to slow the progression in my spine for the moment as my degeneration is now mild, no longer severe.

As for my other joints - I'm in the same position as all you RA folks, considering hand surgery at the moment, can no longer use my right hand.

My arthritis is hardening the soft tissue in my entire body. It seems to have moved to my throat and lungs now.

Looking for anyone with RA or other inflammatory arthritis who also has lung issues. I'm on a course of the wonder drug prednisone at the moment & most moments in addition to a plethora of other meds, you know them all.
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