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Rheumatoid Arthritis
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Posted 5/21/2016 12:46 AM (GMT 0)
Hi All Hope you have been coping with everything this week
I just have a little Rant ( as usual )
I don't know how many of you have Diabetes along with your other issues well a few months ago I was feeling overwhelmed so got sent to the Diabetes educator for refresher and general try to get my head around it
and first visit went ok she increased my metformin and also said about Diet and exercise, so I tried to improve my diet and I tried to walk a bit more But as usual exercise has always been difficult due to the RA and Spinal problems ect ect and I try to cook but again I have difficulty and altho I have a personal carer (hubby) he helps with bathing dressing etc but is no chef so the first month I lost 2kg but then it was harder to keep it up and I have not lost anymore since well each time I go back to see the diabetes lady I feel like I am going to a Jenny Craig or Weight Watchers meeting This is Not helping me Learn about
Diabetes and in my opinion yes I have put on weight but I am not Huge i have sort of been staying around the same weight for years now , but what I felt was she didn't see Me she didn't see All my Diseases I felt like saying hay love you get RA where you have intense pain in almost every joint and fatigue like you died 3 weeks ago then add Fibromyalgia where your tendons keep rupturing or "just plain Hurt" then add degenerative disc disease , Osteoporosis so your Back is a mess of Broken Glass then add Heart Disease so Any excertion is So Hard Anyway then add the Diabetes and then You go run around the block then come home and on my Very Low Pension income Cook a Meal of fish or meat with vegies and see how you cope . then as I was fuming over this my next door neighbour came over and he had just been to the Doctor who told him his Diabetes was not going well and I looked at him - he is thin as a rake ? so much for the idea of weight loss and diabetes .
so end of the rant is I guess I'm tired of having to explain how it feels to have RA and all the Extra Health conditions that hop along with it . and why health care people can't seem to " get it "
beties
Posted 5/21/2016 3:30 AM (GMT 0)
Bad, so sorry to hear this. I know how frustrating it is and I can only imagine with additional ailments dealing with all of it can be very overwhelming.

Health care I think is just heading this way overall. It is less about the patient and more so about alienating and making one feel as if they somehow have a hand in their health when many of us simply don't.

The attitude towards chronic pain is a prime indicator of this. I recently was asked to go for a health checkup through my employer to certify as whatever "level" and decrease my co payment. I did this last year and when I did I was treated by the nurse like some kind of criminal for having poor results on my cholesterol test. Nevermind having RA and being on a myriad of RX with who knows what effect on my body. Its all my fault.

Nevermind the special diet and trying my best to walk on a regular basis. It's never enough it seems.

This year I decided against it and will in no way take part in it. I have enough to deal with besides being treated as if I am some kind of detriment to humanity due to forces outside my control. I know this is pretty woo woo but I see this attitude towards the sick and it reminds me of Logans Run.

Hope you feel better, I have struggled with my weight because I have become so sedentary especially these last few years. I try not to beat myself up over it and save my energy for my family and things that really matter. Hang in there, we are all doing the best we can :)
Posted 5/21/2016 4:41 AM (GMT 0)
I'm like you, bad day. I'm 100 pounds overweight. I've managed to lose 50 over the past year, but my doctors keep saying eat healthy, exercise, lose weight.
I can't go outside for a walk due to my photosensitivity. If I could my fibromyalgia, lupus, or psoriactic arthritis would fight me every move I do. I'm diabetic and have degenerative disk disease too.

My body is one hot mess!
Posted 5/23/2016 6:36 PM (GMT 0)
I'm so with you on why doctor's can't get it! Gosh do they even have a clue when they diagnosis us? Or are they also mad of the hoops they have to jump thru for insurance and don't see us but insurance?

My Ra doctor is nice, takes time with me and I'm one of his harder cases and I'm tired of going every 3 to 6 months only to get no meds no help because I get pneumonia easy. another doctor says I'd make a good case study like I need that like a hole in the head.

You have my support and hope that'll help make you feel better. There are better days ahead for you. Hope you get relief soon. Wish I could tell you something more than to just hang on tight.
Posted 5/25/2016 7:55 PM (GMT 0)
So sorry you are going through this.
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