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Humira and ?

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Rheumatoid Arthritis
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Posted 1/4/2018 9:38 PM (GMT 0)
Hi there, I am taking Humira for Ulcerative colitis and arthritis (Spondyloarthritis) but I am struggling with serious joint and muscle pain. At first, I thought coming off of Prednisone that I was on for a long time was the cause, but three months have passed and it has got worse. Before, the pain was in my feet, back and tailbone, now I can feel severe stiffness in my hands, jaw and knees, its everywhere.



Has anybody any suggestions. I am seeing my Rheumatologist on Monday. The problem I have is that I am unsure as to whether the Humira is causing these problems, although the blood work taken recently looked ok or whether I need another Med on top of the Humira. Is that something other people have had to do, Humira with another Med?
Posted 1/5/2018 12:42 AM (GMT 0)
Hi Poppie:

Thank goodness you will be seeing your Rheumy on Monday. He will probably be able to tell you
what is causing your pain.

Did you taper off the Pred slowly? Even if you did, it can still cause extra pain by not being on it for some time. Sorry, I do not recall how long you were on Pred. or your history.

Humira can be used with Methotrexate, other anti-inflammatories and even pain killers, if it does not work good on it's own. I do not know the ins and outs as far as treatment for Ulcerative Colitis. Your Rheumy must have given you exact guidelines. Good Luck at your appointment on Monday.
Posted 1/8/2018 4:25 PM (GMT 0)
Thank you..I am seeing my Rheumy tomorrow, not today and so I will see what he has to say.

One thing I wondered if anyone knows.

As I said at the moment I have severe joint pain and I dont know whether its pred withdrawal or Humira.

If he prescribes MTX on top of the Humira is that okay to do that?...what I mean is what if the Humira is causing this problem shouldnt I come off of it...is it dangerous or not? and if not then I can take the MTX as well?
Posted 1/9/2018 6:36 AM (GMT 0)
Well, since the MTX "failed" you, then your Rheumy will not put you back on it. If the Humira is causing you pain, then he should take you off of that. None of the biologics worked for me. There are many other meds that you have probably not tired, that may work for you. You just have to keep trying each one. Or sometimes, 2 or 3 at the same time. Whatever works for you.

If he thinks it is the lack of Pred that is causing your pain, then he may have to put you back on it for a while. I was tapering low on my Pred (again) and in December, I ended up in the hospital, again. RA is my devil disease and Pred is an Angel and devil drug...but it is needed sometimes. It is for you and your Rheumy to decide what your next treatment will be. Let us know how it goes. Best to you!




































he will not be putting you

Post Edited (msOuchie) : 1/9/2018 12:41:06 AM (GMT-7)

Posted 1/11/2018 12:00 AM (GMT 0)
This is going to seem odd, but I just read this recent study conducted out of San Diego (Scripps) regarding the AIP (autoimmune) diet for IBD sufferers. Seems like a huge chunk of participants (who remained on their medications) saw remission. Imagine just a diet! No side effects.

http://journals.lww.com/ibdjournal/Pages/ArticleViewer.aspx?year=2017&issue=11000&article=00021&type=Fulltext

I suffer from celiac disease and consider myself lucky that I can be treated with a diet alone. I firmly believe in good foods (non processed) as it has also improved my Hashimoto’s (antibodies reduced, no more enlargement or nodules) and a recent endoscopy reveal a completely healed small intestine. Best of luck to you!

Post Edited (cyclinglady) : 1/10/2018 5:03:49 PM (GMT-7)

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