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Tips for fatigue flare?

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Rheumatoid Arthritis
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Posted 7/1/2020 3:26 PM (GMT 0)
So the dizziness, weakness, etc I’ve been having....my rheumatologist thinks is related to more RA activity, especially since one of the joints acting up is my jaw. I am going to see a neurologist too, just to rule out any other causes of vertigo or silent migraine, etc, that should be treated.

The rheumatologist is taking me off Plaquenil, since I keep having flares, and putting me on Imuran. Any tips on dealing with the fatigue, dizziness etc in the meantime??

Never sure if I should try to go for a walk every day even if I feel bad, or if I should just rest?? Already drinking ginger tea, getting enough sleep when I’m not in too much pain to sleep. (My neck and jaw make it hard to side sleep, but that’s the only way I can sleep.)
Posted 7/22/2020 5:19 AM (GMT 0)
Hi KM,
I went through similar issues in 2015 - crazy vertigo and dizziness. They did all sorts of tests to figure out what was wrong. Every doctor said they couldn't find anything but inflammation (GI, ENT, neck/spine, etc). They all said, "consider going gluten, dairy, and sugar free" - I'm was already 90-something % dairy free already, but i bit the bullet and went gluten free. I told myself I'd give 110% for three months and see if it did anything. Unfortunately, less than 2 months in I did feel a lot better - so I'm still GF. My blood tests showed improvement with inflammation 6 months later with the diet change. To this day, i still need to work on my sugar intake big-time.
One doc said he thought I might be having silent migraines - but that those are also caused by inflammation, so the treatment suggestion was the same.
Have you tried seeing a dentist to get a night guard for your jaw? It may help alleviate the pain.
I hope you are finding relief.
Posted 7/22/2020 1:29 PM (GMT 0)
Hi, I’m glad you found a solution. I am getting a mouth guard from the dentist. I was also just diagnosed with idiopathic intracranial hypertension, as seen on MRI, so I am now trying to figure out a treatment for that. I guess it can be caused by Lupus, but my diagnosis is RA....so confusing.
Posted 8/26/2020 3:34 AM (GMT 0)
i hope the night guard helps.
have the decided what to do for the hypertension?
any better since late July?
Posted 8/26/2020 2:49 PM (GMT 0)
Hi. Now the neurologist says I was misdiagnosed with regard to IIH and he and my primary care doctor think It’s anxiety....
Posted 5/29/2021 10:55 PM (GMT 0)
So, how have you been feeling? What treatment did you all finally decide on?
Posted 5/30/2021 12:27 PM (GMT 0)
Hi. Thanks for asking. It was a tough couple of months. Turns out the neurologist misdiagnosed me and now says I don’t have IH. My insurance didn’t cover the mouth guard. My jaw problems have mostly resolved, but do act up sometimes. I stayed on Plaquenil at a lower dose. I am still dizzy sometimes but mostly am able to ignore it. GP and neurologist think my dizziness is just anxiety. Who knows? I think the doctors try their best, but they just don’t always know. None of them suggested eliminating gluten, and that is such a big commitment. I should probably try it, but haven’t. My latest issue is hip pain waking me up at night.

Post Edited (KM2018) : 5/30/2021 6:30:28 AM (GMT-6)

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