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Sjogren's Syndrome
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Posted 12/24/2009 9:42 PM (GMT 0)
Anybody here choke all the time? I choke on words, air, saliva, water, coffee, but I hardly ever choke on food. Anybody else?
Desertduty
Posted 12/25/2009 2:56 AM (GMT 0)
My Sjogren's doesn't affect my mouth, its more in my eyes & ears. I do use the Biotin mouthwash sometimes + there are gum & toothpaste that might help you.

Hopefully someone will come along soon who has some good suggestions for you.
Posted 1/1/2010 8:21 PM (GMT 0)
I choke on meat, bread, anything dry unless I'm eating it with water. Sometimes, I just can't swallow and have to spit it out. I eat soups most of the time. I do not choke on liquids. I am in process of getting my 8th and 9th dental implant due to ravages of sjogrens, and also have a bridge, etc. Needless to say, my dental problems have taking a large part of my retirement funds. My tear ducts were cauterized ten years ago, and that almost solved the problems of red, burning and itching eyes. However, be warned, I can no longer cry. Have had some terrible losses in my family, and could not shed a tear. May seem like nothing to those who haven't experienced it, but believe me, I would give anything to be able to just break down and cry my eyeballs out. Crying is cathartic, and I never knew how much (and I'm no crybaby). No one told me this could, would be a side effect. Depression, chronic fatigue, on and on, Sjogrens take its toll, and hardly anyone uninvolved knows anything about it. Oh, yes, I have an arsenal of dental products that I have purchased far and wide, some help a little, but nothing makes a Sjogren mouth normal.

BTW, Desertduty, I would love to have enough saliva to choke on!

BTW, anyone who has parotid glands that swell so that you chew on them and make them raw. write me, after being referred to 4 specialists who knew/did nothing, I figured out something myself. Well, might as well tell you, I roll up antiseptic gauze, put it between my teeth and jaw (glands), and doing that overnight allows the parotid glands to heal - until the next time.

Sorry this is so long, guess I needed to talk. It's been a long time.
Posted 10/8/2010 3:44 PM (GMT 0)

Hello everyone,

I have been reading the posts with interest as I have this week been diagnosed with S.S.  I am 63. I was diagnosed after results of a lip biopsy which I found very painful after the event,  My disolvable stitches did not disolve after 4 wks and my dentist had to take them out for me.   I had never heard of this syndrome and was sure that I was the only one in the world with it, by Accident I stumbles across the healing welll website, must have been fate.  I registered and am a new member.

I feel that my gp doesnt really feel that it is much to worry about and also doesnt know much about it. I have not had much advice or support really. However my Rhuematologist has offered me treatment in the way of a drug, cant remember the name, I have had to have another blood test, and await the results in 2 weeks to see if its ok for me to take it. I am feeling pretty fed up, as I feel that I may have had this condition for a long time, I seem to have a lot of symptons which have been treated separately over the years, can they all really be related to this condition?  does anyone know. confused

Posted 10/8/2010 4:48 PM (GMT 0)
www.sjogrens.org is the main Sjogren's website -- it will tell you more about the minor symptoms (dry mouth, dry eyes) as well as the more complex issues (organ involvement, etc)
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