Burning symptome caused by Sjogrens

My wife was diagnosed with SS about 6 months ago.  She has all the dry symptoms caused by Sjogrens, but she also has severe burning of the lips, mouth, throat and vaginal area.  Is there anyone out there who has suffered with these symptoms.  If so and you have found something that gives you relief from the burning, I sure would appreciate the help for her.  Thanks-Pilot

I was diagnosed with Sjorgen's several years ago and have also experienced the burning in my mouth and lips, along with a swellon tongue. After several visits to my dentist and RA doctor I found a doctor that had an answer. She gave me a mouth rinse which consisted of tetracyclian, hydrocordison and nyasin. After two days the burning sensation went away. I had this mix compounded by two different pharmacies. One taste ok and the other was horrible but it took care of the problem.

Wish her the best.

I have terrible dry eyes and have had a corneal tear etc. but i mentioned to my rheumy the other day that my lips are always so hot like they need constant lip balm because the heat keeps me using more and more, like they r always chapped!

I also get dry and chapped lips. Products such as Carmex and Blistex make my lips worse, especially in the winter. I use a Vaseline lip product in a tube.

Vannie try some over the counter eye drops til you can get and see your eye doctor,
blink eye drops help make sure they are preservative free and natural, they can help.
try biotene at night for the dry mouth...make sure to let your doctors know,
and many well wishes to you...

I have only had the burning of the lips, and have tried numerous products. What works for me is Blistex Medicated Lip Ointment. It is not a permanent solution, but it numbs the lips temporarily. I have several tubes of it to make sure I don't run out.

Hope this helps, Mary.

You need a ophthalmologist, they know about diseases of the eye and are medically certified to treat them.

An optometrist can fit glasses, but that's all.

However, if you are already seeing a Rheumotologist, I'd start with talking to them. Sometimes Sjogren's can be diagnosed with bloodwork without need for a painful lip biopsy or an extensive eye exam. It depends a lot on how your rheumy wants to address it, but I'd talk to him/her first.

I was diagnosed with Sjogrens almost a year ago.  I do not have the pain or burning in my mouth but only in my throat and chest.  Most people would call this GERD but not understanding why my eye pain is associated with it?  Seems like the two go together.  I never have one of the symptoms without the other. Any thoughts?

That would make sense. I have found some other sites that have also linked Sjogrens and GERD so I will just continue to treat the symptoms.
Thanks.

I have sjorgrens for several years. I used the otc eyedrops for awhile but had to go on restasis. I used normal saline nose spray for my nose as well as two different sprays that were prescribed to help with my allergys and ears. My left ear stays stopped up and is hurting now, haven't really found any relief for it except a tube in it several months ago. I will probably have to go back to the ear Dr. this week. It is also effecting my teeth, I will see the dentist tomorrow for some work. I use evoxac for my dry mouth and would not trade it for anything, it has made things so much better. I stay hydrated during the day and hope the evoxac and a humidifier lets me sleep at night. I used biotene mouth wash to help also, sometimes in the middle of the night.
Don't use alcohol based mouth wash that makes it worse.

I use esterace cream for the vaginal area, and it does help.

I have gerd, and it seems to be assosiated with the Sjorgrens also. I take two aciphex a day and am real careful about what I eat. No spicy or rich foods.

I am learning to live with it by trial and error. Some meds also effects it by making your mouth drier. I had to get off of trazadone.

Hope things get better for you.