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Blisters in the mouth

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Sjogren's Syndrome
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Posted 6/13/2014 3:26 AM (GMT 0)
I am really perplexed. I realized last night that my mouth is full of blisters. I have had a sore throat for well over a year, but besides the red, drs did not find anything. My pcp did try antibiotics, but the sore throat persisted.

I often take pictures of my mouth to show the doctors if I have mouth sores (different appearing sores get treated differently, and sometimes, they are come and go, or the dr sees them in the healing phase). Last night, I realized that what I thought were spit bubbles were blisters. They are all over, but to see them, the flash has to hit them right. You can tell the difference because spit bubbles have a distinct border, but these do not. I am linking to a picture, but since it is of my mouth, some may be squeemish. I do not think it is that bad, but some may disagree. You have been warned. :) (If the link does not show the full size picture, click on the picture again so that you can see where I circles and the numbers.

i1152.photobucket.com/albums/p486/SoSt9/Medical/mouth_zpsa19bb09a.jpg

I had originally assumed that these were all related to Sjogren's (except #1. I have no clue what those are). Anyway:

1. Blisters
2. A sore that has formed around a blister that is probably about to pop (you can't see it very well since my soft pallet is raised, but I almost always have a sore there)
3. Blackish colored dots that are on the left side of my mouth (I think there are 5 of them - they are not trauma related)
4. Irritation that is very sore behind my upper molar.
5. More blisters, but you can't see them from this angle, however these have red under them. Most others do not.

My dr gave me some oral Nystatin (nasty stuff) and is sending me to a dermatologist (For my mouth??)

I think I may have something that the nystatin was will help, but I don't think it will touch the bubbles. I could be wrong though.

Has ANYONE here had something like this? I can't even find many pictures of it on the net. confused
Posted 6/13/2014 5:51 AM (GMT 0)
I can totally understand the nystatin because it looks like thrush. I say that because I breastfed, and my babies got that a few times. However, how that relates with shjogrens (if it does) I am curious.
Posted 6/13/2014 6:06 AM (GMT 0)
I agree totally that my tongue looks thrush like. I have had it a few times because of dry mouth (it is irritating). The lesions (not the ones in the back of my throat) don't look like thrush lesions to me this time. They do get red, but the one that is partially hidden still has a blister in the center. The thing is, the blisters are filled with clear fluid, and they have been there for a while. I have to go back and see if they were present months ago. and I know for sure one has been present during the treatment of thrush.

I think in addition to thrush, there is something else. I have seen starting some large flare of something (not sure what). My biggest issue is the blisters in the back (as I said, they are more places than pictured. Looking bad, it could be why my throat would get red in spots, but not cover over with white.
Posted 6/13/2014 6:41 PM (GMT 0)
Oh okay, I understand what you are asking now. I guess I was just having a hard time seeing the blisters clearly. I'm going to watch this thread to see if anyone else has any ideas.
Posted 6/13/2014 7:05 PM (GMT 0)
Hum. Have you had a dentist or periodontist look at them? They are more educated on things inside the mouth than other Drs.

I would be most worried about the black spots - does your dentist do screenings for indications of oral cancer symptoms?

Are these there all the time or do they come in spurts? Like do they appear right after you've run a fever or over-stressed about something?

I don't know, those are just my random ideas...
Posted 6/13/2014 7:27 PM (GMT 0)
Well, no. I have not had a dentist look at these, but I am planning on making an appointment with one soon. The dentist I saw before didn't much beyond a cleaning and telling me to get a mouth guard because he believed I was grinding my teeth in my sleep (this was 2 years ago). I think I had been putting it off because I have been more worried about my eyes than mouth (until now). The dry eyes have really been wreaking havoc.

Let's see. I notice the black spots when my tongue pain starts. I do not know if the one in the picture is there all the time, but I have some on the side of my cheek that do come and go. It is also possible that they are blood flecks. I have been getting a lot of those on my skin lately. At first, I thought they were there because I bit my cheek (I do that often when my mouth hurts - I am guessing from swelling), but some of them are not in places that I would bite. I first noticed them probably 6 months ago.

The blisters have been there at least a month and have been constant. The older pictures are on the other computer, so I have to look to see if they are present there as well (if I don't fall asleep first). Once I noticed there were blisters, I looked through my pictures back one month. They were always there, in the same locations. Honestly, they really freak me out because I can't find any information - well, mostly none. After my rheumatologist told me to see my dermatologist, I looked that up. Apparently there can be skin conditions that can happen in the mouth too (autoimmune related and not). If I don't know what is happening with me, I can panic. As long as I have some plausible guess of what it could be I feel better - even if it is something bad.

I do have a lot of mouth issues when I am stressed - at least more than normal (if I have a normal - lol). My throat has been inflamed for over a year. I remember my PCP making note of it.
Posted 8/3/2014 6:17 PM (GMT 0)
I had these sores in my mouth too. A friend told me to use Gly Oxide. It worked. If I get a sore I put it on and it goes away. I did talk to my dentist and she said use it only as needed.
Posted 8/4/2014 3:15 AM (GMT 0)
My ENT who does my nose surgery looked at them and said that they look like blocked (salivary?) glands. I am seeing a doctor tomorrow, but I can't remember if this is the voice doctor or the doctor who will look at my lymph glands. Both are ENTs and both deal with that area of the neck. I don't remember if I mentioned it, but I have swollen lymph nodes, so I have to get those checked. I will show her these too.
Posted 8/5/2014 10:36 PM (GMT 0)
That doctor I saw yesterday has pretty much made me go back to square one with these. She said she does not believe that they could be blocked salivary ducts because they would be red and/or full of puss. I was pretty much dismissed. She did not see them, so she said they were not there "today". They were, but it is hard to see them unless you look the right way. It is like how doctors look for floaters in your eye. They do not look for the floater, but for the shadow it makes instead.

I believe that my nose doctor is probably right and it is some things that are blocked with saliva. I am seeing yet another ENT towards the end of the month, so maybe I can get his opinion on these. I do not think they are cancer or something that is going to be serious... I just want to know why they are there and what they are, besides creepy.
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