Hi Nolatoco. The problem you're having with your eyes sounds awful. It's really too bad that you can't get a diagnosis. My Sjogrens book has lots about
the eyes, so this is just some about
tear film layers: the mucous layer is closest to the eye; the aqueous layer is the liquid component of the tears and hydrates the mucous layer to form a sort of tear gel; the lipid (oil) layer is produced by meibomian glands, which are located along the margin of the eyelids, adjacent to the lashes. That's why the ophthalmologist suggested eyelid scrubs.
You can buy the scrub pads OTC. I've used them before, but I wasn't diagnosed with a meibomian problem. I have lupus with secondary Sjogrens and must use OTC drops a few times a day. When I wake up the dryness is actually painful. I don't want to add another prescription med to my long list, so I've declined Restatis so far. I do take an estrogen supository for another dry area Please let us know how you're doing, Okay? Love, Butterflake