Posted 3/9/2013 10:20 PM (GMT 0)
sayyadina, thank you for your response. Let me ask you what products do you use for your skin and mucus membranes??
Yes, I respond well to prednisone too. It seemed that plaquenil quit working for me back when I was having so much joint pain but the joint pain has really subsided (Vit D working for me?) who knows. But, the mucus membranes are horrible, all except my eyes, so I don't know why that is exactly. If it isn't sjogren's it's something else. I know I have scleroderma of the skin, so maybe that's doing it but I've never ever read that about scleroderma of the skin affecting mucus membranes. One rheumy thought I might have mixed connective tissue disease or an overlap syndrome and actually, I think he was closest to being correct. LOL.... The cotton mouth is one thing, the other mucus membranes down below that dry out are the worst!!!! I've used tons of estrogen cream ( I am menopausal) and it has little effect. I also use a steroid cream. It's just relentless. I am going to try to go back on the plaquenil to see if that doesn't help the mucus membrane stuff. A few years back, I had to get numerous root canals. That was fun, not to mention very expensive!!!!!!!!!!!! Reminds me, I have to make a dental appt. Again, thanks for responding, I appreciate it. I wish you good luck with your sjogren's!!!