Salagen?

Has anyone taken this? I was started on this last week and it makes me feel so sick. It only lasts for about two hours, but I have to take it three times a day. I feel like I am going to get sick, and my head feels weird (and I see flashes of light like I see pre-migraine, but there is no migraine). I don't know if there are alternatives to this stuff.

My doctor said that my mouth is way too dry and that my skin looks too dry too (it looks weird. I don't know how to describe it). This increases the saliva for the time period that I am sick, but then stops. I am not sure how I feel about it. If the symptoms go away after a time, I can deal with them, but not every day. If you have taken this, how do you deal? I have discovered that having something in my stomach helps a little, but only the nausea. The other symptoms remain.

Thanks Chartreux. :) I will call and see what they can do. I did call three days in and he (not my normal dr) reminded me that there are side effects, but they should go away..... At least I think that is what he said. I really don't care for him much (but then again, I have been depressed lately, and sometimes, my perception of people is altered when I am that way). Anyway, he also suggested that I eat when taking it, but that has not always worked. Actually, I just took it now and I a beginning to feel sick - it lasts about 1/2 hour (the intense nausea part) then I feel better. I do have Zofran, but I only 5 pills left, so I am trying to hold off on taking them for when I really need them (like when I am out in public). It was my GI doctor that prescribed it, but she retired in June, so I have to convince whomever that I need that and not Phenegnren (sp).

I do have biotin spray, but I did not know that it also comes in a mouthwash. I will ask them about that. What other med besides this nasty one is out? The Dr said that it should work right away (as in the first couple days) and it seems to work (a little too well, but the excess salvation is a temp side effect) for the first hour or so, but then I feel the same as always. My regular doctor (Rheumatology - they were both in the room with me at the time) was the one who prescribed this. I think he did because he said that my skin was way too dry as well, and because it should help my dry eyes (my eye Dr is considering Restasis(sp?)). I am not sure that what he was looking at was dry skin or something else (I have tried to show it to Drs for a couple years, but they ignore it or dismiss it (even the dermatologists)), but he is the one in the office that knows Sjogren's the best, so I am sure he has seen it before.

Post Edited (SoSt9) : 8/5/2014 8:38:19 AM (GMT-6)

Well, they took it off and added cevimeline. No more nausea (for the most part), but I am still having the intestinal issues. Strange thing is, usually the side effects happen when the gap I take it is more about 8 hours apart. I am beginning to think they should increase my dose - (ironically) so I don't get sick. LOL.

Also, they drive me crazy. At first, they did not have an idea what to diagnose me with. At first, they were vague in telling my I had hypermobility and UCTD. Now they say Sjogrens strictly on ANA and observation. I am being given some medication to try and rule out Mineres (so).

Has anyone here had a combination of Sjogrens and Mineres? Right now, he says it is Endolymphatic Hydrops and is treating me with a "water pill." Wouldn't taking a pill to dry me out interfere with a pill designed for me to become moist, symptom wise? I know it is a dr question, but until Monday, I wanted opinions, please.