Feet Tingling

Hi Lynnwood. My hubby recently brought home a medical publication regarding the lack of communication between physicians. The conclusion was that physicians don't communicate which leaves the patient with the sometimes daunting task of ensuring each doc knows what the other is doing. The article further said patients are sick and often work hard to maintain health yet are given tasks such as transferring records, making appointments for a doc that the initial doc recommends, etc.

All of this may seem off topic, but I wonder if your rheumy even followed up with you regarding your feet. As you know, recently my different docs had me make appointments with other docs and it was up to me to let them know what the other was saying. Thank God hubby came with me to all appts and was able to relate the findings.

Well, at least what you have with your feet is interesting and you are making progress...however slow it is. Love Ya, Butterflake

I got curious myself about symptoms and which type of nerves are affected. Here is a pretty good article. I know that people with diabetes get both pain, numbness and tingling in their feet. I believe that's a small fiber neuropathy. I think neurologists are good at this but other docs, not so much. They might recognize diabetic nerve pain b/c they see it so much.

/www.ncbi.nlm.nih.gov/pmc/articles/PMC3086960/

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Post Edited By Moderator (Lynnwood) : 11/1/2016 1:22:34 PM (GMT-6)

It seems to me they are way behind on treatments for Sjogrens when compared to other auto immune diseases like RA. If they could target the problem in our immune system, maybe our saliva glands would start working again. Some people like alpha lipoic acid supplement for neuropathy.

It's a shame you have to be a lot worse to get tests done. That has to be frustrating. I take it they ruled out other causes for your neuropathy like diabetes, smoking, medications, etc....?