How is everyone?

I know I have been missing in action as of late, and I know I am somewhat new to the forums anyway, but figured I would update at least somewhat.

It seems like this family keeps getting more and more bad news. There has been a lot on my plate lately and I haven't had much time to take time for me.

Anyway how is everyone doing?

Hi UA,

Thanks for the response. Molly is doing wonderful. Absolutely great.

We did get a bit of good news lately, Our daughter who has been on puffers since she was 3 1/2 years old with cough variant asthma, has had good breathing tests for the past two years, and as of right now is considered asthma free. I am beyond happy. Hoping and praying that it never returns.

Her other issue that she has been having may finally get addressed as she gets to see the psychiatrist on the 10th of April, so from there hopefully they will rule out some things and get to the bottom of why she is having headaches on a near daily basis and rule out some things that may be causing her to see things.

I had parent teacher interviews last week and our youngest son is not doing so well. He is in grade 1 and having issues with following instructions, paying attention to the speaker, he is all over the place cannot stay still and doing the bare minimums when it comes to work. He is way below reading level. There is a pretty good possibility that he has some sort of learning disorder or ADD/ADHD so now they have to put the wheels in motion to figure out if there is a problem instead of waiting a few years and wishing we had known sooner.

As for me, And this is a hard one that I have not told many people, a couple of really close friends and my husband, I have been referred to the neurologist about my syringomyelia, but more so because my doctor things I may have Multiple sclerosis. A lot of the symptoms I am having is pointing in that direction. But with that being said some of the symptoms of SM are the same as the symptoms of MS.

I am having issues with balance big time, I fell down the stairs 2 times a few weeks ago, within days of each other. Then a few days after that I lost balance when I went to the bathroom and fell down and hit my head on the narrow strip of the bathroom door.

So my dr wants an mri of my head to check for MS. I guess in doing so we will also find out if I have Chiari Malformation as well, which as of right now I do not know if I do. Many people with SM have it, but I only has my mri of my t-spine and L-spine so we do not know if I do.

Anyway thats my update......

Thanks UA.

We have had issues with my son since before he was 1. There was not one day that went over my head from the time he turned one till he was two that I did not cry because of his behavior and issues we were having with him. We thought he was autistic or something. So its been a battle.

When he went to school he started doing a lot better in many ways, but these issues remain. He is very difficult to teach.

I have more issues then the balance, but the balance issue was the thing that made me go back to the dr. Initially I just wanted to know if the Syringomyelia was causing the balance issue....I guess we will find out soon.