PET Scan results

Thank you all for the hand holding and prayers Thursday thru my PET scan. Next time if I don't remeber tell me that my arms don't go well over my head. I put them there and had quite a bit of pain in my shoulders and they wouldn't let me move them down because the test had already started. Rigged up some pillows to rest them on to take the pressure off the shoulders. I have made a mental note but I'm sure next time I'll put them right back up there. I got my results today. They made me wait to see the doctor before doing my treatment. Got a little anxious wondering if that meant they weren't going to do treatment but did get the regular after. The results were what they already pretty much new. Diffuse skeletal matastases. present at the angle of the right mandible, rt clavicle/shoulder, left shoulder/scapula, rt glenohumeral joint, rt scapula, several ribs, thoracolumbar spine, and pelvis. The liver and spleen appear enlarged and heterogeneous, along with prominent streak artifacting. the reminder of the study is normal. The doctor wasn't sure what the jargon with the spleen and liver meant but thought it was a postive that it didn't specifically say metastases. If anyone knows what it means would appreciate any comment. Thank you all again for being with me via PCE. I see my stem cell doctor tomorrow so if anyone is free...... Love you all, Cyndy

Dear Tammy, I was stage 4 when I was diagnosis, quack doctor, i did the CAF and Taxol and radiation then had a stem cell transplant then made it a 1 1/2 years before reoccurance Aug of 2000, ttried a hormanal treatment that I didn't response too and started chemo Feb 2001 and have had it every week since then, did hercepetin and taxol for 18 months, then did herceptin only for alittle over 2 years and in November things seemed to be headed south so added Navelbene to the Herceptin and now they are wondering if it's not working because my tumor marker is going up so it a wait a see. I will know more after the transplant doctor sees me tomorrow, he seems to determine what treatment in done and then I get it here back home. Thanks for all yoou prayers. Hugs Cyndy

Cyndy,

I just wanted to let you know that you will be in my thoughts and prayers. I wish you luck with the transplant doctor, and I hope another stem cell transplant will be very successful. Hang in there!

L&H,
Laure'

Cyndy,

Sending you some {{{{{{{{{HUGS}}}}}}}}}}}. Please know that I am thinking of you and sending some prayers.

God Bless,
Debbie
^j^ ^j^ ^j^

I'm sending good thoughts and prayers your way. Darn!!! Please keep us posted and let us know how treatment progresses.

L&H,
Rita

Cyndy: I am a little late answering your post but hoping that your appt with your stem cell dr went well. I have been on the weekly herceptin and Navelbene since Nov, 2003. I had spots on my liver when I was redignosed. According to the last PET scan (Feb) my liver was clear. I have another PET scan scheduled for later this month. My tumor tag results were all over the charts for awhile also. I get them checked every 4 weeks when I see my onco. So, hang in there. Hopefully, your counts will start to drop soon. I have been on Zometa (as the treatment was on 15 mins compared to 90 for another bone strengthener). My onco told me last week that it has been found that the Zometa is causing jaw tissue to die and teeth to fall out. If you are taking this med, please check with your onco. How is your pain level? Are you taking meds to help with it? We are all here for you. Whatever you need.

Hugs...Deb