Please make this nausea go away!!!!

I am still pretty nauseous and I don't know how much more I can take.  Saw my onc yesterday and both me and my DH left feeling a little discouraged.  We are starting to feel that he is grasping at straws because he thinks the nausea should be much better or gone.  I feel like people are starting to think I'm faking it!  He had no rememdies except more drugs and more tests.  I have to go in at 7AM Monday for an endoscopy of my stomach and then Tuesday for a CT of my chest, abdomen, and pelvis (which means drinking that stuff which will no doubt make me puke).  If anything significant is found then I will probably have to start chemo immediately along with rads.  Just don't know if I can do it.  I don't feel like I have anything to look forward to anymore except more of the same: treatment, illness, puking, fatigue.  And my DH gets mad because all I want to do is lay around and "not try".  I can't help it.  I have no motivation or inspiration left in me.  I just want it to be over.

Carla, please tell your DH to come here so we can kick him in the butt. Tell him you are SICK and he needs to let you rest or lay around do whatever you feel up to doing. It seems like his expectations all along have been unrealistic, with you working full time and then coming home to clean up after your DH and kids, cook, do laundry, etc.

I can tell how frustrated you are, and feel so badly for you. Perhaps ask about the bracelets for nausea? I am not sure the details, but they use them for motion sickness and I think Chris used them to help her with chemo. You might also consider a 2nd opinion after you get your test results back from the CT.

If only we could get you feeling better for a couple days, I think you would have a renewed boost of morale and will to fight. I hope it comes to you soon.

L&H,
Lori

Hi Carla,

I'm so sorry you're still going through this. It really sucks big-time. I'm praying that they can do something for you to alleviate the nausea. Hang in there, girl. I'm praying for you.

L&H,

Rita

Oh God Carla- where to begin!

Do you think your DH would have lunch with me and Lori? I think we can get his attitude adjusted. You know ME and how I get that is why I think Lori should come- she could be the voice of reason and keep the police away, etc....but I think he might grab a glove and get in the game after we are done!

Now here is some medical advice from someone who is NOT a doctor and is just making a few suggestions so you can ask your own REAL doc's opinion!

I heard there is a new anti-nausea med that is an injection called Aloxi. My friend Kathy had it and it REALLY helped her. She had some heavy duty chemo for mets to her pancreas, liver and esophogus. So you might ask about that.

As far as the endo- you have had upper GI problems for a while now. I wouldn't be surprised if they found major irritation there. Maybe once they do find the cause they can actually TREAT you! Are they going to check for H.Pylori virus too? That causes most ulcers and they have a specific treatment for that.

I don't know if you remember, but I have had a problem since chemo with something called meunier's disease and it causes severe vertigo and/or severe nausea. I got it from the chemo. The only thing that helped was lowering my sodium intake and taking something called Diamox. It is a (sp?) vasodiolator that works in the brain to help relieve pressure on the nerve that causes vertigo and Nausea - vas vagle- or something like that. It is also a diuretic and it clears up too much water retention even in the skull which can cause the pressure which can then cause the nausea. It has no side effects and it worked wonders. I still take it. I have to.

So maybe you can approach your doc and ask him about the Aloxi for nausea,  the H. Pylori as a cause for your GI pain and other symptoms, and perhaps taking Diamox short term to relieve the pressure.

PLEASE DO NOT GIVE UP.

I know you Carla. You are in a bad place right now and you have EVERY RIGHT TO BE! But you are the comeback kid if there ever was one!!!

And the spot on your brain is solitary and small and CAN AND WILL BE ZAPPED.

If ANYONE thinks or says you are "faking it" then perhaps Jo-Ann and I need to have lunch with THEM!

HANG ON. You were given a boatload of bad news and you feel like crap. BUT there ARE things that can make you feel better and you will get them. And you WILL feel better again. YOU WILL.

And hell yeah! GET that second opinion!!! 

I am praying for you and routing for you and I KNOW you will make it through this. YOU WILL.

Love,

Jessie

Jess...lol...you must have me confused with someone who never speaks up! If anyone speaks their mind, it is me, and sometimes to a fault. When I was a senior in high school, I had an English teacher who favored the genius males in the class over the females, who were just above average. I often would be the one to raise my hand and ask a question if I did not understand.

One day, when I acutally did 'get it', my teacher interrupted the discussion to ask me specifically if I understood. I was mortified. She then asked if I knew why she called on me, and of course I said "no". She told us that the reason was because "chances are, if Lori did not understand, several others did not understand too, and Lori was the only one who would ask questions."

Speaking my mind is not a problem, so don't necessarily count on me to be the voice of reason!

L&H,
Lori