confused

mestar

New Member

Joined : Sep 2010

Posts : 5

Posted 10/25/2010 6:45 PM (GMT 0)

I have started radiation and have 10 done. I posted on here before that during the mapping process the ct scan showed some spots that looked like there might be some bone involvement (I have been treating for breast cancer). The bone scan was negative. The pet scan showed some spots but they did not react to the nuclear glucose. The doctor said even though it is considered to be a negative test and nothing else showed that she still believes it is bone mets.??? She had someone who does biopsies look at it and they told her the spots were too small to needle biopsy. I am in the process of going to another doctor. I guess my question is has anyone ever had a doctor do this to them? She makes me a nervous wreck. I feel fine. I have no pain and I would think she would be happy about that and instead of being relieved that the tests really didn't show anything it is like she is assuming the worst.

barkyboys

Veteran Member

Joined : Jul 2003

Posts : 1564

Posted 10/28/2010 9:00 PM (GMT 0)

I would hope that she is just being very careful. A bone scan will show "chunks" of cancer, but they aren't great for picking up tiny spots. And if these spots are too small for a biopsy, they might be too small to show on a bone scan. My oncologist has always erred on the side of caution and done follow-up tests, but she has never told me she thought I had mets when I didn't. I did have a family doctor tell me I had mets, based on a bone scan, when I didn't, but I had gone to get follow-up tests from her since my onc was out of the country for a few days. I was pretty furious with that doctor, especially when my onc got back, ordered the follow-ups, and the spots were not mets.

I think going to another doctor for a second opinion is the right thing for you to do. What were the actual findings on the PET? Did you get a copy of the report?

Hugs...
BEV

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