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Posted 9/26/2006 5:40 AM (GMT 0)

Hello there.

  I had a lumpectomy a month ago and start radiation therepy tomorrow, followed by tamoxifin (sp?)

 

I have had cfids  for almost 15 years and this is my second round with cancer, the last one being head and neck 6 years ago.  My immune system is pretty messed up, and I'm worried about how much more tired I will be after or with , rather, radiation.  How are all of you doing with it?  Hope to hear from you.  I'm already worn out here in Bend, Oregon.

Posted 9/26/2006 6:33 AM (GMT 0)
Welcome, Vaultene! We are neighbors, I live in Kennewick, WA. I am sorry to hear you are having so much going on. I did not have to have radiation, but many here did, and I am sure you will hear from some of them. I just wanted to welcome you, and say stay with us. This is a great bunch of women, and they are all ready to help all they can. Let us know how things are going. Take care.
HUGS, Gail
Posted 9/26/2006 12:14 PM (GMT 0)
Hi Vaultene and welcome. It seems as though you have already been through a lot. I hope we can help you with your current journey. I saw you had two posts and the one had no subject and was missing the text, so I deleted it thinking of space on the board. Now I realize you were trying to put a line on the bottom of your post. You can still do that by going to the post and clicking on the pencil symbol on the right hand side. Then you can edit your own posts. If you make a mistake on a future post and want to erase and start over, the X will delete it for you. Don't delete the one above though, because by deleting the first post you delete the whole thread. Thanks for posting, hope we can help. Did you check out our roll call post? It is long but there are some pictures of us in there, too. Hugs MK
Posted 9/26/2006 6:17 PM (GMT 0)
Vaultene, welcome to the board. I did not have rads but many here did. I am glad you found us as the women here are a great support and help. Hope you stay with us.

Peace,

Candy
Posted 9/27/2006 2:37 AM (GMT 0)
Hi and welcome.  We are here for you during this difficult journey.  I had 2 months of rads (with one week off in the middle for good behavior - LOL) and didn't find it to be tiring at all.  I began it a month and 1/2 after ending chemo, so was just getting to feel better.  The most tiring part was driving to the rads onc office every day.  Just take care of yourself and if you are tired, by all means - REST!!!  I'm sure you will get many more responses from others here who have had rads.  Hang in there!
Posted 9/30/2006 4:07 PM (GMT 0)

Hi and welcome to the site,

I had rads following chemo, 7 years ago.  At the time I was in a trial to have rads twice a day, rather than the normal once a day.   It was not a good trial, and I understand they do not do it any longer.

Your concern about being tired during rads - I was.  I would have a treatment in the am, go back to my room (I was 125 miles from home so stayed in a motel) and sleep till time for my afternoon treatment.  Then force myself to go to the mall, or someplace for a while.  I was usually in bed by 730pm though.  My husband was staying with me and I finally told him he should go home cause all I was going to do was sleep.  LOL

I also had a bad reaction to radiation in that I burned.  I have very light skin and I got 3rd degree burns on my collar bone and under my arm, it also burned my esophagus.  I am told that I was an extreme case, which is consoling. LOL

Good luck, I know they have come a long way in 7 years and I am sure you will do fine.

God Bless.

Kitty

Posted 9/30/2006 4:52 PM (GMT 0)
Hi, and welcome to the board from Minnesota. Sorry you are facing cancer treatments again. Life is just not very fair sometimes. Radiation will make you pretty tired. Plan on naps whenever you can. Let others take care of you. Rely on take out, deli or simple meals as often as you can. It's been more than 10 years for me. I wish you well. As you probably already realize, there is a wealth of information and experience here. Hugs, Lauri

Posted 10/1/2006 2:00 AM (GMT 0)

Hi and welcome...

One thing that I always like to stress is that if you talk to 20 people you will find about 15 or more different answers. I was very lucky with rads, in that my skin turned pink and that was it. I had no burning, no blistering and no problems. Today you cannot see any difference, my rads were done in 2000. THe tissue is still tender, most times I do not notice it unless I get a tight hug or carry something that presses on my breast. As for fatigue, I do not recall any noticeable change. I was 31, working full time, with no kids and no one else to take care of. My job was a desk job...if I had a physical job or kids to take care, my story may have been different.

Definitely listen to your body in terms of napping or resting, be sure to pace yourself. Hang in there and let us know how it goes!

Lori

Posted 10/3/2006 11:20 AM (GMT 0)
Hi Vaultene..Welcome,

I agree with Lori..everyones experience is different. I had Chemo before my radiation and about half way thru the 36 radiation
I was exhausted. I did continue working full time during the chemo
and radiation. I had some blistering and burning...but for the most
part the radiation was okay.

Hope all goes well. Please keep us posted...

Cathi
Posted 10/4/2006 4:35 PM (GMT 0)
Hi Valtene

Wlcome to our group. I understand all that you are going thru, I was diagnosed just over a year ago. I had chemo therapy and then radiation so my experience with radiation was very easy. I got a little red but did not notice being tired like some people do.

I have sarcoidosis which is an autoimune disease so I understand about your immune system being low. I catch everything now but I used to be very healthy.

Take care of yourself, get lots of sleep take a small walk everyday and you will feel better.

L&H
Bernadette

PS

Im your neighbor too I live in the Seattle area.

Posted 10/4/2006 6:06 PM (GMT 0)
Ms PlantFood

I don't want to sound rude but I have not read anything about you having breast cancer, all I have seen is you trying to get people to take plant foods. This site is for people who have breast cancer and is not a place to sell items. Can you tell us more about your history??

Bernadette
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