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Posted 6/6/2008 11:18 PM (GMT 0)
does anyone else find that when you are feeling rough you get a weird feeling like you're not ......... its difficult to discribe like you're floating above yourself (like you're not totally in control of what you're doing) its such a strange feeling but putting it into words is difficult. im so used to the other symptoms now that this one is doing my head in. I cant think it through which i think is the problem. as long as my head is ok i can deal with the rest.

Anyone ever felt this?????

Its really disturbing at times, anyone shed light on it? Thanks take care

tree

Posted 6/7/2008 12:58 AM (GMT 0)
Hi tree, I think I experience something similar. I don't necessarily feel like I'm not in control of what I'm doing, but I do have times where I feel like I'm "removed" from myself, if that makes any sense. It's this weird feeling I get and it's like I'm on the outside, removed from myself. This seems different than the brain fog that I have with CFS and lupus. I can't really help shed any light on this, but I just wanted to let you know that I experience something kind of similar. I'm just curious how long you have had CFS and if you have found anything that is helping. I'm asking, because there just doesn't seem to be much in the way of treatment for CFS and a lot of us are just left floundering and having to just deal with all the symptoms.
Posted 6/7/2008 1:07 AM (GMT 0)
I've had it for 7 years hippi - have JUST got a decent doc so am hoping to get some answers soon. the g.p who diagnosed me didn'tb even believ in it ( sorry for spelling) brain fog! hehe. The only thing ive found helped was reflexology (nothing to do with docs) am reflexologist.
Am just sooooo glad i'm not alone in it - such a weird feeling (but very hard to discribe)
You take care hippimom
many thanks
tree
Posted 6/21/2008 1:30 AM (GMT 0)
This is my first response....bear with me.  I think I know what you are describing.  It is very hard to put into words accurately.  I feel disconnected - and uncomfortable in my body - which isn't about pain as much as a feeling of being "altered" physically and mentally.  It can be alarming and rather taxing when you are in a social situation.  For me, I think it is often a precursor to flare symptoms coming on.   I think it rather "feels" like what an alarm system "sounds" like when it's loud, and persistant and you can't get it shut off.  I tend to think it has to do with stress and CNS problems.  I'm glad you asked the question.....I have wondered many times if others experience anything similar that is connected to the CFS.  I feel less weird already! :-)
Posted 6/21/2008 10:42 PM (GMT 0)

Glad to hear it too. am pleased am not alone. it really is too difficult to try and describe it to others including the doctors. you take good care of yourself.

tree

Posted 6/21/2008 10:51 PM (GMT 0)
thanks, tree - you do the same.
lucy
Posted 6/28/2008 10:24 PM (GMT 0)
Dear All,

If your electrically sensitive then its more than likely, ill health will make you more sensitive to the environment. Its like the chicken and the egg, which came first.
What I think your experancing is an unearthing of spirit/aura expanding where its trying to get rid of chemical/
electropollution..

Have a look round you, do you live near pylons or factories?
Have you faulty wiring in the house or where you work?
Posted 7/1/2008 6:48 PM (GMT 0)
I've had that out-of-body feeling many times, but never standing up. You experience it while up and mobile?
Posted 7/4/2008 11:25 PM (GMT 0)
i do get it both standing and sitting - moreso usually standing but i find it more worrying when sitting as there is nothing i can do to abate it. thanks for replying, did think i was alone in this as its not something thst i was aware of in others

 take good care tree cool

Posted 7/13/2008 2:30 PM (GMT 0)
Yes!
This was a few months back. I was grocery shopping with out my 4 children and I was just standing in the isle feeling like I was in "another world". I couldnt think straight and I felt real strange. Like something was dulling all my senses at once. Almost like a time warp feeling. I couldn't even think of what I wanted to shop for it was so bad. I finally came out of it and continued on. I think it was stress related.
Hi everyone.. I'm not sure if I have fibro or CFS. The latest diagnosis from a Dr. was CFS since I didn't have enough pressure points of pain to add up to fibro. I'm on vitB12 shots for 2 weeks and Melatonin for insomnia.
So I will be around the boards here or in Fibro?? don't know which one
Carolyn
Posted 7/13/2008 5:55 PM (GMT 0)

In thinking about this....it makes me wonder about CNS issues.  Neurontin is used for Fibro pain, and is an anti-seizure drug as well.  Does anyone think it's possible that just like some people get occular migraines (visual symptoms, but no headache) that these episodes are similar to a "pre-seizure" feeling.....without the actual seizure following it?  I don't know that much about seizure conditions - but I know there can be triggers.....and for me flourescent tube lighting that is buzzing or blinking (ballast going out) has triggered occular migraines, but not without feeling "the weirdness" first.   Just a thought. 

Posted 7/13/2008 9:52 PM (GMT 0)

Thank you so much for your responses - it really helps to hear im not alone and others are feeling it (although i would never have wished this on anybody.). I feel for you and in the same sense - i'm sorry to hear it.

I've had epilepsy in the past and it does put me in the mind of the feeling pre - fit. Although any correlation between the two as far as i know is coincidental.

You all take care and i may see you in chat. Tree

Posted 7/14/2008 2:30 AM (GMT 0)
On the same subject.. I have had aura migraines before. Lately I have had a lot of "spacy-ness" where I just kind of stare. I don't know if it's related. I did have an MRI of my brain and they found several spots. A neurologist said I didn't have MS but that the spots may have been from the aura migraines. Or the other way around. Interesting subject.
Carolyn
Posted 9/25/2010 8:45 PM (GMT 0)

Hi everyone! I had a seizure just about 3 months ago. We are still waiting to go to the "brain doctor" (don't know how to spell), so I can be diagnosed with epilesy. I have been having this feeling a lot lately. It feels like I have no control and that my mind is not connected to my body. I can tell what's going on, but I have no control. Please help! confused

Posted 4/11/2011 5:15 AM (GMT 0)
Hi,
I know this is an old message (my wife has CFS, been reading old messages), but what the OP was describing is called "depersonalization" disorder.
Posted 2/7/2015 9:17 PM (GMT 0)
I'm so glad to stumble onto this topic. I"ve been trying to explain this symptom to my wife for a while now. The common denominator is how hard it is to explain to someone this feeling. I seem to get bronchitis about once a year and the out of body feeling is the major symptom I have. Its weird, strange, and very difficult to manage. I'm just glad to see i'm not the only one headed to the asylum (lol).
Posted 2/9/2015 12:23 AM (GMT 0)
It is called Depersonalization (or depersonalisation) is an anomaly of self-awareness. It consists of a feeling of watching oneself act, while having no control over a situation. Subjects feel they have changed, and the world has become vague, dreamlike, less real, or lacking in significance. It can be a disturbing experience, since many feel that, indeed, they are living in a dream.
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