Has anyone been checked for Dysautonomia (POTS syndrome)

Have any of you been checked for this condition?

Have the doctors ever checked your B/P while standing ?

Or heart rate while standing?

This condition is linked with CFS and it has been a long battle for me searching for my possible illness. And many many symptoms, I went a whole year of being told I had depression, all in my head, and given waste-basket DX's . I have had almost every test possible and have spent thousands of dollars in insurance luckily...and not once did one doctor do these basic vital checks when standing.

If you have a heart rate over 100 when standing it is not normal (without exertion)

I suggest you all have your trusting doctor do this simple heart rate check and do the orthostatic  blood pressure check to assure you just have CFS.

Thanks Mae

i do, or did, it turned out after years of being told that i had CFIDS that i was diagnosed with Neurocardio-genic Syncopy because i had really low blood pressure and it went wonky when i'd stand up. It was only by a wierd conversation with my old pediatrition that i was pointed in the direction of the cardiologist who diagnosed me with tilt-table test. an inexpensive beta-blocker changed my life.

I still struggle with getting sick easily and feeling tired and dizzy---but nowhere near the level as i did before i started the medication. (Pindolol and then Inderol when a few years later i started getting migranes, so they switched it becuase the inderol can help both problems....


What is so interesting is that years and years ealier i had a pediatricion tell me i had disautonomia besed on my purple hands, arms and feet----they have a weird mottled look. I've discovered in the last while a link with all of these different things and tthat they lead to a diagnoses of CFS sometimes----Still wondering if i've got it all straightned out or if there is more to do to try to control the problem when i feel worn down and wiped without reason.......