Posted 7/15/2015 10:14 PM (GMT 0)
I will be, 64 next month. 6 years ago I started having a sore throat that wouldn't go away. I didn't go to my doctor until months later. I was moving from where I was living to another state, so, my insurance was going to change. I would no longer have my doctor I had, had for, 25 years. I went to see him the day before I moved. It concerned him so much how bad my throat looked and how long It had been hurting, he wanted me to stay long enough to be tested for, cancer. My saliva glands were also swelling up, very large for several months. It would come and go. But, it wasn't until the day I moved that getting sick set in. Before that, my throat hurt and my glands would swell up pretty bad, but, I didn't feel sick. So, July 17th, 2010, the, horror started. I had every test known to man. ENT, did the scope. No cancer. MRI's, CTS's, because I was so sick, everything hurt, etc. they did, colonoscopy's, gallbladder, all of it. Nothing. Till one day I couldn't take it anymore, I was so sick. I hadn't slept in almost 2 months. The pain, the sick...so, my daughter told me there was a clinic up the street and she had seen a, PA there, that was very nice. ( I won't even talk about how rude the doctors had been. I still can't get over that) Anyway, I went to this, little piece of heaven, PA, named, Anna. I told her all that I just posted. She took a couple of blood tests. I waited for several days and hadn't heard anything. So, I figured, they too came back negative. But, it was, 5 days later her nurse called. Low and behold, I had, mono. My B12 and D were extremely low. She said just the, B12 and D being so low could cause you to be so tired, but, mono on top of it..So, now it is, six years later. I know there is nothing they can do to get rid of it. Time went by, and nothing got better. Anna, treated the symptoms. Its all she could do. She gave me sleep meds and pain meds, B12 and D3. I had all those symptoms I've seen others talk about. The extreme tired. You're so tired, something you've never felt. But can't sleep. So sick I couldn't eat, but I was gaining weight. Memory was shot, confusion, blurred vision on and off. My muscles hurt so bad I could lift anything and took everything I had to get, upstairs. The harder I tried to function, the sicker I got. She told me to quit doing that. To rest. Most important thing at that point was, rest. But, now this six years later. My muscles don't hurt, I"m not sick. I can't lose weight as hard as I try. I still get blurry vision, I still have trouble with, memory, trying to find words, etc. Finally, she put me on, amphetemines. The first, prescription was too strong. So, lower dose. I still take sleep meds. and I still take, amphetemines. She called the, CDC when I was still testing positive and they said, " after six months and the tests haven't changed and symptoms haven't changed...they call it, Chronic Fatigue. That was after 6 months of the original diagnoses. Then I had a flare up a few months back, the tired and sleepy was so, extreme. My body hurt everywhere, on and on. So, she sent me to the, CDC. ( she did the blood work) she said the numbers were way too high. The CDC said, yes, you've had, EBS and mono...but at this point, they said, " You have an active virus infection, but, there is no way to know exactly what it is. It's either, Chronic Fatigue or Fibromyalgia. Because of the body pain, she's going with, Fibromyalgia. There is no conclusive test for either. Just symptoms. So, what I am doing besides taking my, sleep meds and amphetemine...I'm doing liver cleanse, I've cut out, milk products, wheat, and very little meat and no sugar at all. I take a cell cleanse detox. What I'm trying do is, clean as much as built up toxins out. I eat all organic, i use, essential oils, take my raw, D3 and B12, and Magnesium/calcium. 90% of our meals are, raw vegetables and fruit. small amounts of meat. eggs and bacon. no nitrate bacon. only carbs we get is from the salad. I'm starting to feel better. and we have fine tuned my meds. Just the exact amount for now, for sleep, energy, and very little pain. I also go to a, chiropractor once a week. As I feel better, i cut back on the pills. I went long enough in pain, no sleep, and NO, energy and way too tired. The stress from all of that, was enough to keep you sick. So, my stress is down a lot, I can participate in life, we even went and helped in a soup kitchen last week. I'm not back, 100% but I'm working towards it. The reason I detox, is, this site I go to on supplements said, when you have a life time of toxins from the air, your home, body products, things in food, etc...your body is full of toxins, if you don't detox it, you can take all the supplements you want and they won't work. Your body can't handle it. So, I'm trying to clean 60+ years of toxins out. I think the, mono happened in the first place because of stress...at that time, 6 years ago. I lost my mom, my sister, my husband was having major surgerys on his spine for over a year (5 surgery's) my daughter and her husband and kids moved here where we live now, which took my grandkids away, it just got too much so I can see how I was getting sicker and sicker...so, now, I've warned everyone. You want to give me grief, etc. don't even try. I gave so much to others, I had none left for me. So, for now. I make it about me. except for my grandkids...it will always be about them. That also happened after we moved here. I had just had a major surgery and was back up on my feet for a week, when my grandson was diagnosed with cancer, he was 12 at the time. We spent the next 9 months getting our baby well. If I took all the stress I have ever had in all my life and added it together, my dad dying, my mom dying my sister dying, and just life in general, wouldn't add up to the stress and horror that was. The love of my life, him and his brother is what kept me going to that point. They were the reason I needed to keep trying...and now, one was fighting for his life. But, by the grace of God, he is in remission, he has, 3 more years of tests before they will call him, cured. But, we all know that the, chemo and radiation will rear its ugly side affects some day...he will be, 16 in a few days and he makes my heart smile..him and his brother. God is good. So, that's my story. Nothing new for some of you. But, if I can be of any help answering questions, etc...I would be happy to. Thanks for letting me share. If anyone has any suggestions for me that might help in my quest to get well, please let me know. Babs