Epstein-Barr and Cytomegalo Virus (CMV) Simultaneously. Complications?

Hey there,

Any help would be appreciated as not getting alot of information from my doctor.  My CMV level is 16 but have no idea where that sits!?!  I am now being treated for  GERD as a result but seem to be getting worse. (nearly three months from initial diagnosis).  My Epstein barr was positive but now negative and have chronic fatigue syndrome as a result.

This is a really old forum, so I'm not sure if anyone will even read this but I, too, had CMV & Mono simultaneously in high school. I have no idea how I caught it because I was such a nerd in high school and certainly wasn't kissing anybody, haha. But anyway, I can remember waking up one day and just very suddenly feel AWFUL. My throat hurt worse than it ever had before everrrr. Which says something because I had chronic tonsillitis in middle school and had my tonsils and adenoids taken out. The only way I could describe it to my doctor was comparing the feeling to those performers who swallow fire or can swallow swords etc. I literally felt like my throat was on fire. Eating hurt so bad I cried at every meal for upwards of 2 or 3 weeks. I ended up losing a looott of weight because all I could stand to eat was soup. I was unbearably fatigued. I could sleep in until noon, having gone to bed at 10, and wake up feeling like i needed to sleep more. My glands were extremely swollen. My whole body hurt, so achey.

But anywayyss, you weren't asking about having them currently you were asking about long-term. I was diagnosed with CMV/mono, the combination from hell, when I was 16. I am 21 years old currently and I don't feel like I have ever fully gotten back on my feet. I am always tired. I have been treated with anti-depressants, because as you can imagine being tired and sick all the time interfered with my schooling and my relationships, as well as NuVigil/Provigil that is intended to boost energy. All my blood tests would come back clear and okay, with the exception of cmv and mono antibodies being present. I got so tired of the "you're faking it, lazy college kid" look from doctors. Finally when I was referred to an infectious disease specialist, Dr. Duncan, I was diagnosed with fibromyalgia (at 18!!?) and CFIDS (chronic fatigue immuno-deficiency syndrome) and was put on Lyrica for the body aches. I took Lyrica for a while but I ended up gaining about 25 pounds over the course of a couple of years without changing my life style at all. It also make me even more tired which interfered with normal life...again.

After a wholeee bunch of trial and error...I finally feel okay. Not as energetic as I was pre-mono/cmv, but that could just be growing up. I'm now on Savella (marketed for fibromyalgia but technically an antidepressant), Wellbutrin XL (anti-depressant), and trazodone (anti-anxiety) all those are for other issues but I've never felt bettter.

I'm very curious about what "alwayspray" said in the post dated 1/29/2012. She mentioned a Dr. by the name of Linn and a sugar free diet. I don't see how to contact alwayspray but am very interested in what she said.

I have a history of Lupus, earlier diagnosed as CFS, but now (18 yrs. later) I'm in the process of a workups to identify it as Sjogren's with complications of Dysautonomia and Small Fiber Neuropathy. Additionally, I've was told I had CMV last year and I also see my lab work from showing I was positive for EBV. Now, I'M HAVING SAME but WORSE symptoms so my doctor is doing blood work.

I feel like my neck and underarm lymph nodes are tender and enlarged, but the doctor doesn't feel swollen nodes. I've had this horrible exhaustion (worse than the usual terrible) and sore throat, lump-in-the-throat, and extreme weakness for about 5 weeks. I AM ALWAYS fatigued, but the recent 5 weeks have been much worse. I suspect she will call and say the CMV and EBV has flared again.

I am new to this forum.
My blood tests just came back positive for EBV and CMV!!!
Been man-down for close to 4 weeks now, this is terrible!!!
To answer your question NANNEN, yes the headaches do occur and they can be so severe that they cause nausea. I have three kids and need to work, this is such a set back.

Hello all i am 19 and was diagnosed with the EBV virus about 7 months ago
i was taken to hospital before diagnosis and they assumed i had meningitis so they did a lumbar puncture, it came back clear and they sent me home with NO diagnosis, then i was bed ridden for 3 days and taken back to hospital where an MRI was performed and they saw the lumbar puncture had caused a cerebrospinal fluid leak( CSF leak), CSF was coating my back fat so that night they did a blood patch to patch the leak in my spine, every since then i was having ongoing issues and they picked up i had EBV in my blood after they did the blood patch and that the EBV was the cause of why i was so sick that week i went in, they did more MRI's to reassure me that it was just the glandular fever and not another leak that was making me so dizzy, sick, panic attacks, pressure headaches etc...

here i am 7 months later and id love to say i have healed but i still suffer constantly from sever fatigue, muscular aches ( they feel like inflammation all over my body) i was tested for lyme which i do not have, lately i have visited a naturopath and they are going to start treating me soon however i also saw an ayurvedic doctor (almost a spiritual indian herb doctor) and he told me that glandular is almost like a threat is on the body, and i realised the only way i can cure myself is if i remove this threat, now im not going to sit here and say its the MIND because it is a PHYSICAL virus and is horrible and i do believe in medicine , i want to become a doctor and am actually studying pr-med, however im started to think once you can shift that mind frame you can almost boost your health alittle more, and this is by trying to reduce stress, i am an extremely stressed person and the less stress i have the better i have been feeling overall ( less cortisol in the body) i like everybody else WANT a cure but i just dont see a quick easy cure, i also should add my dad has had chronic fatigue for 7 years and i am so scared that will be me but lately i have done a couple things NOT all but some of the things the aryuvedic dr has told me which i think i should pass on to all of you, it had improved my energy and this is eating the biggets meals at breakfast and lunch im talking heaps of food in the day and then he told me to not have or barely have dinner ( i still do but) some days i have implemented this WOW its actually helping but its not just quantity its the food your consuming he said lots of vegetables extrmely nutritious food and i have slightly done that i buy bags of spinach now cook it with lemon and have that with an egg and salad and protein and its actually helping me BUT I SERIOUSLY think i found something that is helping ... ( i know im ranting but im just trying to briefly explain a few things that have helped a little) another thing is!!! DECAF GREEN TEA! i cant have caffeine because of the virus and its apparently not even good to have caffeine when you have it but i saw CAFFEINE free green tea the other day and have had 2-3 cups a day with a squeeze of fresh lemon juice ( soon i will put manuka honey in it too) and wow its actually helping .. before this it was just warm honey and lemon water i was having but now i actually do think this green tea is helping.. try it out it may be in my head but ive felt alot less anxious and stressed lately and also more energy and a calmer feeling! youve got nothing to lose i guess :)

I had about 6 weeks of almost feeling normal, but tired at night. I do the best when I try to eat all organic, and avoid processed sugar and white flour. Actually all processed foods are bad if you have EBV and cmv. During that time I also took 3 weeks of valtrex prior to feeling better. I tried to walk when I was feeling up to it but I was also very busy. I missed 3 weeks of vitamin b12 complex shots and I completely crashed last week and I am still feeling very exhausted! My dizziness is so bad sometimes that I don't feel safe driving, yet I try to push myself to get out of my house and try to be normal. Sometimes it makes be feel better and sometimes it makes me feel worse. My neice who is 16 is very sick with CFS and has been for around 2years. My other neice who is 19 has it as well.
My younger neice tried valcyte and it helped at first, then she became very depressed and suicidal. It is all so sad! There might be a new medication coming out soon! If I find out anymore information I will let let the forum know!

Hello everybody! I saw this forum couple of months before but all posts were very old ad i was very bad so i didn't write anything. I was diagnosed with CMV infection last September after 3 months felling very bad. I had seroconversion with very low fever but felt bad for one day. Couple of days before i felt bad lying in bad and couple of days after the seroconversion i felt extremely bad. At that time my baby was 11months and i was breastfeeding. I stopped breastfeeding immediately when i felt bad. The baby is ok. I experienced general malesia, bowel change for 3-4defecations/day, headaches, sore throat for 2months, pain in the lymph nodes, skin strips on the forearms near the palm from the inner side, tickling on my feet. The infection was in June. I started feeling better in September. Never had any intervention for the rectum nor anal sex. In July went in a private lab to test for all known viruses. Only CMV came positive with IgG 938iu/ml ECLIA and can you believe that all doctors said - Oh it is old infection. You have no problem at all. In September I ended up on Pathology. I was lucky the doctor was fantastic and saw my salivary glands and my symptoms and said to test for CMV. In September on ELISA technique the result was 100 with a limit 16-22. This showed that definitely it is a CMV infection. In December i started feeling rectal sensations that last till now. In February i started felling sensations in my breasts and pain in the axylary lymph nodes.The milk path is painful. In March on ultrasound nothing and on mamography nothing. In April o ultrasound cysts in one breast. Still pain in the breasts, sensations in the rectum. Reactivation in the throat many times. In the abdomen also. Painful abdomen with nothing on ultrasound. CONSTANTLY TIRED!!! Starting from April very bad head pain at one point. Twice i felt like something is leaking in my head. Quit my job since my colleagues thought that i don't want to work. My manager called me for a meeting to ask what is going on. He is a doctor and when i told him about the infection he said - oh everybody has this it can not be that infection to cause this problems....
And before this happened i never went to a doctor. Had a perfect pregnancy and perfect delivery with a healthy and beautiful child.
All of you know how it feels.
I am a medical person so i read a lot and this virus is found in 99% of brain tumors, in breast cancers and colon cancers. It is the worst thing ever. I read the post of BABYGIRL1022 she explained all my symptoms.
I ask her if she reads this to post how she feels and what happened with the breast lump. I kindly ask all of you that have any info for a doctor that understands this infection to write me. I plan to buy the drug and take it on my own. I can not deal with this pain and this virus anymore.
From immune busters only gele royal helped me. But only for couple of weeks to feel ok.
This virus is linked for breast cancer in parous women ( i have the articles and i can send you them if you want). With this constant pain in my breasts, this evidence of malignancies and a IgG levels that do not drop i think of mastectomy.
Any of you that have any info please post because not a lot of doctors know about this infections and we can help each other the most.
I ask you with cmv to post about the IgG levels? How fast did they drop? Mine were in March with ECLIA 835iu/ml which is nothing since a 10% +/- if you check in two laboratories is nothing.
I have a lot of info and from what i know is that you can never rid of the virus the only thing is to control it. Keep your immune system up with vitamins, good mood, prayers, love, holidays, nature and check check check your health. Do not miss pap smears, blood checks, mamographs, ultrasounds do all you can to protect yourself. I give my support to all to increase the knowledge for this virus and please feel free to write me if i can do anything.
Let's pray for all of us!
M.

Hi. I had EB 20 yrs ago. Then 5 yrs later I contracted CMV. The Mono that time was so severe that my liver swelled to 3x its normal size and I had to be put on OxyContin for 5 months. I never completely recovered. In fact, I haven't been able to work outside the home since. 6 yrs ago I was diagnosed with Fibromyalgia. My question is, can EB and CMV cause Fibromyalgia? Or is Fibromyalgia, in some cases a form of chronic Mono?

Two viruses sounds like a defect in your immune system. Look up http://primaryimmune.org/
Both EBV and CMV are related to herpes and are successfully treated
with Valcyte, valtrex etc. Google research on treatments to get dose and duration.Shots of IG(immunoglobulin) are ok but IV of IG are better. See if you qualify.

My daughter 14 years old been sick since end of August.2015 with EBV infection. She was in hospital for a week because she had an high fever and swollen lymph nodes and severe tonsillitis.

Happy that no prescription corticosteroids from our doctor.

When we home her energy level was 0, Only goes to bathroom, sleeps 16 hours. And her legs body was so week so EBV virus cause EncephaloMyelitis. EC

We got home started using homeopatic remedies, vitamins, minerals, virgin coconut oil, echinecia, dandelion roots fresh shake and juices, eleminating sugar and healthy food. What is really helped her high dose of Vit C drip 25000ccIV injection. beam-ray.

Planted wheat grace for juicing but makes my daughter vomiting, also offered beetroot juice doesnt like taste. Says togue bean sprouts juice is good after several trail she said it makes her more sick.

Her energy level index point is 2.5. Cant walk fast slow movement climping 10 stairs makes her tachycardia, feeling sick nauseting.

Checking today website www.treatmentcfs.com is very promising.By doctor MA.Lerner.
Will discuss about possible this info with our doctor for possible antiviral valacyclovir treatment for my daughter. Reading posts of people suffering from CFS due to EBV for long years is really depressing.

Today it seems her infection is coming back her eyes swollen and tonsillar crypt in her back wall of oral cavity.

Few days ago ordered GENE -EDEN online and waiting for delivery in few days. Says has no therapeutic effect but helps to boost immune system.

Mom

i have all of the above lyme, epstein , cmv and more it is just devastating. Did the tic give me all of this?

Cmv, ebv, herpes, shingles... are all complications of a suppressed immune system. Latent viruses like herpes and shingles that 85% if the population has are reactivated. Try having them all at once and bring bedridden for 18 months and counting. Osp-A poisoning (aka Lyme disease) is the culprit. Osp-A from a Borrelia infected tick acts as a fungal antigen on your B cells shutting them down. When your B cells are shut down you're not going to produce antibodies so any of your lab tests for certain conditions are not going to be accurate. They'll tell you its false positive if you do test positive at all. It's not autoimmune (allergy), it's the opposite, sub immune. Have your cd57 (for NK cells, not T cells) checked by Igenex labs. You'll see your immune system in the toilet. Without NK cells you have no first line of defense against viruses or tumorous cancers. No one cares. This country's NIH has no department of immunosuppression, only the opposite - allergy (autoimmune). This is an acquired immune deficiency. The AIDS (not from HIV) of our time. Ever hope to gain wellness and have someone figure out how to solve the problem of B cells shut down without reactivation of them creating a cytokine storm we likely wouldn't survive? Prosecute the LymeCryme first. TruthCures.org