CFS/Fibromyalgia Support Group

Hi Brian,

You're talking to one like yourself. CFS often goes with fibro so if you bring up both in the fibro forum you'll be surprised how many people has both problems. I agree, it's awful! The more tired you feel, the less you more and that only increases pain and back around again. For me I add PTSD to the mix and it sure adds another layer of misery. Just remember, while we're in this forum, don't walk up behind me unless I know you're there. I swing first and then look to see whose on the floor looking up at me. lol....None of these are funny to deal with but sometimes I have to laugh or I'll just sit and cry like I've been doing lately. Been doing a lot of cooking for others lately and I can barely stand the pain in my arms and legs at night.

I'm going to guess you have a decent doctor...yes? The reason I say that is two fold. One, I'm guess by your name you're a guy and buy my name I'm sure you've guessed I'm a gal. ;-) Chutz is just a nickname. The reason I'm guessing you have a good doctor is that my brother's doctor told him he can't have fibro. That's only for women! It's just sad there are so many uneducated people in the medical profession these days. I'm very lucky to have a wonderful doctor. He helps me deal with the pain in ways that are comfortable for me to handle.

I do think more of the CFS/Fibro folks hang out in the fibro forum. Not as many people have CFS by itself but we keep this forum open for those who just want to talk about that disease. Stay in touch because I, and many others do really care about you. You understand what we are going through just like you know what we live with every day. How could we not care? Feel free to email me if you like. Just click on my name and it will take you to where my email address is.

Warmly,
Chutz

Hi Brian, Chutz and others living with ME/CFS,
I’ve been struggling with this condition for over a year, after 6mths housebound the previous year from viral illness CMV (similar to EBV).
This is the first support forum I’m writing in, although I’ve read through a lot during the long suffering bedridden months of uncertainty about my health condition.
It’s nice to finally be connecting via writing myself. I miss the simplicity of friendship or acquaintances based on working alongside someone, or meeting somebody out somewhere. As someone who was previously very independent and free-spirited, I struggle so much with the trapped feeling of being house bound and the fear that comes with relying on the generosity of others (to help) instead of just making my own way/doing my own chores etc.
I hope this forum provides a bit of that understanding (of life with this condition) that family and friends just don’t seem to have when it comes to this ‘invisible’ condition.
Thanks for having me and hope to chat more in time.
EsJay