No Friends

For about 15 years on and off I've been very tired. Some days can barely get off the bed. Other days are better but I've never been able to stick with anything long be it sports or a course etc...

 

Some people thought I was a quitter. Far from it. I just can't do things at times that others can.

 

My thyroid was checked. Normal. My iron is low but I am not anaemic. I've been on Prednisone for Asthma my whole life pretty much.

 

The thing is, I now find myself 25 years old and I don't have anyone. The support group in my State closed down and I am seein a Chronic Fatigue Dr this friday to see if there are any support groups but...

 

I have to ask you guys. What do we do? What do we do for the lack of social contact and the lack of being out there?

 

How can we make a decent living?

 

Do you watch a lot of tv or read like me? Because you have nothing else? What do you do to give you energy if you have found a cure?

I don't know what to do. No Dr has ever said "You have chronic fatigue" they just um and ah and say "possibly" yet no-one wants to say it.

 

I can't believe how tired I am, How sore I am in the joints etc...I also suffer anxiety and some agoraphobia.

 

I just don't know what to do to deal with the loneliness and lack of being out there. How do you cope?

 

God Bless You...XXX+++

Hi BraveJedi,

I really understand what you're going through. I became "sick" when I was one month shy of turning 21. I did loose alot of friends with time because I just wasn't getting any better and couldn't go out with them. After a while people started thinking it was my way of blowing them off so slowly we drifted apart. I do still have some friends (the ones that did stick around are TRUE friends) and they are more understanding, they know I can't really go out so they come to see me and we just sit around in my living room and chat or play cards while watching TV. I too feel lonely, like no one understands me and now I find myself reluctant to make new friends because the same question always comes up: What do you do for a living?" I had to stop working because of the CFS and joint pains and headaches (the list goes on and on...) but I don't like to tell people that about me because not everyone knows what CFS is and it's effect on everyday life. And some people judge because to them I look fine but I'm tired and in pain. People also don't see me unless I'm having "a good day". After a few years of only having a book or the TV I took up some hobbies. My dad always tells me to keep my mind and hands active whenever I can so I started doing cross stitching. I find it relaxing and it does pass the time. I do crossword and sudoku puzzles too. I spend a bit of time in front of the computer too. On good days, weather permitting, I try to go for little walks and sometimes engage in small talk with neighbours but that's about it.

I guess we all have that same problem, but at least we know we're not alone.

Hello and welcome!!!

I'll be 25 on March 11th, and after suffering from chronic fatigue for 10-11 years... I finally got a definitive diagnosis today!!!

What's worked wonders for me, if you have the 'scrip coverage, is Provigil. I personally don't have any side effects, I get up in the morning, take one... and have the energy I need to get through the day without feeling jittery, or shaky, or jumpy or anything like that! It took me 10-11 years to find a doctor that was willing to listen and run all the necessary tests to actually make that diagnosis.

To pass time, I'm usually either on the computer, playing video games, or doing things like sudoku (I do those too!!) or cryptoquotes or cryptoquips... whatever they call them lol... to keep my mind sharp. I'll read too sometimes (although I rarely feel like it lol). And, I do go hang out with some good TRUE friends here and there... plus I'm the President of a Car club in our local area, so that definately keeps me busy and sociable! Not to mention, in August I'm starting my long trek to work on getting my Doctorate in Veterinary Medicine... so 6 or 7 years from now... I'll have it!! Ya see... I got to a point in my life where I finally decided that I was NOT... and that I REFUSED to let this fatigue, or the traumatic event I went through 4 1/2 years ago to run my life. When I set my mind on something, I'm quite ambitious, even though sometimes it's hard to get started. But I just set in my mind, that I'm going to do this, and I'm not letting anything hold me back from what I want in life, and what I want out of life... and the Provigil has helped me tremendously!

Having CFS can be lonely... but if the friends you have refuse or can't understand and stand by you, who needs them as friends anyway?? But if ya ever need someone to talk to, feel free to shoot me an email or IM or something!! Bless you, and I hope things get much better for you in the near future!!!

Hello. I really don't know what to tell you other than you will find people who are real, and will understand you. I think everyone here can relate to how you feel. I've lost more than I think I could ever get back and you just have to carry on. Stay positive and do everything you can to feel as good as you can. Talk to people here as much as you can, everyone is nice here. God bless