Need Advice on Coping...

This is going to sound strange but AFAIK, I do not have CFS. I have been dealing with neurological fatigue for the past four years but without the pain nor the light/sound sensitivity that is normally associated with ME/CFS. I have had MRIs and others scans and I have been told that it isn't MS. And I have been waiting now for over a year to see a neurologist without knowing if or when I will ever receive an appointment. I have also tried taking supplements like electrolytes and Tyrosine but they seemed to have no effect.

I am now asking for advice on how to deal with this debilitating fatigue. This is a life changing issue that I had never expected nor prepared for. Has anyone here found something that helps them cope? Any suggestions would be most sincerely appreciated. Many thanks...

straydog said...
This forum doesn't have much activity. The only thing I can think of off hand with your fatigue is to have lab work done to check your vitamin levels, B12 & vitamin d comes to mind.

It's frustrating to have issues & not being able to find answers or solutions.

Good luck.

Well, I understand that neurology is one of the least understood fields in medicine. There are apparently still doctors who do not even acknowledge neurological fatigue as a legitimate medical condition. I guess it is up to the sufferers themselves and Dr.Google to get a handle on it. Had I not experienced this issue for myself, I would not have believed how debilitating it actually is. I have had blood work done but my GP didn't mention anything of concern...
(And I have been taking vitamin D @1000 units daily for the past 2.5 years now)

Post Edited (ManBearPig*) : 6/28/2023 8:20:17 AM (GMT-8)

Hi!
CFS really is very common nowadays. It is so common and so debilitating for the patients, that in the past few years, in Europe, significant funds have been reserved for CFS research. Try to find EMEA (European ME Alliance) in the internet. Also, if you want a quicker running forum for CFS, try to find HealthUnlocked forums in UK, organized from NHS system. I am there in Atrial Fibrillation forum and am very satisfied - there are sometimes up to 20 contributions a day.
All the best!