HealingWell
Search Close Search
☰

Always tired... (My journey to cure my fatigue)

Support Forums
>
Chronic Fatigue Syndrome
✚ New Topic locked
1 2 3 4 56 7 8 9 10
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 9/2/2006 3:35 PM (GMT 0)
pasara,

   Thanks for the recommendation, unfortunately, I've already tried that.  I too thought it was mold.  It seems fitting at first.  However, I spent $500 and brought a Mold inspector through the house, and he didn't find much.  He found average amounts but nothing that could do this to me.  My house is actually in great shape, come to fine.  I also went and lived somewhere else for the time being (5 days) and didn't feel any better.  I also took a vacation 2 months ago for 8 days.  Didn't feel any better then either.  I think the stress has done enough to my body where vacation aren't going to help me anymore, not to mention all I could do is think about what's wrong with me the entire time :-(

It's sad.  If this was Mold, I would glady spend $8,000 to have this taken care of (remediated), then have to wait to find out what it is.  If anything, this whole thing has improved my patients :-)

Posted 9/2/2006 5:12 PM (GMT 0)
I thought I would report that I'm feeling pretty well today.  Not too tired, neck doesn't hurt that bad at all.  I'm getting ready for my acupuncture appt, I hope everyone has a great holiday weekend :-)
Posted 9/5/2006 10:27 AM (GMT 0)
Well, my saliva test is done, and is being mailed out today. All in all, it wasn't that bad. I found it very easy to fill up each tube, except for the bubbles, those were a pain. I'm sure it will take another 2 weeks before I hear something back. I had a great relaxing weekend, but now it's time to head back to work :-(

Take care all!
Posted 9/5/2006 8:27 PM (GMT 0)
Venting Time mad

      At what point in your life did things take a turn for the worst?  Is it fair that it did?  Do you find yourself asking... "What did I do, to deserve this?"  Well... this is me right now.

    You get one life.  That's it, just one.  Not only do you only get one, but you're only young once too.  I sit at my desk thinking all the time "wow... this could be me for the rest of my life".  It just doesn't seem right.  There are so many things in life that I would love to enjoy.  So many places I would love to go.  The really sad thing is, I'm the type of person who enjoys working out.  I'd rather be running, or lifting weigths, then sitting on a couch watching TV.  I get upset at some of the heavy people in the office who say "yeah... I have the energy and the time to workout,  but I just don't feel like it"  I could smack these people sometimes. 

    My goal in life is to be in law enforcement, but I don't see that happening with me being like this.  It's so hard to even work, let alone attend classes for my degree, and even becoming a law enforcement officer is even more physically/mentally demanding of me. 

   I'm not sure how spiritual some of you are, but I find myself really questioning my faith lately.  I've praid so much, yet I feel they fall on deaf ears.  I'm not sure how else to interpret it. 

  I'm going to keep pushing on, because without hope, there is nothing to live for.  I pray my saliva test comes back with something good. 

Rant over....

Posted 9/5/2006 9:31 PM (GMT 0)
Orion, I can very much relate to your "rant". In my own experience I have found that I can keep up hope and a positive attitude a lot of the time, but every so often, it all comes crashing down and really gets to me. It's kind of like a grieving process. I can't remember if I told you or not but I used to be a runner and a fitness fanatic who very much enjoyed working out almost daily, now my body resembles nothing that even resembles someone who is fit. It's been very hard to deal with that part because a lot of my identity was tied up in being involved in fitness, especially running. I think if you didn't ask "why?" or be upset that this isn't fair you wouldn't be human. People always say take it one day at a time. This morning I was thinking that sometimes I need to take it one moment at a time. This is so hard to go through and I haven't and probably won't figure out why this happened to me. Right now I'm in the process of trying redefine who I am and trying to find activities I can still enjoy doing while holding onto the hope that maybe one day I'll be able to run, or at least jog again. Hang in there. I know how hard this is.
Posted 9/5/2006 9:59 PM (GMT 0)
Orion, I know exactly how you feel.  I am 28 and I to was very physically fit and active prior to being ill.  Working out really kept me sane.  Now if I work out I feel worse.  Prior to getting sick, I had a pretty bad drinking problem.  I haven't drank since I got sick, and I look back and I realized that I took it all for granted.  I never really enjoyed vacations because I was hung over every morning and things like that.  I would give anything to just feel the way I used to- no sickness, no tiredness, constant energy, my mental state. Some people say when you get CFS you have to change something in your life.. Maybe for me it was drinking. But I have learned my lesson and I will never be the person I was before getting sick.  You just don't go back to exactly how you were, in my case I suppose that is a good thing. I never knew sickness, or anxiety, or panic attacks. I do not believe that we will stay sick forever. It will go away eventually.  I don't know your situation, but I understand your devastation.  I feel I am regaining some health back but it is very slow.  Try to stay positive- maybe try the Wellbutrin?

Posted 9/6/2006 12:40 PM (GMT 0)
Thank you :-)

   I'm just so sick of this.  I sometimes wonder if taking a dirt nap would be better.  If my body wants to sleep so bad... let's give it what it wants.  It's so easy to give up....  nono

Oh well.  I guess I'll just press on.  Someone at my office told me this morning that I look like crap, and that I need to go to bed earlier, and get more sleep.  As I clenched my fists, I said "Thanks for your input" mad

Posted 9/6/2006 1:04 PM (GMT 0)

Orion, You have to be careful, when you start thinking things like that- that is were depression can start to set in.  I have told people many times that I would rather be dead then feel this way.  Talk about looking bad- First I had very dark circles under my eyes for about 8 months, I have developed wrinkles under my eyes(stress probably) and now I just don't really look sick at all- so of course people don't even believe me anymore that I am sick.  I look skeletol now- which I would prefer to being heavy.  It is a good sign that you can still work, because I could not work for about 9 months- I was way too sick. I was afraid to drive far from home.  It has been horrible. My muscles are in extreme pain right now.  All of my co workers basically think I have been faking this or partying in the Bahamas or something.  It has been the worst year of my life.  It does seem to be slowly fading though and it will for you.  They give people Wellbutrin sometimes because it has a stimulating effect.  It brings you up.  That is what I take. Like I sais before the SSRI's all made me more fatigued. Try to keep positive- I know how hard it is- I have been there.  I am still not out of the weeds.  Keep me posted.

Posted 9/6/2006 6:06 PM (GMT 0)
I wish I could lose weight.  All I want to do is eat.  And not just regular food, just junk food.  All sweets.  I have an incredible craving for sweets.  Yeah, my office mates make fun of me too.  It's constantly a joke if you're not normal.  I hate it.

Keep me up to date on your health too :-)

Posted 9/7/2006 1:45 AM (GMT 0)
Orion, I wish there was something I could do for you - I'm so sorry you are going through such a rough time. Your co-workers don't sound like a very compassionent group of people. Something that did help me during the really rough times was talking to a good therapist who has experience and knowledge in counseling people who have chronic illness. I am fortunate to have found someone good. Therapists are like doctors and sometimes it take a while to find a good one, but it can be helpful. I completely understand the cravings. I used to be way into the whole foods, but now I crave all the sweets and junk and all that good stuff. I have no idea why that happens. It's been a topic on and off in the lupus foruma and seems to happen to quite a few of the "lupies". I'll say a prayer for you. Take care
Posted 9/12/2006 3:24 PM (GMT 0)
Well, I talked with the lab I sent my saliva test kit to yesterday.  They received it on Thursday of last week, and should shipped back this Friday.  I should have some answers sometimes next week.  I started my Isocort on good faith, hoping that it will show something. 

Take care all!

 

Posted 9/12/2006 10:47 PM (GMT 0)
"There is a black "X" on my lower back. It's about the size of a pencil head, but it's clearly and perfectly made X. It looks like it was tattoo'd on there, or burned in. I don't remember seeing it anytime in the past, nor my wife."

Aliens?
Posted 9/22/2006 10:19 PM (GMT 0)
Well, it's been almost a week now since being on my diet. I feel better than I have in 6 months. I'm walking every morning, and getting as much rest as I can. I'm going away to the beach this weekend for my wife for our anniversary. No one around, just peace and quiet for 3 days. Talk about relaxing tongue

So far, I've done 7 treatments of acupuncture. For a while, I was starting to think it wasn't for me, until this past week. He said he was going to help with my sugar cravings and to lose weight. He did just that. I have craved any sweets at all. I cannot explain it. It was just 3 little needles in my stomach, and I don't have any sugar/sweets cravings anymore. Look's like this is for me :-)

I'm hoping over the next few weeks, with the med's that I'm on to start seeing some more improvements. Already this week so far, my lymph nodes are going down, sometimes not even present, and my neck is getting better. I'm starting to notice a feeling refreshness (only for a few minutes) when waking. I pray this continues.

Have a great weekend eveyone!

-O- smurf
Posted 9/22/2006 11:46 PM (GMT 0)
Wow, that's great news. Congrats on your anniversary - I am so glad that you are feeling good enough to really enjoy the weekend. Have a great time!!!
Posted 9/26/2006 7:47 PM (GMT 0)
I'm starting to notice a slight increase in energy after taking the Isocort.  I hope this means great things :-)
Posted 9/29/2006 1:25 AM (GMT 0)

Orion..

Greetings friend. I actually stumbled on to this forum by way of accident surfing the web and Im thrilled that I did.

I am a 36 year old male. about 6 or 7 years ago, like around AUg. of 1999 I started feeling insatiably exhausted. Mind you, before this I was strong as a bull, avid gym goer powerlifter/bobybuilder. Life was good great job all that.

Around mid to late August of that year, I recall waking up one night feeling unusually hot. I had what I refer to now as an overnight film on me. I turned the a/c setting on full, which causes me to have to bundle myself in heavy blankets because it gets so cold. I woke up late that morning still feeling hot without any covers and exhausted.  

So I'm like ok, I'm coming down with some sort of bug. This one was different however. I felt weird. No fever, just a feeling of unusual hotness and severe exhaustion.

To make a long story short, I spent two years in and out of Doctors offices demanding answers. I lost my marbles a few times. I lost a good job because of this illness and Ive made some pretty bad decisions because of it. It's been almost 7 years and yes Im still exhausted. I look pale all the time, my eyes are always swollen and dark. My skin which at one time looked so vibrant just looks unhealthy.

This illness sucks plain and simple. A few times I considered offing myself on a count of it. However, selfish move. I have a beautiful wife and a pretty decent home. However Im still frikkin exhausted. Ive gained weight because I cant workout... I look so unhealthy especially in the am that I hate going to work.

Its amazing because at first you think you have some undected cancer. You feel this way for two years and then you believe the doctors then get more depressed.

Oh well..

My entire body changed. I feel hot most of the time, I sweat more, my digestive system is all out of wack, severe exhastion, puffy eyes which are always filled with conjunctiva it seems.

Increased appetite, low sex drive.. Get hoarse real easy.. I feel so tired I cant even carry myself upstairs to go to sleep.

I hope you feel better.. I have experienced little to no relief..

Ed

Posted 9/29/2006 12:25 PM (GMT 0)
Ed, I just wanted to welcome you to the forum. I'm so sorry you have been so sick. You are so right about how horrible this illness is. We are here for you whenever you need some support and please feel free to ask any questions you have. Take care
Posted 9/29/2006 3:12 PM (GMT 0)

Hi Orion,

I'm from the depression forum, and your thread has brought back some memories...My mom went through exactly what you are-for YEARS. Lymes tests, she went to the Lymes disease reasearch  lab in Stonybrook NY. Exahustion and pain were constatly there. Her neck hurt like crazy...

Everything came back negative-finally, she went for an MRI. They saw lesions on her brain-which is indicative of pretty much only two things-Lymes or MS.

They treated her for Lymes, while doing further tests for MS. The MS tests came back positive-she is doing fantastic on an injection once a week. Please ask your doctor about testing for MS. It's so easily arrested these days-she has had no progression in almost 8 years. SHe caught it in time.

Good Luck, Orion, and God Bless!

Posted 10/1/2006 1:35 AM (GMT 0)
I had my 8th acupuncture appt today. I must say, I felt a little energized afterwards. Not sure what that was all about. He's continuing to work on my sugar cravings, so far they're @ 0%. I love it! He also look at my saliva test results and was very happy for me. He's going to work on things to help me regain this faster. He also gave me some really strange stuff to drink. It's ginseng, straight from China. I look's like raw sugar cain. You're suppose to place 4 of them in a cup of hot/boiling water, and drink it likes it's tea. You're to do this 4 times a day (with the same 4 pieces). They expand after time. Once they've expanded, I can eat them. It's suppose to be a big energy boost. Needless to say, I'm looking forward to it. He too was drinking it while was there.

I was able to knock out a good walk today, and some pushups/crunches. I was feeling pretty tired towards the end of the day, but that's normal for me. My Wife and I have a lot of great trips planned, to include Florida, New York in the next 4 months. We love going places during the holidays. Sorry, I just had to list :)
Posted 10/10/2006 6:43 PM (GMT 0)
What's up all.

I figured I would give a little update.  So far, things are still moving forward.  I've been on a very clean diet as of this Friday, for 1 month.  I can tell you, I feel better just on that alone.  I'm still walking every morning, and trying to get as much asleep as possible.  Some nights, it's hard to fall asleep, others, I don't even remember how I got in bed.  My rash seems to be going away, but it sucks because I really wanted to continue taking the Isocort.  I might just suck it up and deal with it... I don't know. 

I'm going to give the accupuncture another 4 visits, and call it quits.  I don't feel anything coming from this.  The doctor is great, and has high hopes, but I cannot afford to keep paying $30 co-pays every week.  It's been an experiance, but one I will have to let go if I don't see improvement directly from that. 

I've lost so far 22 lbs, and that's great!! I was so happy to see that.  I'm on my way back down to my normal weight, of 175lbs.  Atleast that's where I was when I started feeling this way.  My ultimate goal is to be between 160-175lbs @ 9-10% body fat.  oh well... one day when I'm better, I will continue that dream.  For now, I'm back at studying for some certification exams for some more money in the paycheck, and getting ready for the winter season here in Maryland.  My wife and I have a bunch of day trips planned.  We go to New York every year to see the Christmas tree, Rockafeller Center and walk around beautiful New York City.  By the way, for anyone who has been there, Serendipity is AWESOME!!! Make sure you make reservation atleast 8-12 months in advance (yes, they're that popular).

I hope everyone is doing well, I'll report back with more news in a few weeks.  Hopefully, more improvements, and more weight loss.

Take care,

-O-

 

Posted 10/14/2006 2:25 PM (GMT 0)
Well, after a few days of bad energy, today is one of the great ones :)

I woke up, and felt great. Well rested after my 10 hours of sleep, and had the energy to get up and do 35 minutes on the elliptical. I'm feeling a little more tired now, but still more up beat than normal.

My Wife and I are going to a big farm today to pic up a pumpkin. I know... kinda corney, but it's a tradition in my family, and doesn't feel right not doing it.

I just had to share, and say that things are looking up.

Take care and have a great weekend everyone!!! :-)

Post Edited By Moderator (Admin) : 9/28/2009 4:01:05 PM (GMT-6)

Posted 10/14/2006 4:13 PM (GMT 0)
That's great!!! Have a great time picking out a pumpkin.
Posted 10/15/2006 9:02 AM (GMT 0)
Yes great news.
Posted 10/18/2006 3:10 PM (GMT 0)
Glad to hear about a good energy day!
Posted 10/18/2006 5:51 PM (GMT 0)
I'm feeling upbeat today as well.


I've been feeling better the past 2 days, since quiting smoking. I know, I know... but I didn't have a reason to quit, and I've been really down the past couple of months, so I picked up the habbit again. Not knowning that smoking also hurts your adrenal glands. I've been off them for 2 days now, and feel much better. My Wife told me, since I'm no longer smoking, I can save up the money again for another saliva test after the new year, if I'm not feeling better, to gauge my progress. I cannot wait. Either way, come January, I'll have some more results to look at.
✚ New Topic locked
12345678910