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Chronic Fatigue Syndrome
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Posted 10/14/2006 6:14 AM (GMT 0)
I now am living with my parents for a mixed number of reasons for both sides.  I am 37 years old and I take 27 pills a day because I have 28 medical/emotional disorders.  They make me really sleepy.  My parents think I should get up and about like they do but they are not sick or on as many meds - may 1 each.  I talked to my psychiatrst yesterday and he said if I needed to sleep, to sleep because they are not on what I am or deal with what I deal with.  I'm just curious how others deal with this problem?  Thank you in advance for any response.  redface YAWN

 

Sheri

 

Posted 10/14/2006 1:45 PM (GMT 0)
Hi SHeri and welcome. I'm sorry that you have so much going on with your health - you certainly have a lot to deal with. I think it is so hard for healthy people to truly understand what it is like to be ill everyday of your life. It sounds like you have a great psychiatrist who understands what you are going through - I wonder if he would be willing to talk to your parents and help them them understand how these meds and illnesses affect your body.

I'm glad you joined us, it's nice to have the support of others who understand what you are going through.
Posted 10/17/2006 5:48 AM (GMT 0)
My mom has talked with both my MD and my psychiatrist and she KNOWS why I am the way I am but she and dad just think I should just get up and get to work and get over it. So I challenged them to take my meds for one week and see how they get along. Of course they refused. But after I saw my psychiatrist this last week, I told them that he said if I was tired, to sleep. So they can't argue with that. We had a huge family fight - what's new when there are others living with them - and I wound up cutting both my arms up. They are really a confused couple. I am mostly moved in and now they want me to find my own place!!!!!!!! Not even my own stuff is all HERE yet!!! Welcome to the world of my parents.
Sheri
Posted 10/17/2006 2:14 PM (GMT 0)
I hide how I feel from everyone, except my wife. People don't understand how you feel, until they feel the same way. They look at you as if you're crazy, and this is in your head. I act different around my wife, then I do when I'm with my friends. I put on an act when I'm around them, but my wife see my true side. She see's the anger, the frustration, the depression, and the confusion. But most of all, she see's me for who I am, and my friends do not.

Try not to let this bother you. You're your own person, and nothing can change that. Everyone is chemically different from one another. Just because your chemical imbalance set's you apart from the rest of the world, doesn't make you any less of a human being, or any less of a great person.

Get better, and sleep well.

-O-

Post Edited By Moderator (Admin) : 9/28/2009 3:59:47 PM (GMT-6)

Posted 10/27/2006 1:29 AM (GMT 0)
You sound like bit like me. Im 35 and with the CFS have ended up with 64 different symptoms/things I get.

but wow.. that seems to be a ton of pills. Has your doctors looked into trying to lessen these in some way? I know often one type of pill can often be used to treat several completely different illnesses eg right now im looking at being put on one which not only will help with my tremors and almost going into seizures but will also help me by protecting my brain and its also an antidepessent and also used in bipolar ..so maybe will help my swinging moods too. Hopefully will help some depression, mood swings, epileptic type symptoms and be good for my brain... all in one go.

Pills should be helping us.. not making us completely unable to live our lives... and if your pills are constantly making you bedridden (rather than the CFS making you bedridden).. that to me dont sound good.
Posted 10/28/2006 6:08 AM (GMT 0)
I will not be living with my parents much longer.  I have been accepted into rent geared to income housing through the Canadian Mental health Association.  So on this coming Thursday, I will be moving to a city about 45 mins west of here and there are a lot of good things about it.  Too may to list here.  :D

Regarding my meds, my psychiatrist is gone for the month of November but has plans to lower and completely take me off some of the meds I am on:  namely the Vallium and Celexa leaving for psyche meds, Paxil and  Seroquel.

Sheri Adams

 

Posted 10/28/2006 12:20 PM (GMT 0)
Sheri, it sounds like this will be a good move for you and I really hope it works out well for you. Hopefully the change in meds will help your fatigue some too. Just don't get too worn out with moving - will you have some help?
Posted 10/29/2006 2:08 AM (GMT 0)
Yes, that is the best part of moving.  I get one ohour a day with my case worker.  They are going to be teaching me life skills, how to cook, hw to clean and keep things tidy etc.  It is an awesome city is the best thing I can say for mental illness.  I cannot put into words how great it is.  I am going to have TONS of help.  Thanks for asking.

Sheri

 

Posted 8/16/2008 5:25 AM (GMT 0)
As an update...long awaited...I am living on my own and with one cat.  I live in Peterborough, Ontario and am actively involved with the Canadian Mental Health Association (CMHA) both as a client and as a volunteer.  I live an independent life, am enjoying being single again and find many things to fill my time.  I am much more settled now than I was.  Life is pretty good.  God is even greater.

Sheri

 

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