Always tired... (My journey to cure my fatigue)

Well, today was a horrible day at work. I let it get the best of me, and ruine my progress.


I smoked, and I had 2 candy bars. It's hard.... looking back, I know this is going to set me back, but I cannot stress about it. What's done it done, and I'm moving on. Back on the diet now, and trying to quit smoking again.... I wish I never started back up :-(

Excellent, gotta let me know how that goes since every doctor I've been to has brushed me aside after failing to discover anything in tests.

When's the appointment?

Man, I hope this one is good. 3 months for the appts (Jan 22nd, 2007).


They asked me what it was in reference too (Hormones, Thyroid), I said Hormones. They want me to bring the lab work with me when I go. The crappy thing is, I won't be able to get any blood drawn for another week or so after that, because I'm going to Florida the very next day.



Oh well. This gives me 3 months to quit smoking, continue with supplements, exercise and rest. Hopefully, I'll improve some between now and then.



I've notice something over the past few weeks. I'm having problems trying to fall asleep. I'm hausted when I get into bed, and keep trying to dose off, but never can. Sometimes, it can take an hour and half to fall asleep. I usually go to be around 10 and sleep until 7:30. Last night, I didn't fall asleep till almost 1:00am. That sucked.

Yeah, I saw that too.


I think what's doing it, is that my belly is hungry. Since being on the diet, my last carb is around 3ish. I usually just have a protein shake before bed with some All Natural PB. I didn't have this problem when I was eating like crap, but that probably made me more tired at night time. I can't wait for another 3 months. Another Saliva test, and my Endo appt. Atleast the holidays will make this go by quickly.



I hope we get better soon... this is really starting to suck ;)

Post mail, and fully detailed!

Ryan,

thanks for your post

I checked their website, but don't see a urine test. Is this something that when I get the results back, I will tell me "Yes, you have lyme, No... you don't"? I don't need a test to take to a doctor. My primary care will not believe me, or it. She's already tested for lyme multiple times (I know.. I know). I've tried 2 different LLMD's in my area, and they both want referrals. I have a problemw ith that. If my visit isn't covered by insurance, why do I need a referral? Not to mention, the almost $400 visit will really set me back.

I have no problem investigating lyme a little more, however... only to when it becomes expensive. All signs and symptoms of what I have point to Adrenal Fatigue. I don't think Lyme disease (being a bacteria) would go away when I went onto a vacation, and come back when I get back.

I've had a hard time dealing with stress all my life. This time, was just a lot, and really long. I saw all the signs of something being wrong, I just didn't pay attention to it. It started with me yawning a little more here, little more there. Sleeping in alittle bit longer on weekends. Then, I started yawning during weight liftig sessions. Then I got so tired to point, when I was on the elliptical, I would almost close my eyes and fall asleep. When I got off the machine, from physical exhaustion, I would break into a cold sweat, and get bag under my eyes for a little while.

I hope you don't take this a me saying that Lymd doesn't exist. I know it's a powerful bacterial epidemic, however I feel that in everything I've been through and had to deal with over the last year, I truely believe I don't have this.

I would love to try anything (for free). What is this by the way (Link to website)? Is it gear specifically towards Lyme only?

Wow... I just spent the past 30 minutes reading over my entire post. Wow... 5 months of complaints ;)


Gratitude Happens.... I really hope to hear back from you . I sent you an email as well to the address listed. My email is my forum name @ hotmail.com. Please tell me and us (healingwell) more about this supplement you have.



Nothing new to report, same ol same ol. I'm stilling exercising on the elliptical 6 days a week for 30 minutes, and doing ab work in between those days. My diet is still excellent! Sleep is here and there, and supplements, well... let's just I never miss one.



I'm really right now just waiting for results to happen, until my next Saliva test and my Endo appt.



-O-

For anyone who can't wait: go to my son Roderick's site and click on Natural Cellular Defense for info.
I don't know that you can get it by the bottle--maybe just the 4 pack.

I would like to send a free bottle to someone with Lyme's, too.

the starting dose for "sick" folk is 10 drops, 3x per day for 8 days
Then many can back off to 3 drops, twice per day--- so a 300 drop bottle (15ml) can last longer than a month.

by then, you'll know if it helps
extreme fatigue and odd pains during the first week have seemed to be a good sign
look at www.mywaiora.com/295844

Ive started reading this thread (its long!!! I havent finished reading it.) and thought I'd comment on a couple of things Ive read in it so far.

Recently after 10 yrs, my CFS has started playing havoc with my moods, emotional liability (eg crying for no reason. mood swings etc are all a symptom of this illness).

I tried St John Wort (herbal antidepressent) that works very well for many with CFS. My online partner thou, as he's in America and i think its more regulated over there.. has made me go off of it due to his concerns of it. I do thou think it was really helping me as my moods werent falling down as often.

Instead I started then to take the Lovan (an SSRI drug) in a very low dose. When my doctor had tried to put me onto it, as I knew she knew nothing about CFS patients.. I told her what I knew.. that lower dosages than average are usually used for us. So she told me only to take half a pill (10mg of Lovan).

Not to my surprise I still got a bad reaction from that.. almost instant headache, it made me so tired that I went to bed during the day and just slept (something I rarely do), then I woke up feeling hungover. Needless to say I havent taken it again and now are in quite a fix as I do right now need to be on something as I do right now have mood issues which are being quite major for me at times. (I see my CFS specialist on Wednesday.. so hopefully he has some good ideas for me or can give me some counselling or something).

I saw your mention of prednisone helping your problem.. as it sounds as if you may have CFS I did an online search for prednisone and CFS (as I hadnt heard of that being used for this) and came up with the following from various CFS places

"But I did get a prescription for prednisone, which has been a great help. I've used prednisone and hydrocortisone occasionally in the past, but now I'm taking it prednisone for a few months, first 20 mg a day and then 10 mg a day. The doctors hope that this will keep my CFS in remission even after discontinuing the drug, which I doubt, but I'm happy that it helps me for a while at least."

"It was exciting too because during the study the researchers in this study of prednisone as a treatment for CFS were sure that they had a winner. There seemed to be a marked improvement in many CFS patients during the study. When the study results were analysed it turned out that the cause of the improvements was not the prednisone. The improvements occurred similarly for those taking prednisone and for those taking the placebo. Why many CFS patients improved clinically while they were in the study is not absolutely clear. Modern medicine seems to disdain placebos but the care and concern given to patients has an enormously powerful effect."

"Management Approach

Charles Lapp MD then presented his stepwise approach to the management of CFS. These steps include Patient Education; Activity - balancing light activity with rest and increasing the level of activity slowly over time; and Nutrition - avoiding malnutrition, minimizing sugar, caffeine, alcohol and tobacco, keeping fats low if suffering from diarrhea and avoiding dairy products and or/gluten for 5 days to see if there is any improvement.

Specific Symptom Therapy:
Stage 4:
--Opiates - morphine up to 30mg 2x/day
--Methadone (cheap but has long half life)
--Prednisone - does not work in FM, but hydrocortisone 25mg daily is often helpful (keep in mind side-effects). A four-week trial is worthwhile."

"I've notice something over the past few weeks. I'm having problems trying to fall asleep. I'm hausted when I get into bed, and keep trying to dose off, but never can. Sometimes, it can take an hour and half to fall asleep. I usually go to be around 10 and sleep until 7:30. Last night, I didn't fall asleep till almost 1:00am. That sucked. "

That's quite normal CFS stuff. I used to be always so so tired yet had trouble sleeping. Fortunately nowdays Im sleeping great most of the time, (thou I get some restless leg syndrome if Ive over done things during the day).

The product of gratitudes sounds interesting.. i'll check the site out (hoping its in australia as I dont like to put my credit card details online (never have cause my computer has been hacked into a few times) and overseas postal orders are very expensive).

Gratitude Happens

I haven't gotten an email from you, or reply to the message on here.


I'm sure as a doctor, you're busy, but have you gotten my emails?

Thanks,

-O-