Hours of sleep

Okay, so I decided to come to this forum because I sleep A LOT!! I have been diagnosed with fibromyalgia, but now with cfs. I was wondering how many hours of sleep most people get most nights.

I seem to be getting 10-12 hours each night, plus a nap sometimes and I am still tired.

 

Do I have cfs??

 

Thanks for your replies,

 

Kristin

My new pain doc put me on Ambien CR for CFS associated with Fibro. I didn't ask for it. She says that I never feel better because I never get restorative sleep. I go to sleep fine, I just don't stay asleep for more than a few hours, even if I'm in bed for an eternity. Give me a few days and I'll let you know what I think.

Other suggestions are getting rid of the tv, radio, and reading in bed so that you train yourself to do nothing in bedroom that could increase stimulation. It's supposed to be a haven. In the meantime, have sex in the kitchen.

Best of luck,
Stephanie

I don't sleep so much per se. My fatigue is not "sleepiness" or feeling "tired" so much, as utter complete physical exhaustion and weakness, and the amount of sleep I get does not really affect this, but if I don't get enough sleep of course I feel worse.

I'm sorry to hear that you also have cfs on top of fibro - you got a double whammy. Hopefully the Ambien will work. If it doesn't, talk to your doctor because there are other sleep aids out there too. Take care and keep us updated.

Provigil was specifically designed to treat NARCOLEPSY and other sleep disorders. So, yes, it IS supposed to keep you from sleeping. the idea however is to take it early enough that it has worn off enough to not disrupt nighttime sleep. provigilis still a very new drug, and its other uses are all off-label. I believe the only other group of patients that a true medical study on its safety and efficacy has been done is those with MS. That is not to say that it has not helped some people, including fallenangel, but it is important to always be aware of what uses a medication has been approved for, how long it has been on the market, and any and all risks associated with it so that you can make an informed decision on whether it is appropriate for a particular individual.

pasara said...
Provigil was specifically designed to treat NARCOLEPSY and other sleep disorders. So, yes, it IS supposed to keep you from sleeping. the idea however is to take it early enough that it has worn off enough to not disrupt nighttime sleep. provigilis still a very new drug, and its other uses are all off-label. I believe the only other group of patients that a true medical study on its safety and efficacy has been done is those with MS. That is not to say that it has not helped some people, including fallenangel, but it is important to always be aware of what uses a medication has been approved for, how long it has been on the market, and any and all risks associated with it so that you can make an informed decision on whether it is appropriate for a particular individual.

Taken from the Provigil website (www.provigil.com): (quoting a source for informational purposes doesn't appear to break any of the rules... if it does please delete it, but I'm just trying to clear up some information on Provigil)

"PROVIGIL is indicated to improve wakefulness in patients with excessive sleepiness associated with narcolepsy, obstructive sleep apnea/hypopnea syndrome and shift work sleep disorder." (it's intended use is to not keep you from falling alseep, but to promote wakefulness and help treat excessive fatigue)

"What is the most important information I should know about PROVIGIL?
PROVIGIL may help treat the excessive sleepiness caused by certain sleep disorders, but it may
not stop all your sleepiness. Regardless of how improved you may feel, do not change your
daily habits until your doctor tells you it is okay. Discuss your level of sleepiness with your
doctor at each visit. People with sleep disorders should always be careful about doing things that
could be dangerous, including driving a car."

"What is PROVIGIL?
PROVIGIL is a medicine to treat unusually sleepy people who have one of the following
diagnosed sleep disorders:
• narcolepsy
• obstructive sleep apnea/hypopnea syndrome (OSAHS). PROVIGIL is used along with
other medical treatments for OSAHS.
• shift work sleep disorder (SWSD)"

****"PROVIGIL will not cure the above sleep disorders. PROVIGIL may help the sleepiness caused
by these conditions, but it may not stop all your sleepiness. PROVIGIL is not meant to be used
in place of getting enough sleep. You should follow your doctor's advice about good sleep habits
and using other treatments."****

****"General information about PROVIGIL
Medicines are sometimes prescribed for conditions that are not listed in patient information
leaflets. Do not use PROVIGIL for a condition for which it was not prescribed. This medication
is for your use only. Do not share this medication with others."****


Just wanted to clear up its intended use is not to PREVENT you from sleeping, but promote wakefulness with the least amount of side effects. It was developed and tested/approved for narcolepsy, OSAHS, SWSD... but is also prescribed in wider acceptance for CFS and other diseases to treat the excessive fatigue associated with such diseases or illnesses.

Not arguing or anything, just trying to clear things up a bit.

either way, yes a doctor should always be consulted about your medical concerns and help you find something that works good for you. Not every medication is for everyone, but I know I'm eternally grateful for Provigil.

pasara said...
I don't sleep so much per se. My fatigue is not "sleepiness" or feeling "tired" so much, as utter complete physical exhaustion and weakness, and the amount of sleep I get does not really affect this, but if I don't get enough sleep of course I feel worse.

Yes, that's how I feel as well. I am utterly exhausted, as if I'd been on a 20 mile hike, but I'm not sleepy, nor do I sleep excessively. In fact, it's extremely difficult for me to fall asleep, and I'm often awake for 24 hours at a time. (I sleep well once I fall asleep, but I don't wake up rested.)

Since it's so hard for me to fall asleep, I would never touch something like Provigil. It's the absolute opposite of what I need.

Ambien does help me sleep, but I find that I feel worse after having slept with it than I do when I've slept without it, so I rarely take it. It also impairs my memory and ability to pay attention. (Once, after having taken it the night before, I got on the wrong subway twice, something I normally would never do.)