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Chronic Fatigue Syndrome
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Posted 5/22/2007 5:48 PM (GMT 0)
I'm a 19 year old college student. I think I have CFS. I'm pretty sure I do. I've been tired for at least four years, maybe longer. I don't remember exactly. What I do know, is that I don't remember what it's like not to be tired.

I've had blood tests done by two doctors and they haven't found anything.


I had one doctor tell me, "I can't find anything wrong with you, but maybe when you have a career and you're married and you have children, maybe then you'll feel better." Yeah... right. No comment necessary.

I went to another one today. This one was even worse. He spent the entire session trying to coerce me to say that I'm depressed. And asked me questions like:

-What do you think is wrong with you?

-If you were me, and someone came to you and said they were tired all the time, what would you say?

-How do you KNOW that you're tired?

It was awful. He interrogated me the whole time and he obviously decided from the beginning that I was depressed, and every question he asked was loaded in a way to try to make me say I'm depressed. He wouldn't even consider my tiredness from a medical point of view.


What can I do? Am I destined to be tired forever? I don't see any way out.

Posted 5/23/2007 12:36 AM (GMT 0)
keep on keeping on. I am faced with your same dilemma, as most here. All i can tell you is continue to look for a doctor until you find one you are least comfortable with.
Posted 5/23/2007 12:46 AM (GMT 0)
Welcome cooling - you are right that is awful and terrible and those docs really didn't show any kind of respect for you as a patient. I agree with Aron - keep looking until you find a doc who will listen and try to help. There are good docs out there, they just take a while to find sometimes. My only other question is if you have been checked for Lymes disease - a lot of docs don't think about lymes when people present with fatigue. Hang in there and know that we are here for support for you. Take care and I'm glad you joined.
Posted 6/2/2007 12:12 AM (GMT 0)
Hi cooling1,

Sorry you're not feeling well.
Join us on the Lyme board...we have a symptom list that you might want to look at; but more importantly IF you are considering getting tested for Lyme Disease, Please don't waste your money on an ELISA. That test is simply not a good lyme test,,,,consider testing with a lab that will test for ALL the bands. We can give you all the reasons "why" and where to get the correct test along with a doctor who can clinically diagnosis you.

I have MS, and also Fibro, CFS symptoms and even Lupus symptoms and after many years I finally found out I have Lyme Disease.

We'd love to have you for a chat,
the best
tory
Posted 6/3/2007 4:28 AM (GMT 0)
I understand how you feel. I've actually given up going to doctors because I can't handle the stress of how awful they make me feel. I'm constantly debating with myself when I'm at a doctor's office if I should insist on trying to explain my symptoms, which is stressful because it ends up in an argument, or just nodding and keeping quiet and then just walking away and not going back. Either way I've had the same result: no help and I feel awful for the experience.

There's very little that doctors can do for CFS -- if that's indeed what you have, and I agree with those who have said to make sure you couldn't be suffering from something else, like Lyme -- so whether they're jerks or not ultimately doesn't really have an effect: even if they were nice and they listened there's still not much of anything they could offer to relieve your symptoms.
Posted 6/21/2007 4:42 PM (GMT 0)
You need to remember that doctors are just human beings trying to do their jobs. Everyone is different and what might work for one person might not work for someone else. Some doctors know more than others too but that don't make them a bad doctor.

The doctors do find that depression causes a lot of different symptoms and can make us think we got some thing really bad or crazy. I have been depressed all my life and find that when I am on my meds I do very well but it took time and a few different meds to find the right one for me.

don' give up and don't keep going from one doctor to another bacuse they can't do much with just one visit but need to have time to study you and your symptoms. Do find one you like though, because not all doctors are alike and someone had to grauate at the bottom of the class, didn't they?

When you find one you like, stay with him and work with him. He is not trying to discourage you or make you feel intimidated, he is just trying to do his job and this needs time and he needs to have you work with him as a team. . I would let him know you willing to keep an open mind and work with him.

Ou might ask around with friends for a refurrel too.
It took me around 3-4 visits to find the right treatment and this was over a years time but i hung there and ended up with good results.
Every time you try a new medican your body will need an justment time to see how it responds. Usually it takes a few months to achieave the best results, and every body is different for the next so the results may be differnt in differnt people.

Hope this helps. . . .ForeverEmily1
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