has anyone gotten over CF and had it comeback?

freezing, I really hope you continue to feel stronger and stronger. I had a similar experinece as you have had in the past. I was diagnosed with CFS in 1991 and by 1995/96 I had resumed an almost normal life. I was able to do the normal everyday things and was able to exercise. The only difference between myself and others was that I got tired more easily and every few weeks my body would crash and I'd need a day or two in bed, but otherwise I pretty much had my life back. about twice a year, my fatigue got so bad that I would go to the doctor, but it eventually went away on its own after rest. This remission lasted for several years until about 2003 when the fatigue hit hard and heavy again and it didn't go away. Now I'm sure the cfs is back along with having developed lupus, so I have a double whammy of fatigue and pain. It sounds like your approach to this is a good one because you are challenging your body, but still listening to it. I think the danger comes when people push hard, but don't back up when their bodies tell them too. I haven't found that balance yet. Keep us updated on how you are doing. Take care

Hello! I am new to this web site. I read about it in the local paper.

I had CFS for 10 years. Had all the systems and was tested to the point of what do we do now? The doctors finially told me I would have to cope and cope I did.

One day I was watching a program on tv about a treatment they were giving to others who had CFS. They were putting the people into a hot tub and running their body tems up to 102 degrees and letting them stay in there for 15 minitues and not more. They did this 3 times and found that  they got good results.

I had noticed that I never ran a high fever and every time the bad spells would come, I would chill but there again I did not run a high fever. I noticed that when not chilling my body temp was lower than normal. I had just chulked this up to part of the CFS.

After much consideration I decided to see if I could help myself. I did not have a hot tub but a regular tub. I assembled a heavy large towel, a mouth thermomiter, a cooking thermomiter and full glass fo water, set next to the tub. I set the water to a warm bath and started a constant running of the hotter water to try and keep the water hot. my aim was to get my temp up to the 102 degree and stay in the tub for the 15 minutes. I put the mouth thermomiter in my mouth and the cooking thermomiter clipped on the edge of the towel I drapped across me to keep me wet, warm and coverd as much as possible.  It took me a long time, over an hour and kept upping the water temp as hot as I could stand but not to scald me. I have very senitive skin so I had to watch not to get too hot. I only got my temp up to 101.

I must warn you that if you try this do not do this alone as I found myself getting very weak, and nasiated at times and had to drink some of the water. It was not fun but got very uncomfortable at times. Have someone there with you and to help watch your progress and keep an eye on the whole process. After the 15 minutes I was at the 101 temp I could stand no more and had my husband help me out of the tub and up to bed. I did this treatment again about a few weeks later.

That was 10 years ago and I have not had any returns of my CFS. I did notice I had nerve damage and the short term memory I suffered with took a long time to return and never to a full degree.

I now feel so good and have gotten on with my life and I feel I had to take matters into my own hands to get myself into remission.

Hope this helps someone else. My doctor was amazed at how well  I have done so far.

I am sorry for the misspelled words but could not find spellcheck on here.. . . foreverEmily1

Cowboy,

I am not a doctor so I am coming to conclusions on my own but,  the body kills off germs/viruses in the body by running a fever. I  understood the hot tub procedure was to  raise the temp of the body, to kill the invasion of whatever, if the body could not do this on its own.

when I first got sick the doctor told me a very bad virus had attacked my body. After being very sick for 10 days I found myself in a state of not being able to do much and it took a long time to recover to a point to where i could funcion again. they first thought I had a stroke but ruled that out by test.

What I had after that was a return of my "viris" or the "attack" as i call it, about every 3 months or so. I would start out with the low grade fever of chills. I would chill all though the next 12 hours or so and when it was over I was left with the pain, and alot of the other symtoms of the CFS. Of course i did not know this was what it was at that time and did not get that knowlage until many years later. Each time it would attack my body I would get be left with some different symtoms to have to cope with until the next time I got the attack. Each time, my body would have  to recover some until the next attack. It never got to the point of "normal".

the thing that I noticed most was the fact that my body, for some reason, would not raise the temp of my body high enough to kill anything. I had taken antibodies from the doctor and it never seem to take care of it so my only hope was to do something on my own and the hot tub idea was the thing I dedcided to try.

I did not find out I had CFS until I had suffered for over 4 years. I knew I had to do something and the doctors never seem to know what to do other than to treat the symatoms and tell me I would have to live with it.

You may not be able to do the "hot tub" thing and need to find some other way to raise your temp if you think this is something you think might help you.

I think everyone has a different body and systems within, as each of us are only human, and each of us has to find his own cure if we are to get one.  I don't think we should just sit back and say "oh well". Good luck.

  I have been working hard on this CF and fighting it must of the pain is now gone and I'm getting stronger and not needing my daily naps I still take the brakes that I need so I don't crash but even they are getting less and less just fighting though the mind set and keeping busy really has helped but my down time is a real killer for me

  Cowboy up