Coping with long periods in bed

Louise, I am sorry you're feeling so bad. I do understand what you're saying, I'm the same way. I love to be acitive and my mind is still very active, but my body has completely given out. I was sleeping days and staying up at night until the last month or so. I changed my hours of sleeping and now I feel so much worse physically that I can hardly believe it.

My pain is more than double what it was before because of the added stress of trying to do a little more around the house. And it's just a very little that I do. I cook a meal about 3 times a week and most of the time I just watch tv, use the computer or read.

My husband has been trying to do some things around the house, repairs and cleaning that had been put off due to my sleeping hours, and he is very glad I'm up in daylight hours. I just don't know how long I can go on like this.

I am getting the same number of hours of sleep so I really don't understand why I feel so much worse lately. I want so much to get things done around here but I seem to have hit the wall this week!

I have CFS, FM, MCS, Diabetes 2, Low Thyroid, OA, Pelvic Prolapse,
Ocular Migraines, Degenerative Disc Disease,Hypertension, IBS, Tremors, Curved Spine, and lots of dental problems.

I'm almost 75 years and I've had CFS/FM for 35 years. I wish I had some answers for us but I guess we'll just have to hang on and encourage and support each other. Hope you feel better soon.

Post Edited (memaw12) : 6/14/2015 12:54:10 PM (GMT-6)

Hello Louise, I've actually been dealing with the same thing as you are
these past couple of weeks. The only difference is, I spend time on
the couch. (ha, ha ) That's because my tv is in the living room.
Now, that the summer season is here, well, last night for instance
I had trouble finding much of anything I wanted to watch and ended up
watching some crime shows which usually don't appeal to me.
As to how I cope with this. I go back and forth. If it's several days that I'm like this, no, I'm not happy about it. It feels like I'm 'wasting time' and not getting things done which I'd like to. Most of my life, I was very active. One thing I do miss is hiking. I'd much rather be out in nature hiking when the weather's beautiful like this. I'd rather go on a trip or visit friends. Many things.
On the plus side. I do take long walks. I can still do things I like. However, I have to pace myself. I have to do them when my energy is 'up'. And it's not always predictable.
I'm embarrassed to say actually how much television I've
watched this past week. A few days in a row for sure. I do mute the commercials. I do read. I do talk on the phone. I do go to the store. I try to break it up as much as possible.
Today I'll be getting out. I don't know if this is helpful or not. I just know 'it is the way it is' and I try not to be hard on myself because I feel I'm doing the best with it that I can.
p.s.
There's another support site, www.dailystrength.org or .com I believe it is and they have some very good posts on there under 'chronic fatigue' as well.
I like both this site and that one. I figure it's good to 'get all the support we can with this'. good wishes to you. hugs.

Post Edited (Dancing Dawn) : 6/14/2015 6:26:40 PM (GMT-6)

Louise, wow, we all sound the same, I could have written any one of these posts. I spend quite a bit of time sleeping & the rest of the time I spend mostly on the couch watching TV or on my computer. I like to play games on my phone, read my book, study my bible. I live with my daughter & my grandkids so I like to visit with them when I have the energy. about once a week I get out of the house, it may not be much, just a trip to the grocery store but I like to socialize a little bit. It makes me feel human again & like I belong & feel normal. Sometimes I overdo it like I did the other day when I decided to clean house & really pushed myself, boy did I crash. I hate that I can't spend a few hours a day working without paying for it, then I can't even be on my computer, I can only listen to the TV. Wish I had some answers for us but I have none, just pace & don't overdo it. Hugs, Denise

memaw - go to your profile page and click edit profile - I've just done it!

Louise, have you tried colouring? I had CFS for 6 years and after 2 years of being very immobile a friend came round with her coluring pencils. I refused to pick them up at first but when I sat on the settee and created a doodle it changed my mood. I tried to spend the little time I could up even if it was 5 minutes doing something that really inspired me. That might not be seeing people because that can be exhausting. It certainly wasn't housework! Try setting yourself a small artistic or creative project and just do it 5 minutes at a time. it is good for your soul as well as your body!

Good! If you want some more inspiration you could follow my signature link to my blog and there you'll find my story to help my 7 year old recover from chronic fatigue and also a link to my website called 'Creative Journey Work'.

Do you feel you're getting better?