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Chronic Fatigue Syndrome
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Posted 3/29/2021 5:07 PM (GMT 0)
Good afternoon, my name is Jake Carroll. I've been struggling with CFS like symptoms since 2018 June. I'm 27 years old and pretty scared. I was 24 and i quit the partying lifestyle and party friends. I was ready to move on with my life , pay my debt off and get a career. I had gone to college for pre apprenticeship program for Plumbing. I did well and moved to the big city to accomplish that goal. I had been smoking cigs and weed for about 7 years. This time i wanted to get rid of the addictions and get back to playing hockey and running. When i quit within 2 weeks i did not get a flu or anything but i woke up with the worst symptoms...thought okay maybe some sort of weed withdrawal. It was not. I couldn't even spare enough energy to keep up with taking care of myself. I got a fulltime job at Home Depot and i've never been so embarrassed that i was falling apart.
MY symptoms started with Chronic Fatigue , Vision can't focus ,zero concentration , Excessive Saliva , Swaying feeling, Vertigo , Dizziness , Slow muscle recovery , Heart palpitations . All happened at the same time. Did so many test my MD thought it was Anxiety...the meds made me feel worse. Fast forward i was able to control the depression that comes with a chronic illness. My next MD found Sarcoidosis and the prednisone caused even more problems.
I probably shouldn't be working but its that or the street so. I've seen a Integrative doctor we did Organic acids , Toxicology , of course there was problems in the OATS but i tried his treatment for 6 months and nothing changed. I ate organic , veggie smoothies , proteins , Legumes , Millet . You name it i eat it. I went to a naturopath and tried IV's of B vitamins and just made me feel like i drank a energy drink and my heart freaked out. I thought i was going to die in February from the heart racing at night , sweating. I stopped seeing her. AT this point its probably never going away and i just need to vent because sometimes it helps .
Thanks - Jake.
Posted 4/4/2021 6:06 PM (GMT 0)
Hi Jake. Unfortunately this forum has seemed rather dead for awhile. I still drop by from time to time.

Have you been tested for Lyme/coinfections? Have you considered the possibility of mold where you live?

Happy to share what has been useful to me so far.
Posted 4/4/2021 7:03 PM (GMT 0)
Thank you its okay I understand people have there own things to deal with. I have not been tested other then the elisa lyme test which came back negative. I tried a GI cocktail charcoal activated 2 hours before other and food. Bentonite clay (edible) , and chorella. I had pains in my heart for 4 days followed by a 3 day migraine and PEM. I never had a flu of some sort with these symptoms so I thought it wasnt lyme but sarcoidosis is the biggest clue I have! Thanks for replying I really appreciate it.
Posted 4/4/2021 11:22 PM (GMT 0)
ELISA results are notoriously inaccurate. Medical Diagnostic Laboratories is the best insurance covered test for lyme and co-infections. It cost me $50 out of pocket and you can get a good idea based off of that if there's a possibility of chronic infection.

Running an ERMI cloth mold test on your place is an accurate way to test for mold wherever you live. I use mycometrics. Don't dust surfaces for two weeks, then wipe around with the cloth. Runs $50 upfront + $240 after sending it in. Don't pay for an air test.

It sounds like the B vitamin infusion and the binders caused detox reactions. Hard to say what though without much data. Not uncommon for sensitive individuals.

Not sure what your budget is like but those two areas really need to be explored before proceeding with treatment. If anything maybe try like a capsule of charcoal every other day if tolerated and then slowly increase to 1 a day - then 2 day (spaced apart) etc.. It might be hard to see much progress on that but if you still have some laying around..
Posted 4/4/2021 11:58 PM (GMT 0)
I thought the same thing my Organic acids test this I ntegrative doctor said was cause if metals and leaky gut. However I did NAC with anti oxidants for 5 months. Also lots of veggies and meat. Didnt do better. I have a low budget but I just have to wait 2 weeks to have some money again. I'm definitely certain theres mold in this apart as I can see the black dot spores on the rough of my bathroom.
It was scary maybe I took too much I did all 3 binders for clearing the GI out. I just got them so fresh and lots. 560mg per charcoal tablet. The b vitamins weren't as bad but too stimulating. Okay I'll look into getting those 2 test done. Thanks for the advice.
Posted 4/12/2021 11:30 PM (GMT 0)
I second the Lyme idea. I don't know of any other treatable pathogen that causes chronic fatigue. I have been essentially bedridden half of my adult life, been to doctors who do tests... It comes on like the flu out of the blue over a few days and then it just lingers for years. Until it surges again. I almost died before I figured out it was Lyme. Now I am so upset to learn that I am not alone. Lyme is an epidemic that about 1 in 3 of us will get in our lifetime. It is our most controversial disease. It is an oversight in the moment that people don't get diagnosed, but really it is a policy. Under Our Skin is a great documentary. People don't want to hear this, but unless you see a private Lyme Dr. you will hear you don't have Lyme even if you do. People recover! With Lyme tests, diagnostics and treatment from a Lyme Dr. Mainstream tests are only good in the month after initial infection which most people didn't notice. I wish I had listened to every hint I may have gotten because I wasted too much time and $ not working and it does suddenly get worse and options dissipate. Don't get caught up on your lifestyle past. It may not have helped, but you have a job to do to keep from getting worse because this can happen to anyone, so take care of business before you feel too skid row to do it. Good luck!!
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