CFS without a virus

Hello aquaria.
I was diagnosed with CFS as well as FMS...and no virus showed up in my bloodwork as of yet but i'm still pending some blood work.

Don't know if i was helpful or not.

Mel

Thanks for replies, I am just so stuck between CFS or anxiety because a lot of people from the anxiety forum tell me they have been extremely sick with just anxiety/panic disorder alone.  I just don't know.  I have never had fevers or swollen glands but I have had dizzi ess, fatigue, headaches, sore throats, muscle aches, and dark circles under my eyes.  I am not sure anxiety alone can do all of that!  I am so confused and really don't want to live like this!!  I am not suicidal, but I don't know how much more fight I have left in me.  Thanks for listening.

Yes I sleep but only becuase I take 3 mg of xanax at night.  I  dont think there is a blood test for CFS, but the doctors often see a virus like ebv or mono before the CFS starts.

I would like to know the product name.  I actually had some one who had CFS tell me he cured himself by putting a few whole aloe leaves in a blender with a little water, and then heating the liquid, and then drink it.  I tried a few times, but I was scared to continue, because I didn't know if it was safe.

Hi aquarias,

I think the source of your problem may be Lyme Disease. It would account for ALL of your symptoms including anxiety (and even Wayne's mother's anemia). Plus, one study of CFS patients showed 90+% of them had the bacteria responsible for Lyme.

Don't be skeptical if you've only heard things about Lyme like "deer tick bite", "bullseye rash", and "flu-like symptoms", because that is an extremely misleading portrayal of it. Here are a couple of links where you can start to get more info on it. I especially recommend the Symptoms doc on the second site.

Hope this helps. Good luck!


http://ottermusic.com/lyme/articles/indicators.html

http://www.lymeinfo.net/lymefiles.html

aquarius,

You're very welcome. I was excited when I got diagnosed because it meant I was finally on the road to solving the problem.

Regarding testing, eight months would make you chronic; that's what makes the "standard" test procedures not work well for you. The Western Blot can be OK for screening as long as your doctor interprets it with the chronic effect in mind. Here's a link that explains that:

(LINK REMOVED)

Push for the Bowen QRIBb test if your new doctor won't prescribe antibiotics based on clinical analysis and whatever tests you have. It will cost you $250, but it tests for the bacteria themselves rather than for your antibodies to them so you will KNOW if you have Lyme bacteria in your blood and how infected you are.

Also, I saw your posting on the Lyme forum about exercise. With Lyme, if I have to change planes on a business trip, I can count on being so trashed I can't work on the day after I get back home. I can no longer mow my lawn and can only fertilize it with multiple breaks. I'm just ten weeks into treatment after being infected for many years.

Again, good luck!

Please read the forum rules before posting websites!!!

Post Edited By Moderator (Foreign) : 6/22/2006 7:59:01 AM (GMT-6)

aquarias,

No CFS diagnosis for me; although fatigue has been a major issue. The only time I know I was bit by a tick (not deer) was when I was 7-8 years old; I have no memory of a rash. After intermittent but varying symptoms for 20+ years, I had unexplained hair loss and inexplicably gained weight; developed a weakened immune system, chronic cough, vertigo, hives, night sweats, extreme fatigue, and stabbing abdominal pains. I was diagnosed with asthma (not true), PCOS (polycystic ovary syndrome), then low hormone levels and low T3 thyroid levels (all potential effects of Lyme by the way). There's a lot more to the saga than that, but I don't want to bore you.

I think any diagnosis that is called a syndrome or has only been given a name in my lifetime (like fibromyalgia) probably has an underlying cause that is being missed.

I'm determined to recover completely somehow. I refuse to live my life without health. My doctor says in his experience chronic Lyme is curable 85% of the time; I will be part of the 85.

Foreign,

Exactly which link rule are you referring to as being violated? I read the rules and see none!

Post Edited (KCLyme) : 6/22/2006 8:19:37 PM (GMT-6)

https://www.healingwell.com/community/default.aspx?f=46&m=106997

4. No advertising or links to advertising or "Spam" is permited (including signatures).

Advertising or Spam is defined as posting a link for the purpose of selling, soliciting or promoting by someone that has ownership or other "vested interest" to the web site involved, including efforts to promote other online forums or web sites by web site owners.
If you are a web site owner and have a link that fits into this category that you want to share, please submit it to our resource directory and we will review your submission.
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Only links to personal home pages are allowed in signatures and member profiles.
Links to helpful web sites (commercial or otherwise) are allowed when they are posted by someone without any "vested interest" AND whose purpose is NOT to solicit, advertise, promote, fundraise, etc.

The web site you posted was selling products.
Did not mean to offend just abiding by the rules.

Mel

Kc- I agree, the links were very helpful and they were not giving any advertising!!

KCLyme!!
I do appologize I obviously read something wrong and made a bad call.
I thought I was acting accordingly.
I will contact the admin about this and let him make the call.

Take care
Mel