Sounds like Lyme disease. Please try to see an lyme literate doctor. Let me know if you need the name of a great lyme doctor in your area. If you have been tested for lyme please know that the tests are unsophisticated and only pick up a handful of strains when there are hundreds. Many patients, including myself, test negative every time. The lyme diagnosis should be a clinical one and therefore you need a doctor that really understands the disease and who has treated it for many years.
You should not have to live like this. Please let me know if I can help. If it is lyme, you will know immediately because after starting treatment, you will experience the herxheimer reaction. Its the tell-tale sign. You should also have a brain SPECT test.
good luck.