pvns in knee

hi I am new here. I might have joined this site before . Don't remember oh well. I had sugery Sept.2008 on left knee.Been doing ok.Knee gets stiff and swells at times.Had another MRI in Sept.2009.Will have MRI every six months for next two years to make sure it does not grow back.Was supposed to have had MRI done back in May but have been taking care of my Mother with my sisters. Hope to hear from someone

I'm curious! What is pvns? Welcome to the forum peglady, glad you decided to join us. Give us more info please.

Good morning. My name is Dani. It is very nice to meet you. I do hope you decde to stick around and let us get to know you better *huggs* This is a wonderful place for knowladge, support and understanding! Though I know nothing of most types of conditions, I am sure someone will stop by with ideas! Again, a big welcome! We are glad you could join us.

 This is what happened to me. Pigmented villonodullar synovitis. Is an autoimune {body attacking it self } there is a change in the synovium fluid in the knee and there is this  abnormal growth going on in the knee.The fluid in the knee can be a rusty orange color.Small noduals are also usually forming in the knee . Three years ago I started having problems with my left knee. Over time I found it hard to straighten my knee after kneeling.Eventually I would have to turn my leg and pop it to straighten it out.After that it would swell once in awhile.In the spring of 2008 I went to an orthopedic doctor who specializes in knees to get some answers.Had xrays done and was put on antinflamatory. Was told to come back to see if this helped. IT DIDNOT.Doctor sent me to see physical thyrapist who is in the same office.That same day.Did what he told me to do but there was a little discomfort.At the end of thet first session the therapist iced my knee which I could not straighten out.He had to put a wedge under my knee.Well when the ice was on a few minutes the pain started and got so bad they had to go across the hall to get the doctor I had just seen.He could not believe what was happening. I walked out with a very painful limp.He sent me for an MRI.Saw same doctor a few days later and he showed me my MRI on his computer and saidhe wanted to do surgery right away.Two weeks later I had arthroscopic surgery on my knee.It was more then they thought.It had grown over my tendions above the knee also.Had physical  therapy three times a week for 2 to 3 hours each session for 6 weeks.  My knee still swells a couple of times a week and has started getting stiff again. Had an Mri done in Sept.2009 and will see the doctor soonto talk about the results. The pain is manageable. Could be worse.

 

Peglady,
I hope it helps, too. Is it one of the shots you have to get in a series? My cousin gets a series of them every few months.

Take it easy!

PaLady

Hi Aussiepvns, Welcome to this site.I am just trying steriod injections for now.My knee still swells. But pain is not to bad.I see you are a Mom of 3 little ones. It must be very difficult to get thru the day for you. I try to keep a positive attitude .  I not to feel sorry for myself and except my limitatioms.Its not easy.I look forward to your posting here.

To golitho, Hi. .Pvns  is caused by something going wrong in the body.The body attacks itself similar to RA. If left go and not managed it can eat away at the joint. Its very rare.You can have the fliud drained.Surgery is also an option.Sometimes joint replacement has to be done.Antinflamitories help.Lyrica at night hepls to get a good nights sleep.hope I answered your questions.

Hi! Just joined the site!
I too hve pvns in my right knee! I had an arthroscopy last Jan, where most of it was removed.
I then searched for an oncologist to gve me 20 low dose radiation treatments last May! I am now waiting to hve my follow up mri nxt Mon, to see if it has regrown
Or not! I can tell I still hve the disease as many of the symptoms still present
Themselves. I hve everything crossed tht I will hve no re growth!
Many blessings

Good morning minnie67!
It appears that you have indeed stumbled upon one of our older post here.
I have provided a link here to our home page of the "Chronic Pain" forum so that you can post a "New Topic" and introduce yourself. You will get more exposure this way and we would love to visit with you.
After you get to the home page by using this link.....just click the "Post New Topic"...and write away!....tell us as much as you can about yourself and what brought you here. If you have any problems finding your way, or find it difficult on how to navigate the forum, just ask and we will be happy to show you the way.
Thanks!
SE https://www.healingwell.com/community/default.aspx?f=16

(9yrschronicpain is a shining example of the type of members waiting to meet you! So please do hurry!)

Hello all with PVNS. I too am a sufferer of the disease however I have high hopes that mine is the localized type in which it will not reoccur. For those of you that have posted on here with reoccurring PVNS I highly recommend you read this article about it because it requries someone with seriously good skills to get rid of it completely... if not, if could require an entire knee replacement. READ THE ENTIRE ARTICLE.



I have to say that I am seriously hoping I don't get it again! My surgery was last September and I am still recovering, I did 3 months of physical therapy (which got expensive) and now I'm working out on my own. Squatting down to pick things up have become a serious task for me and me knee normally hurts for a few days afterwards. Does anyone have any positive news about fully recovering from PVNS surgery with no pain in the joint? And if so, did you just have to work hard and deal with the pain until the muscle reformed? I would love to hear from someone who had PVNS in the knee and has fully recovered so I can have a little bit of hope. Most everything has gone back to normal except if I were to squat or sit on my legs (causing my knees to bend all the way).

Hello RR and welcome to Healing Well's chronic forum. I have edited out the web address you put in your post as this is against forum rules. If you would like for members to read this article then you may make your email address available in your profile and they can contact you VIA email to get the address. Only members can see your email address in your profile.

I am also going to ask you to start a new thread of your own to introduce yourself. You picked up on a very old thread that was started here some time ago. With it being an old thread very few people will see it and give you a proper hello.

Please make note to take a look at the forum in place here at Healing Well. Thank you.

Post Edited By Moderator (straydog) : 8/20/2011 1:14:39 PM (GMT-6)