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Posted 2/23/2010 3:52 PM (GMT 0)
hi everyone,

i just wanted to say hello to you all,and introduce myself,

i was diagnosed with chronic pain syndrome in november,and it will be nice to chat with other people who can understand what i am going through on a daily basis.wink

Posted 2/23/2010 3:55 PM (GMT 0)
Hi missty, and welcome to the HealingWell forums! I'm sorry it's pain that brought you here, but you're right...we are definitely a group that understands what you're going thru.

What type of chronic pain are you experiencing? Are you in treatment of any kind and how are you managing day to day?

I am 47, married to a great guy, and have 2 grown kids and three grandsons. I'm currently off work on long term disability as I'm having a lot of trouble keeping my pain manageable, and I'm experiencing issues with side effects from the drugs I'm on. I try to keep doing my crafts, and some gentle exercise, but it's sure great to come here, chat with friends, and give and receive help.

Hope to see more from you over the coming weeks/months. It's nice to "meet" you!

hugs,
Pam
Posted 2/23/2010 4:46 PM (GMT 0)
Hello missty and welcome to chronic pain , a wonderful family of people who try very hard to reach out to fellow pain sufferers and commiserate and empathsize with each other.I hope you come whenever you need to, I mean whenever because pain flashes up at any time.Welcome friend !!
Posted 2/23/2010 5:29 PM (GMT 0)
welcome Missty. you've found the right place with a great bunch of caring , loving folks. Kick off your shoes, pull up a chair and settle in, you're home.

cat(ahoula)

Posted 2/23/2010 6:02 PM (GMT 0)
Hi Misty,

Welcome to HW. Everyone here is fantastic! This is a very compassionate, knowledgeable, understanding group. I'm sure that you will be able to find the support you need here.

I don't know what kind of pain you suffer from, but I myself have chronic eye & facial pain from a trauma that I had just over 3 years ago. I hope you continue posting with us so that we can get to know you & vice versa. This is more than just a forum, it's a family.

Skeye
Posted 2/23/2010 6:03 PM (GMT 0)
Welcome Misty!
Posted 2/23/2010 8:58 PM (GMT 0)
Hi, Misty, glad you were able to find us. Not glad you felt the need to but you know what I mean. Don't be shy or anything around us. We're all here for the same reason so nothing surprises us anymore. Stop in anytime, we're always looking for a new perspective on things and try to help one another.
Posted 2/23/2010 9:11 PM (GMT 0)
Hi Missty!! So glad you came and I'm so sorry your are here! I've been here a short time, but found much relief from knowledgable people who care. We all have different issues, come from different places, different backgrounds, but we have the same thing in common which is chronic pain. My name is Cat however there are a few of us so, I'll sign off as...
Cat (z4)
Posted 2/23/2010 9:49 PM (GMT 0)
Hello Missty! Welcome to our forum! You have definitely come to the right place to share your pain with us! The members here are wonderful, and very understanding. Can you tell us a little bit more about yourself, and what is the root cause of your pain. I, myself suffer from DDD, and will very soon have surgery to repair some of the damage from it. Are you taking meds for your condition, and are you seeing a Pain Management specialist? (PM) We wish you the best, and enjoy your time with us here.

A couple of things that we ask our new members to do, is to read the Chronic Pain 101 located at the top of the CP forum home page, and to please read the forum rules. The Chronic Pain 101, makes for some good reading, and you will find several good articles there. One of our Moderators posted it for us there, and she is a great lady! (Chutz)

Again, we welcome you!

(SE)
Posted 2/23/2010 9:56 PM (GMT 0)
Hello Missty! Welcome to the CP Forum. It saddens me to see yet another person with CP, but I am sure you will find that all of us here are here to lend a sympathetic ear when the pain is too bad for you to handle.

I too am a CP patient. Had 3 fusion surgeries 10 years ago (over a period from 2000-03) and I was diagonised with Chronic Pain syndrome, Failed Back Syndrome and Chronic Nerve Pain. I'm currently trying to get Wyoming Worker's Comp to pay for what my doctor wants as far as a solution or a possible solution to my heightened pain, a Spinal Cord Stimulator. You'll probably read lots of posts that will explain this procedure. It's suppose to give 50% relief to people with back pain and I am hoping that it will bring my pain down from a 10 to a 5 or even lower!

I'm 46 years young (but sometimes I feel like I am 109) and am married to a wonderful, caring man for the past almost 14 years. I have two boys, all grown up now and three grandchildren. I live in Kansas (yes I am living in a tornado belt but never seen one around here!). I paint, meditate, play games on my Wii, sketch, photograph wildlife to transfer through my own eyes to canvas and I am currently writing a medieval novel (first for me).


Sounds like a full life, huh? Well, not really, I still make time for my friends here on Healing Well and try to think of other things to bring my pain down as well! Anyway I've made this long enough LOL! I do hope to talk to you more and again Welcome!

Scarred
Posted 2/24/2010 5:41 AM (GMT 0)
Hi, Missty,
I'm just going to add my "hello" to everyone else's!

Glad you found us! Welcome!

PaLady
Posted 2/24/2010 5:45 AM (GMT 0)
Me too...Hi Misty. Wonderful to have you join the family. As you can see it's a great bunch of folks who truly understand what your life is like....we all live with pain also.

Warm hugs,
Chutz
Posted 2/24/2010 6:16 PM (GMT 0)
hi everyone,

and a big thank you for a nice welcome,

some info about myself,

i am 46 and a mum of two girls 25 and 17,i have been married to a wonderfull husband for 26 years today,and im still trying to work out who deserves the medal,lol

we stay just outside edinburgh in scotland,i have 3 small dogs whom i adore,

i have chronic pain in my feet,knees,back,kneck,and a lot of my muscles,i have ibs also,and suffer from low moods because i cant cope some days with the pain,

i have suffered from the pain for a few years now but was managebal with pain killers,then at the beginning of last year the pain was increasing and i started to feel unwell with flu like symtoms and fatigue,i eventually went of sick from work in august and november i was diagnosed with cps,

i am on pregabalin 600mg,brufin retard 2400 mg,nortriptyline,paracetomel,omeprazole, i attend the pain clinic at the western general and have just started a course of meeting with a phycoligist,

and i am sick to the back teeth of being in so much pain and feeling unwell every day,

thanks for listening

wink wink

Posted 2/24/2010 6:32 PM (GMT 0)
Hi Mistty and welcome aboard. I think you know by now that you are not alone in this battle. There are many of out there just like you trying to get by every day the best we can. it takes a lot oput of dealing with CP but it also can make us even stronger because we don't want to give in and let it win. Just take it a day at a time. Find something that you like that gives you some enjoyment, that goes a very long ways.

Glad you found us but always hate seeing another new person struggling too. Take care and keep us posted on how you are doing.
Posted 2/24/2010 6:52 PM (GMT 0)
hi again,

it saddens me that so many people suffer from so many different illnesses on a daily basis,and i am sorry for your suffering,but glad that i have some where to come now to chat or have a rant,

i have just read the 101 and there is a lot of usefull info on there,especially about the opoids,i was at doctors yesterday and the next step for me with my meds is opoids and doc was saying that she is concerend because of the addiction side to them?

(please excuse my spelling)

Posted 2/24/2010 7:09 PM (GMT 0)
Mistty there is proof that chronic pain patients rarely ever become addicted to opioids. There has been many studies done on this issue and the end result was people with CP do not get addicted to their medication. We may become tolerant to them as being on them for a length of time, but that is not addiction. Tolerance is when you need an adjustment or ac hange in the medication because the strength you are on no longger works. An example is I have battled high blood pressure since I was 28 and I am now 56. Over the years we have to change my blood pressure medicine out because it quits working after awhile, I become tolerant to the current medication. The problem we face is drs not understanding the difference and lack of education when it comes to medications. Many drs throw that word out there way too loosely.

Addiction is defined as for those that obtain the medication for illegal purposes, to get high, or sell the drug and use it in an illegal manner. There is a very big misconception about the definition of addiction.
Posted 2/24/2010 8:25 PM (GMT 0)
hi,

thanks for that reply,and i totally agree with you,our body become used to the dosage of meds we are on i will give you an example,i started the pregabalin in november and i thought it was a miracle drug to start with i was on 200mg now in feb im on 600mg,and thats the highest dosage i can go to,thats why i was at docs yesterday as the pain is coming through all these pain killers im taking,thats why she mentioned the opiods and the addiction to them as this is the next step for me,doc has prescribed duloxetine also has anyone here been on this?wink

Posted 2/24/2010 9:09 PM (GMT 0)
Hi missty and again Welcome to Healing Well Chronic Pain Forum! I hope that you find, like I have, that the folks here are like family, they are a deeply caring, and compassionate group of folks, and of course we all share that one malady that eats away at our very being, CP!!! As the saying goes misery loves company, and here you will find that you are not alone and you will have plenty of company! If you feel like venting then do so, (we can not fix you or take away your pain, no matter how much we wish we could) But we can lend you our ears and listen to you, and maybe, in some small way, we can share in your pain, and maybe, just maybe, lighten your burden just a little!

missty Welcome to our family

White Beard
Posted 2/25/2010 6:36 PM (GMT 0)
Hi Misty ~
I'm just now finding my way around the HW forum......wanted to welcome a fellow "newbie" to the group! :D I am sorry we have to meet given the circumstances.....I look forward to getting to know you better. Hope today is a low-pain day for you ~
Huggggsss!
Posted 2/26/2010 4:43 PM (GMT 0)
 

 

 

   Dear MissTy,

 

      Good morning. My name is Dani and it is a pleasure to meet you. I am very glad you found you way to Healing Well. I am however, sorry for my late response to your introduction. I have had a rather hectic time as of late.

 

     You have been in severe pain for a very long time and I am sorry you have to endure through so much. I do not want you to worry too much about "addiction" you see... there is a difference between physical dependence and addiction. Your doctor can go into more detail about the difference between the two. I, myself, have a few medicines that cause physical dependence. One took about 2 months to get to the desired dose, others not quite so long. Doctors are very careful about the slow increase and decrease (if need be). So, I wouldnt worry all too much about it, just ask you doctor to talk in more detail about the risks and benefits to the medicines he/she would like you to try.

 

     I wont chatter on endlessly! but! It was VERY nice to meet you and I do look forward to getting to know you better as time goes by. You are in our hearts here.

 

*hugg*

  dani

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