Ok...Which hurts the worst?

 How has everyone been? I haven't checked in for a while because the steroid treatments have me on the merry-go-round that you are all too  aware of..... This week will be my third and last treatment. I don't feel that they have done a thing anything but remove some of the redness in the shoulder, give me a little pitting edema in my legs and I'm sure that the scales have moved upwards quite a few pounds which I'm past worrying about after years of steroid use. I have at least gotten smarter and have kept EVERY piece of clothing I have no matter what size so that I have something to wear. I was so bold to give away all of my " bigger" clothing when I lost all of the "steroid weight" once and what a mistake that was! I did well for about a year and then everything fell apart again and the steroids started again then the weight jumped back on just like it had before but at least this time I had kept all of the clothing and I had something to wear! We're going to a wedding today and I found an outfit in the closet that I bought about 5 years ago and today I'm going to wear it to our dear friends wedding. Anyway, I don't know how I got onto this clothes thing.......sorry! My shoulder is no better. The shot I go in my right hip for the bursitis has worn off and some days I need a cane to really be stable. The chest pain I'm having stops me in my tracks....it goes up into my jaw and really takes my breath away. I have chronic chest pain and I know that the RSD will cause pain up into the jaw and it is on my left side so I'm going to talk to Dr. Figg on Wed. about it and see if he thinks I need to see my cardiologist now or  if he thinks its the RSD. I have a stress test and echo every 2 yrs because of the chronic pain and the tests are always perfect. Right now I'd like to run into Jimmy Buffett and sail away into Margaritaville, I think.  I have noticed that the duragesic patches from CVS do not break out my skin like my other pharmacy does. THey are  from a different company and are smaller and stay on without any problems. I've been trying not to take any pain meds other than the patch unless Tylenol won't handle it because things are only getting worse with this RSD and I don't want to run out of options with my pain meds. I think that I'm going to have to have my hip futher evaluated but really, I couldn't go through with a hip replacement right now anyway so what's the point. My attitude is a lot better at home. I'm over being "mad", it didn't help anyway and it wasn't fair to my family.My mother is doing a little better so that is a little relief there. Mercy, can we ever get a break? Love to all of you. I haven't read any post's  which I will try to catch up on. Take care.

Nurse 2

 

Nurse2 once again don't let yourself suffer needlessly worrying about dpwn the road. Everyone that wear the pain patches has medication to take for BT pain that is just a gioven. The patch itself rarely is enough to handle all of the pain. Quit cutting yourself so short lady, you suffer enough as it is. There are many, many options in pain medications available. Remember you deserve some quality life, don't worry about about what may never happen. Hugs and please take good care of yourself.

Hi Wonderful Friends,
I want you all to sit down because when I got this I almost fainted. Last Sat. I got an envelopein the mail from the government that I had been fighting for for only 6 years! I finally got my disability check!!!!!!! It was my back pay check for 15 months because they would only begin my disability as of Jan. 1, 2009 which is a little of a bummer in that my Medicare won't kick in until Jan.1, 2011 now and I thought that I would be eligible in Aug. But I am so greatful to finally be able to be accepted and to have some money coming in each month. It will help with the medical bills and we can breath a little now!!!! Whew!!! My checks will come the middle of the month so I should get another one the middle of June. Look out Hobby Lobby here I come! I'll just be making jewelry galore as my neck will allow! I will pray extra hard for those of you who are so desperately waiting for the same news. Just a quick question. I know that a lot of this is the numerous meds that I take but I really feel that my mind is slipping. And I don't mean the occasional word, I mean I'm going down the sliding board at the playground kind of slipping. My daughters have had a "conference" about it and I just hate it when they tell me that they have told "Mon, I've already had this conversation with you three times now!" I was trying to write down a couple of questions to ask the doc yesterday and I wrote the same question on the same line twice. I don't know if I should see a neurologist now or just say screw it I've got enough going on right now that the new doc would just shake his head at the meds I take and leave the room or what. My muscles are so sore and I think it is a different kind of sore than the fibro but no one listens anymore. And I used to be a champion speller but now I'm lucky to spell my own name now. Oh, enough complaining. Just wanted to share the good word. I guess we just have to get lawyers and grit our teeth and be patient. Praying always helps. Thanks for always listening. I can't tell you how many people I have given this web site to. God guided me here to help save my sanity and I hope by nudging someone else here they too can find friends who care.
Nurse2

Hi Nurse2,

I'm so happy you were able to finally get your disability. What a relief that must be!

I certainly cannot suggest a medical decision on your memory, but a lot of us here seem to have pretty severe difficulty. I wonder if it will improve now that your stress level will go down.

I wish you all the best!

Nurse2,
CONGRATULATIONS!!!

After 6 years you'd better celebrate! Wow, what a long, long wait! But it's over, thankfully!

Thanks for sharing!

PaLady

Thank you for your suggestions. Right now I'm riding on that steroid bobsled to hell and it hit really fast this time. I just got my injection yesterday afternoon. Well, I guess it isn't too soon. My face looks like I've tried to kiss the sun, I've got that lovely pitting ecema thing going on and all I can do is cry. A really good friend of mine called me that I hadn't talked to for months and we had a lot to catch up on. She's a nurse I used to work with and as soon as I say her name on the caller ID I started crying. I started not to answer the phone but I was afraid something might be wrong. She's been waithing to get her knee replaced for over 7 months now ( an insurance thing). Hope you all have a good night.
Nurse2

Hi Nurse2:

I am so happy that your looooong wait for SSD is finally over!  I hope that a few others here at HW get the same good news soon too!

I'm sorry that you didn't get more relief from the steriods.  Please take Susie's advice and reconsider some BT meds - the stress of being in so much pain can cause other problems that you just don't need!

Hang in there,

Lorie

Well there's a big storm thunderstorm brewing outside and my body feels like it's beeing electricuted (sp?). Every hair on my body is standing on edge. The pain level is high tonight so I just took my meds and hope they start to work soon. I hope the rest of you are having a good night sleep so I'll say goodnight and close the door.....sleep well.

Nurse2

Nurse2

You just can't seem to catch break! I will keep saying my prayers for you, and hope that you get better!

Just know that we are here for you!

White Beard