Denied on appeal for SSDI

I think we are on a similar schedule and I should be getting my next info in a week or two (at least so says ss).  They told me last week that they have 60 days to get an answer back from the disability determination services on an appeal and that they had sent my appeal on May 7th.....then snapped it would be July before I heard anything...It actually was July 1st that day   Anyway, I'm sorry that you were denied again.  I expecting the same thing.  My apt with the Reumy is at then end of this month, so they won't have my additional diagnoses either....figures.

Nothing like hiring a lawyer and heading forth.  I did speak with the psych quite thoroughly about his progress notes and his detailed session notes and he suggested not releasing either because of how sensitive they are.  He completed a summation and sent that......I hope it will be the same way when court comes up!!!!!!!!

Best of luck with the attorney.  They are, as you are well aware, an integral part of the process from here on out. 

Jag,

So sorry to hear of the denial......the one question that we should be allowed to counter ask of SSD is WHO is going to hire any of us on the amount of Pain meds etc. that we are taking?  Just once I'd like to see how they answer that one!

XXOO
Patti

I gave up on getting my back pay, and SS keep charging me for part A on and off depending when my husband worked. Well one day I came unglued as they waited 3 month to tell they were not going to pay for it and wanted me to pay 3 months back. I blew up and called them to tell them to take part A and shove it. Well the person on the other end was real sweet and understanding, then she tells me I had money coming to me. She mad sure I got it all back. It took two try to get it but I got it all back plus an extera thousand, which she told me to keep and how to keep it.

Just hang in there once you get to the Judge it is a done deal, I have only heard of a very few not getting it a that point. When you get a court date make sure your lawyer has all the updated reports. You might want to also have letters from friend and famly on how this has effected you physacaly and mentaly.

butterflyrose

Thanks everyone for the replies.  At least I didn't cry this time when I got the denial.  Guess I was expecting it more.  I'm kinda kicking myself in the butt right now for not calling SS myself to delay the decision until my other records with the new dx's was received by them.  They were on their way and my PM doctor had just sent out the cfr to my lawyer last week, I think that is the form, it states how often you can bend, stoop or how much you can lift.  I will call my lawyer today to get the ball rolling again and ask why this wasn't done.

Straydog, the steroids and methotrexate are helping alot.  I am at 12.5mg prednisone per day with 7.5mg methotrexate per week right now but will reduce to 10mg pred starting Wednesday.  The rheumy has me on a slow reduction of prednisone because if you reduce too fast the PMR can come back with a vengence.  She is hoping the mtx will replace the steroids but even that has it's bad side.  I go for blood tests often to check my liver function.

I have been able to wean myself off the oxycontin, down to 10mg twice a day now from 30mg every 8 hours, hopefully will be off of it completely by the end of the month.  Still using oxycodone 5mg as needed.  I am starting to have lower back pain radiating into my hips occassionally so I hope the radiofrequency ablation I had done isn't wearing off already.  I feel so much better without the oxycontin in my head.  My thinking process is so much clearer and I can actually sit down to read a book without falling asleep.  We'll see after the rf does wear off and I am off the steroids to see if I can actually stay off of oxycontin for good.

The sad thing is that I am feeling better now but I know that nothing that has been done is a fix.  It is scary to think about the future still, I haven't forgotten how awful I felt before or how no matter how many drugs I took, I still hurt.  Pain wise I was at a very bad place for awhile and I had thoughts like many here that I didn't want to live like this.  Polymyalgia Rheumatica is very very bad and I wouldn't wish it on my worst enemy.  The pain was debilitating.