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Posted 9/13/2010 1:37 PM (GMT 0)

 

Good Morning Chronic Pain Friends!

 

      Well, it is a beautiful Monday morning! With a chill in the air and hot air balloons over head, it is constant reminder that Fall is nearly here. Regardless of the temperature and scenery it is Monday. There are tasks to complete, jobs to do and appointments that need to be kept.

 

      Often times we are so busy supporting others that we forget to update about ourselves. So, before we get too wrapped up in starting out the week... Please, stop by and let us know how you are doing. Give us an update. We want to know how you are doing.

 

What are your major plans for the week?

How are you feeling? What has your pain scale been over the weekend?

Posted 9/13/2010 3:47 PM (GMT 0)
 Hey Dani girl , Can't resist answering anything with your name attached . I'm going on Thursday to see the surgeon , Wednesday I see the shrink and PT is coming today , this afternoon between 3-5 pm . So a lot to do I guess , my temperature was 99.1 , I been dealing with a low grade , slight elevation in my temperature , topping out at 99.6 yesterday , then went down to normal and now back up to what it is . Anyway I'll do my best to get this stuff done , just got to really get it in my head I'm not in my 20's or 30's anymore and I'm gonna feel stuff now , and accept it as normal . Love to everyone , Mikel
Posted 9/13/2010 4:42 PM (GMT 0)
I have a hip joint injection happening Wednesday, so I have to stop my pain meds 24 hours beforehand, so they can measure my pain before and after the injection. I believe they are injecting the joint itself, as well as doing an injection into the bursa for inflammation relief.

Other than that, I'm having a regular low-key week - trying to encourage people here, working on some crafts, and napping a lot.

Hope everyone has a good week.

hugs,
Pam
Posted 9/13/2010 4:45 PM (GMT 0)
I'm feeling terrible. I slept most of Sunday, but then couldn't get to sleep last night due to high pain levels. I'm a zombie here at work and barely even made it in.

I'm a teacher (I'm sure I've said before in other threads) and it seems to be getter harder and harder to pretend I'm not in pain and do my job. I just don't know what to do. I have no idea about SS or TRS disability.

I heard it's extremely difficult to get SSD in Texas and I can imagine that the Teacher Retirement System is even worse.

I can't afford not to work with just one income. I either need Disability or to continue working. My husband makes close to 6 figures, but with a mortgage, car payments, and a 5 yr. old daughter, we need a dual income.

I'm just at a road-block with the pain. My coping mechanisms don't seem to keep me going in my 40's like they did in my 30's.
Posted 9/13/2010 6:21 PM (GMT 0)
Good Morning!

That's for posting Dani..always a pleasure to hear from you!
Sorry, ElenorRigby! you are in a hard place right now. Try to simplify your life as much as possible. My husband and I went down to 1 income. It was really difficult the first year but now, i'm getting more and more used to it. Now days people live with so much stuff and things they don't really need. I think they're is alot of support out there for people trying to simplify in this economy. It has alomost become Vogue again to save, scrimp, and downsize!!! You can do it! I am in my 4th year of waiting for disability.
not working:( We had to make some major changes. Hugs to you!

I've been feeling really weird latley. I have alot of energy in the middle of the day but morning are hard and by mid-afternoon I'll get really dizzy and I know I need to sleep.
Haven't been hungry at all. This is a red flag for us Crohnies because usually nausea follows and then....lots of Tests and Dr.'s appts. My Diabetes has been a little up an down latley. I'm due for some labs and am afraid to go becuase if my sugar is high ...they want to put me on meds. These med's cause D and I can't have anymore of that. I'm learning that stress can even effect my sugars. learning...still learning!
Other than all of that....my husband been really tired latley. I have slowly seen the toll that my illness has made on his life. I going to be giving him extra TLC! So often we forget about the ones taking care of us sicky's and they sometimes have it worse off.
Heather June
Posted 9/13/2010 8:25 PM (GMT 0)
Hey, all! Been wanting to reply to some threads before, but have been quite busy. Sunday I spent in the countryside with my bf and our swordfencing group for an amateur folm of 4 minutes which our teacher wanted to make with us. I was the boy shooting an arrow and starting off the fighting and was okay, but then had to crouch down on the floor and then get up on my feet and down again several times and then the scene where I died from a dagger and had to fall down on my knees several times, plus, more than a dozen of men and no restrooms. Just find a tree, yeah, easy for the men, but I just didn't drink more than a few sips of juice throughout the whole day. My knees were feeling horrible afterwards, but it still was quite a lot of fun.
Today, I went to the fitness studio. My bf gave me money so I could pay for the training I actually need which was so wonderful of him, we both don't have much money. It feels good to work out in the fitness studio since I picture how the muscles build up in my legs to hold the kneecap in place and prevent further damage. Still far from that, though, if I'm not in pain, I often feel my kneecap moving just slightly, feeling "loose". Pain has been okay, though, just shouldn't do that acting in the countryside again any time soon.

And I'm so worried about the German health system. This politician Philipp Rösler started of the reform of the health system where basically the poorer people will have to pay even more - which is where German politics generally is headed.
Posted 9/13/2010 10:35 PM (GMT 0)
To all my dear family and friends here.....I really miss you!

I have had a rough few weeks. I went off the steroids and am waiting for the flare so I can go see my Rheumy. Most important seems to be my hands....they need to hurt because that was the only joints he felt when he said it did not feel like I had RA. They do hurt.....every morning for an hour or so and they begin hurting at night too, but not like they did when I had the 2 flares. Because I have to drive so far and want to get some answers this time...I am still waiting!!! The big problem is my back and knees! My back is getting so bad, I just want to cry. The pain pills are not helping much anymore and my PCP says, for now, she can not give me any more then I am taking. I spend more then half my day in bed! My knees are really bad right now too! And by the end of the day, my ankles, hips, wrists, fingers and jaw all ache! I have had a really bad cold for the past week. Thought it was strep, because the kids had it. Starting to feel a little better from that, at least!

Anyway, I want to apologize for not being around to support all of you lately! I truly am sorry!! You all mean the world to me and I miss talking to you all!! Also, sorry to the new people that I have not welcomed.....I usually try and do that as soon as I see someone new! I am just a mess and have not been around much!!! I hope you are all doing ok and having many LPD's! Hugs and love to everyone!!
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