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Posted 2/28/2011 4:36 PM (GMT 0)

 

Good Morning Chronic Pain Family!

 

 

     It is another beautiful Monday morning! The sun is shining, the birds are singing and spring is on the way. Which also includes the dreaded spring cleaning... Regardless of the season! There are still tasks to complete, jobs to do and appointments that need to be kept.    

      Often times we are so busy supporting others that we forget to update about ourselves. So, before we get too wrapped up in starting out the week... Please, stop by and let us know how you are doing. Give us an update. We want to know how you are doing. Even you old time veterans who are lurking.

 

How are you feeling? 

What was your pain scale over the weekend?

What are your major plans for the week?

 

 

Posted 2/28/2011 6:42 PM (GMT 0)
 

     Took a day off work, and slept through two cycles of my meds, only to wake up to a pretty rough start for the day. Playing catch-up now! shocked

      SE

Posted 2/28/2011 7:57 PM (GMT 0)
Hi! I have a lot of pain in the past two weeks its been horrible! Meds are covering it a little bit, but for the most part I just live through it the best I can.
Posted 2/28/2011 11:42 PM (GMT 0)
Had a Hysterectomy last week to hopefully help with pain, but so far nothing, guess still healing, have had chronic pelvic pain for yrs now and hoped a hystorectomy would help..at least my ignorant pain dr thinks so. Felling frustrated and impatient.

Interstitial Cyc***
Crohns Desease
several reconstructive surgeries for rec/vag fistulas
Depression
Pelvic Adhesions
Posted 2/28/2011 11:56 PM (GMT 0)
***Sick and Tired of being sick and tired
Posted 3/1/2011 3:03 AM (GMT 0)
The past week has been a bit of a hard one. Pain has been on a sharp rise, doctors are talking about surgery, and pain prevents sleep despite new painkillers. Lack of sleep is making it more difficult to hide pain and concentrate at work. Sunday was a low pain day, though, and I managed to even get in a walk around the property. I probably looked pretty funny hobbling around trying not to break open the leg wound again :-). Here's hoping for a better week ahead.
Posted 3/1/2011 3:19 AM (GMT 0)
I'm ill coughing and sneezing. Had to go to Endocrinologist toady, zapped my strenght.
Tomorrow is appointment with rheumy and I'm going, but taking bets as to weather he'll cancel me again..
I'm hoping no cancel, fingers crossed...and waiting to get record sent over to new pm
doctor, still now I'll have to wait til the 21st of March for that appointment, and I'm too tired and don't give
a rats a** ....
Healing hugz to all for a better week than me....
Posted 3/1/2011 3:42 AM (GMT 0)
Oh Chart I hope you feel better really soon. Do you have a cold or allergies? Good luck with your appointment tomorrow. I'll keep my fingers crossed that the weather will behave and you'll be able to go to your appointment. You could make some hot tea with lemon. That might help you to feel better.

lots of soft hugs and love
Loretta
Posted 3/1/2011 4:42 AM (GMT 0)
Well, I was supposed to have a chemical stress test on Monday with the Dr recommended by the hospital....but....something seemed "off" and I decided not to do it. I will likely have to phostphone my bladder surgery from the 14th for a while because I will have to have cardio sign off on the surgery now (uugh) and I'm not going back to this dude if I can help it. Anybody ever heard of a cardiologist office with an answering machine????? instead of an answering service.... Kind of makes me nervous there, plus he and his staff gave me a quite different perspective on the test, what it would be like, and how long it would take. I have a Psychiatrist apt on Wed (thank goodness) and will be discussing it all with hime. My daughter and I have hair cuts on Tuesday, along with several deliveries and the new floor installment in the addition. Then on Wed, she gets to go to the local Dr in the PM, after my Dr in the AM. Now my sister wants me to drag her son to the same apt (and we're talking girl things as the reason for the apt)!!!! You can bet we'll be talking a little more today about that one. Thursday follows with med deliveries, cabinets and countertop deliverys and installs in the addition, and I take my parents to Savannah to hop on a Plane for Australia on Friday. They'll be gone 20 days, during which time I have to finish the apartment and have it "move in ready"....that is unless I do have surgery on the 14th.....that would mean fnishing it all by then with another three Dr apts next week!!

I had little girl company all last weekend and the church wants a childrens' sleepover on Friday night to Sat Morning 8:00 PM to 8:00 AM. Kind of throws a monkey wrench in resting a little doesn't it?

And the most fun of all is that last Monday, my husband got a telephone call that said "report to ......to work tomorrow.....you have been transferred". Nothing like a little added job stress to help an already stressful situation.

Here's wishing for someone else to have my quiet week this week and next week and I'll take theirs for the two weeks after that.

:)
Posted 3/1/2011 6:53 AM (GMT 0)
Chartreux -- Keeping my kittie's toes crossed for you in hopes your appointment isn't canceld! She's a Hemmingway cat, so she's got alll sorts of extra toes to cross.  ;)  24 toes total infact!

Desert -- Can you take anything to help you sleep? I know some nights I take Valerian root with Camamille to help. Just check ahead of time that it won't conflict with any current perscriptions. It shouldn't, but better to play it safe.

Pain has been pretty constant, today was actually a bit better but then given I spent Sunday pretty much out of it. Not sure what was wrong, but I think all the stress came to a head and my system crashed. Pretty much on the couch and asleep almost all day long with a massive migraine to top things off. Much better today in comparison! Only an 8 instead of a 10 on the pain scale.

Trying to take it easy this week, though I have one project I need to get back to work on for a friend, especially since he's paying me. Have to order feed for my horse and buy him a new bit. Now that the weather has stabalized I really need to see if our partnership is going to work out, otherwise I need to accept that no matter how wonderful he is I need to find him a new home. Splurged last Friday and bought new frames for my glasses and got the treat of them being in today. Haven't seen the boyfriend in over two weeks now, but hopefully this weekend we can make some time for one another. Still no word from my PM doc on finding a surgeon, but trying not to focus on that to much and on little things I can do that are positive. Proud of my son for handling a situation on the bus like a gentleman; even his Principal was impressed.

 

Posted 3/1/2011 7:24 AM (GMT 0)
Thanks Rhaevin. I have to check out some of those options. I have seen them mentioned on these forums before but have never tried them. Well, something to research while I lay here.
Posted 3/1/2011 2:05 PM (GMT 0)
Doing ok. The pain relief that came after the surgery is gone already, and the normal chronic pain is back in full force and then some. Just trying to maintain some semblance of normalcy. We started our pre-marital counseling last night, only to be told by our Pastor that we are working well together and unless we feel we need some counseling, we are good. We rated very high on the compatibility and personality test he gave us, and he is happy to be marrying us. He even praised my fiance about how well he integrated into our home and family. My fiance commended the boys and I for our welcome and loving family. We have to put my cat down today. Her rectal prolapse keeps returning and we can't go thousands of dollars into debt for another surgery that may not work. I need to get my butt moving for my sanity and hope. At least I have a home, family, friends, and support. There are so many who don't have basic needs and emotional needs met. I am very lucky.
Posted 3/1/2011 9:44 PM (GMT 0)
Monty's Mom: I am sorry pain is back, just had surgery for pelvic pain also.. I have pelvic Floor Tension, is there a difference? noticed alot of similiarities with us , 6 reconstructive surgeries rec/veg area, Chrohns, fentelnyl, what else,pelvic adhesions..just had hystorectomy to try and help pain, still taking meds with no improvement..k.i.t.
Posted 3/1/2011 10:13 PM (GMT 0)
ljb,
I wish I could tell you that your hysterectomy will solve everything. For you it may! Do not give up hope that you will have less pain. Sadly for me, my hysterectomy and subsequent staph infection made things worse instead of better. I had undiagnosed endometriosis for years and sadly, it is still there, wreaking havoc on my insides and growing more which creates more adhesions and becomes and endless cycle.

I pray that you will have relief after your hysterectomy! My last surgery for ovarian remnant tissue and an ovarian cyst sadly just caused more adhesions and issues. Please keep me updated on how you are! I am so hopeful for an effective treatment or cure for us.

Mindy
Posted 3/1/2011 11:39 PM (GMT 0)
For Monty's mom: I have gone through 2 yrsof MRSA staph infections..Did you ever get rid of it? They thought I would have endometriosis but founnd nothing through the scope. with the birth of my Daughter I tore very bad and had to have that area reconstructed several times then..prolapsed..I hope so bad that this hysterctomy works, but so far I am back on pain meds..Thanks for the kind words it means alot.
Posted 3/2/2011 12:31 PM (GMT 0)
LJB, I was lucky and it wasn't MRSA. Just 3 rare forms of staph. They had to surgically remove all the affected tissue, and I was clean until the next surgery at the same hospital. Now that I go to a teaching hospital for my excellent surgeon, I have no issues with staph infections.
I do have some suggestions for relief that are not conventional, but some worked for me, some didn't. First is heat, lots of heat. Warm bath, hot shower, heating pad that wraps around my hips, hot water bottle, and hot tub or heated pool. Second, meditation or relaxation, while breathing by moving your belly, not your chest. Walking ironically helps a lot, and keeps things moving so that my arthritis doesn't flare too badly. Gentle stretching every day of my legs, back and arms. Also, accupuncture if you can afford it, myofascial massage, and rest. Some days are better than others. You are in my prayers.
Posted 3/2/2011 6:26 PM (GMT 0)
Montys mom: when did you get all the pelvic pain? How long has it lasted. It has almost been ten years and the Fentynyl works but PM was convinced that I need hystorectomy to solve pain and I see him next week afraid he will take away meds, still have same pain, almost a painful pressure, hard to stand up.  Fortunalty I got rid of Staph by alot of the things you sugested, bleach baths,, heat, using an antibicrobial soap plus do not go to that hospital anymore..Every time one was drained another would pop up. it was endless, have loss part of hearing and vision from infections there..even went on pic line with vancomyacin, a broad spetrum antibioticc only availible by i.v...that never worked just home remidies did, which were suggested by a M.D.

Crohns desease

Pelvic Floor Tension

6 reconsructive surgeries rec/vag

Pelvic adrhesion

colostomy bag

Severe Scoliosis

Depression

 

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