Please Help, Looking for TMJ

Hello,

I'm obviously new here.  I've posted in the fibro section but another member mentioned I could maybe find you here.  I have constant headaches, have had them pretty much since I was told about my fibro which has been about 15-16 years now.  Any suggestions you could give me would be so appreciated, more than you would ever know!:)

Hugs

Michele

Hi Michele~

Welcome to the CP forum...nice to meet you. I'm sure tmjpain will get on ASAP. She's a wonderful lady and will do all she can to help you. She has lots of experience dealing with htis type of pain, sad to say, but with that experience comes her knowledge.

Warm hugs and stay in touch~
Chutz

        tmjpain will be back on Tue. I'm sure she will respond to you as soon as she see's Chutz's email.

              She went to stay with her mother for a week.

       SE

Hi Michele. here I am hon.
sorry that you have been suffering so long with headaches. I can feel your pain.
Go ahead with your questions, or if you want to email me, my address is in my profile.

Hope to connect soon.
Hugs,
Suzane

Hi Michele

So nice to meet you. Where do you live. I am in Ottawa, Ontario. I am 53, married to my soul mate, and have two boys, 20 and 22. I am a paediatric nurse in a children s hospital but on disability for two and a half years now . Tell me something about you.

My headaches started in 2000. The headaches have always been the same, bilateral temples and continous, mostly severe pain. I had a tmj disorder worked up. Had braces then and again right now and many appliances and mouthguards. Make sure you see a dentist who has expertise in tmj disorders, not just a regular dentist. I have seen every kind of doctor it seems. Certainly see a neurologist who specializes in headaches. I have tried all kinds of meds. I have tried many forms of treatments, massage, chiro, head, neck and jaw therapist. acupuncture, and more but i canèt remember it all, i would have to get my journals out for the specifics, which i can if you want. I have ten journals. I would never be able to remember this horrible journey iève been on. Certainly get a pain management doc. I did get better after a while of being done the braces and being on methadone. I got back to work after being off for a year and a half. and now everything is back and no one knows why. i have gone out of town to pain clinics and a natural pain relief clinic. I have tried botox for two sessions with no help. I have had nerve blocks, no help. ketamine infusions at a home with no help. i am on methadone again, since Dec. but no effect on my pain. i too am in bed quite a bit. my depression is terrible lately. Doing lots of crying. I am Christian and so i do a lot of praying, asking for strength and courage to continue this journey until we find an answer.

Well there is a start for you michele. What have you dono so far andwhat meds have you tried. If you want more specifics just go ahead and ask me questions. I can look up all my meds i have tried in my journal.

You can email me too if you prefer, my email address is under my name

i sure hope you get a good night sleep

Talk soon

 

it was me hon so no worries that you gave your life story to a stranger

you should have introduced yourself as i didn't know it was you

now we are good to go

lol