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Posted 4/27/2011 11:47 PM (GMT 0)
Well praise be to the heavens!! My hydromorphine exalgo 8 mg pill was finally pd by w/c. I picked up my container of pills and went to PT today. My leg was killing me but I was able to increase my knee bending on the automatic knee bender by 4 numbers. it wont help my knee but it will keep w/c paying for my pt. always show an improvement. The pain clinic recieved the fax from my ortho trauma surgeon in the northern part of the state. I was told that the doc has to review what was sent to him and then a scheduling cooridnator will call me to make an appt. I can take vicodin for breakthru pain when I take my exalgo . It takes 8 hours to kick in. We will see about that statement. My body isnt like what is written about the drug..everyone have a low pain night. i will be stopping by periodically on chat to see if anyone is there thru out the night.
Take care

Betsey
Posted 4/28/2011 12:45 AM (GMT 0)
Betsey,
I'm glad you got your medicines and will hope you get some pain relief...
and lets hope you don't have to go thru all this w/c medicine problems ever again...
Well wishes...
Posted 4/28/2011 3:54 AM (GMT 0)
Hi Betsey. It's so good to hear that you finally got your pain meds. It's about time. And now if mine comes tomorrow by mail, we'll both be doing good. I'm so glad that you got he meds though. I know how it is waiting for the prescription. I hope you have a low pain night. Take care.

love and hugs
Loretta
Posted 4/29/2011 7:56 PM (GMT 0)
My dear friends-My exalgo pill---i dont feel any relef and it has been 2 days so I am taking my vicodin 10-600 every 4 hours. i was able to get an appt at the pain clinic where I also go for pt. My appt is 5-17 at 9:45 am. It cant come soon enough. Last night i slept 6 hours but woke up in extreme pain husband brought me my vicodin and water and I settled in on my recliner and my laptop. Hooked up with paula and crazy ken in the chat room. Saw kate and william get married--i guess the british tax payers pay for that wedding right? It will be interesting tosee what difference in meds will occur between pain clinic and my internal med doc that I have been working with. Everyone have a low pain night. thanks for listening.
Soft hugs
Betsey
Posted 4/29/2011 8:08 PM (GMT 0)
Hi Betsey. I'm sorry that the exalgo isn't working for you. It stinks when you wake up with extreme pain. I'm glad your husband got your vicodin for you. I hope it helped the pain. You take care and I hope you're feeling better today.

How was the wedding? I bet it was really extravagant. I couldn't stay awake.

love and hugs
Loretta
Posted 5/3/2011 10:01 AM (GMT 0)
My Friends

I have been calling the pain clinic everyday to see if they have any cancellations for a new patient and so far it is negatibe. I am miserable. I wwont go to the ER. It would take 8 hours to get in to a curtained room. I cant handle that kind of wait. My leg would balloon right up. So I wait and keep calling. Members please pray that I can get my first appt at the pain clinic alot sooner than 5-17 . Thank you my dear family.

I called an acquantance on monday to see if she could come over for 4 hours today to help me brush up our living areas on the first floor. She said she could. Heavens bless her. Any help she gets accomplished will be a heaven sent blessing.

It takes all I have to start supper scrape dishes off, prewash the dishes and potsand load them in dishwasher.
Husband thinks for some unknown reason that I can do all kinds of things and I cant. He says well I guess you didnt take the full pot of coffee off of the cooffee maker. i told him no that I cant hanYou are my famildle it it is to heavy for one hand and me trying to navigate a walker. Then he gets all wacked out of shape. So I dont communicate with him for hours. He treats me like that then He doesnt need to be spoken to.

You have a low pain day

Thanks for understanding

Betsey
Posted 5/3/2011 10:25 AM (GMT 0)
Betsey,

I am so sorry you have so much pain and can't get any relief! I say don't give up on the pain clinic, I am praying you get in soon! If it gets really unbearable is there an afterhours clinic anywhere you can go to to get admitted to a pain management ward?

Sorry your husband doesn't understand as much as you would like! My dad can be like this sometimes and my brother seems like this, but I know that he really does I can see it he just has trouble showing that he does and getting it across.

I'm sure you already know this but remember people that haven't experienced lots of ongoing pain etc may find it very hard to understand, and because so many of us chronic pain patients have learnt that although we may want it, complaining all the time and acting like the world is going to end won't help us with coping, if anything it will make us feel worse! instead we have learnt to live the best we can and not look back at the bad days and just look ahead and hope tomorrow will be a good day! This can make it seem like we are fine because our strength is greater than many of those around us. So just remember that when people don't understand the amount of pain you are going through and don't try to help you, it is because of your amazing strength and ability to get past the pain :) never feel like people don't care, because I care the world about you and all of the members here and I know everyone here cares! Maybe you could have a chat to your husband and just tell him how you feel etc or even go to a pain doctor/psych and get him to come so he can actually understand more and see what you are going through?


Good luck getting on to the pain clinic! Praying for you!

xxxx
Posted 5/7/2011 1:18 PM (GMT 0)
Friends

Yesterday was my last preauthorized thru W/C physical therapy. The bending of my knee and straightening of my knee is worse now than a week ago. I called my orthopedic trauma surgeons office and I explained to the PA that my leg needs to keep moving until I have my total knee replacement in the winter. I placed the ball in his court. I will get a call next week to see if a gym with a trainer would be beneficial or more PT.

The 17th is getting closer for my appointment at the pain clinic. Cant come soon enough.

I attempted to walk a short distance with a cane but that wasnt productive. i had to much pain so if the pain can be toned down to a low roar maybe I can walk with a cane instead of a walker for short distances.,

I have got to wash my hair and get cleaned up today. I will take more meds and wait for them to work and and start by washing hair in kitchen sink and see how I feel.

I will let you know what I find out from my trauma surgeon in regards about PT.

I feel down today couldnt get a good nights sleep last night and hurt with a count of an 8.

Everyone have a low pain day.

Soft Hugs

Betsey
Posted 5/7/2011 9:45 PM (GMT 0)
Hi betsey. I'm sorry that your knee is giving you so much trouble. I hope you were able to wash your hair and get cleaned up. I'm sure that's a hard thing to do for you. I wish you luck on getting your knee to move better. I know waiting for that PM appointment seems like forever. The 17th will be here before you know it. You take care. I hope you're having a low pain afternoon/evening.

love and hugs
Loretta
Posted 5/9/2011 6:44 PM (GMT 0)
My Family

I had an unexpected doctors appt with my internal medicine doc that has known me for 20 years and has trying his best to get rid of my pain. He had me on exalgo 8mg one a day and vicadin 10-600 one every 4 hours. I told him exalgo isnt working like it should. He told me that it should give me relief for 36 hours and it doesnt do squat for me. So he took me off of exalgo and said to continue vicadin.

he gave me sample pills of cymbalta to use as a pain reliever and pennsaid thin gel to spread all over my leg. I came home and hiked up my capris pants and applied the pennsaid all over my leg. waited 1/2 hour and it works!!! i felt some relief!. He said that I probably wont feel any difference for one week when starting cymbalta so I will see what happens.

yesterday my husband drove me to clothing store and i got into an electric cart and i went clothes shopping. My clothes were starting to drupe and hang on me. So I ended up with 12 blouses at 3.00 each 2 skirts, 1 pair jeans and 1 pair of capri pants, 1 pkg of no show socks, 1 pair pantyhose dark shade so my incisions wouldnt be visible, and a BIG smile on my face from ear to ear. it was a great mothers day for me.

I still need a belt to wear with my capris pants but I can get that next weelend. Gosh my leg does feel better. lol

I would love to hear from my family here to see if they have ever used pennsaid gel. Alot of times I need to chat but when I log into chat room no one comes and I wait and wait.

Everyone have a low pain day.

Betsey
Posted 5/9/2011 6:59 PM (GMT 0)
 

      Hello Betsey!

           Glad to see that you got some relief with the gel! Lets hope the cymbalta adds to it now!

    Now my question is "What am I chopped Liver?" smilewinkgrin LOL...... I have dropped into the chat room several times to find you there all alone, and have visited with you when I can.

      Maybe you could do as some of the other members, and announce that your going to be there at a certian time if anyone wants to join in.  There would not be anything wrong with setting up an unoffical time every day to check and see...like maybe 10:00am everyday....or 2:00pm on a daily basis. Maybe some of the other members will chime in here and you all can work out a good time to do so.

     Take care!

 SE wink

Posted 5/9/2011 7:06 PM (GMT 0)
Oh Michael

you arent by no means chopped liver. dont feel hurt, it is just a little frustrating to swing into chat and nobody is there. So I will make an announcement in new topic and see what happens. thank you for that suggeation.

Hugs

Betsey
Posted 5/9/2011 7:26 PM (GMT 0)
 

    aaaaahhhhhHHH! Im just teasing you! wink   It really does one good to have someone there to visit with.

          Lets hope you get some chat time in! wink

      Take care!

 SE wink

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